Search Results - "Weidner, Ruth Ann"
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The Impact on Family of Pediatric Chronic Respiratory Failure in the Home
Published in The Journal of pediatrics (01-08-2016)“…Objective To assess the family impact of managing severe, chronic respiratory failure (CRF) at home. Better understanding will inform parental counseling and…”
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2
Assessment of health-related quality of life among adults hospitalized with sickle cell disease vaso-occlusive crisis
Published in Blood advances (14-01-2020)“…Sickle cell disease (SCD) is characterized by painful vaso-occlusive crises (VOCs). Self-reported pain intensity is often assessed with the Numeric Rating…”
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Predicting Health Care Utilization for Children With Respiratory Insufficiency Using Parent-Proxy Ratings of Children's Health-Related Quality of Life
Published in Journal of pediatric health care (01-11-2017)“…Abstract Introduction Children with chronic respiratory insufficiency and mechanical ventilation often experience acute illnesses requiring unscheduled…”
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Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss
Published in Journal of patient-reported outcomes (01-01-2017)“…Background Pediatric neuromuscular illnesses often result in decreased health-related quality of life (HRQL), notably in physical functioning. Generic HRQL…”
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5
Late Effects Are Important Considerations in Initial Hodgkin Lymphoma Treatment Decision-Making According to Survivors
Published in Blood (13-11-2019)“…Introduction The treatment landscape of Hodgkin Lymphoma (HL) has undergone a revolution in recent years, providing multiple options for providers and patients…”
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Quantifying Social Disadvantage for Patients with Sickle Cell Disease: Implications for Quality of Care
Published in Blood (29-11-2018)“…Background: Socioeconomic disadvantage negatively affects healthcare utilization and disease outcomes. The Area Deprivation Index (ADI) is a well-established…”
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Defining Sickle Cell Disease Severity Among Adults Hospitalized with Vaso-Occlusive Crisis
Published in Blood (29-11-2018)“…Background: While there is no uniform definition of sickle cell disease (SCD) severity, vaso-occlusive crises (VOC) are the leading cause of emergency…”
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Pilot study to assess a pharmacist- and medication navigator-led intervention of oral anticancer medication (OAM) adherence
Published in Journal of clinical oncology (20-09-2019)“…Abstract only 58 Background: While advances in OAM make treatment more convenient for patients, OAM must be taken and handled correctly. Studies show gaps in…”
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Pediatric Specialty Care Model for Management of Chronic Respiratory Failure: Cost and Savings Implications and Misalignment With Payment Models
Published in Pediatric critical care medicine (01-05-2018)“…To describe program design, costs, and savings implications of a critical care-based care coordination model for medically complex children with chronic…”
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Perceptions of Role in Treatment Decision Making and Understanding of Late Effects Among Hodgkin Lymphoma Survivors: Results From a National Survey HL Decision Making and Late Effects
Published in Clinical lymphoma, myeloma and leukemia (01-01-2022)“…Hodgkin Lymphoma (HL) survivors are at risk of treatment-related late effects (LEs). With these potential risks and increasing numbers of treatment options for…”
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Contemporary use of inpatient antineoplastic (IP) treatment (Rx): Who is getting care and why?
Published in Journal of clinical oncology (20-05-2019)“…Abstract only e18015 Background: The steady trend towards outpatient antineoplastic medication delivery has been spurred by improvements in supportive care,…”
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Assessment of Health-Related Quality of Life in Adults Hospitalized with Sickle Cell Disease Vaso-Occlusive Crisis
Published in Blood (08-12-2017)“…Background: Sickle cell disease (SCD) is a chronic condition characterized by painful vaso-occlusive (VOC) episodes which lead to poor health-related quality…”
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13
Significant improvement of child physical and emotional functioning after familial haploidentical stem cell transplant
Published in Bone marrow transplantation (Basingstoke) (01-04-2022)“…Allogeneic stem cell transplantation (AlloSCT) represents the only curative therapy for sickle cell disease (SCD). However, limited availability of matched…”
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Patients’ understanding and adherence to oral anti-cancer medication (OAM): Results of an institutional pilot study
Published in Journal of clinical oncology (20-05-2019)“…Abstract only e18280 Background: Advancements in biopharmaceuticals have led to increasing availability and use of OAM. While oral medications allow patients…”
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Health-Related Quality of Life (HRQL) Among Hospitalized Adults with Sickle Cell Disease (SCD): Incorporating Patient-Reported Outcome (PRO) Measures in Clinical Care
Published in Blood (02-12-2016)“…Background: SCD is a chronic disease characterized by painful vaso-occlusive (VOC) episodes and hemolysis which lead to poor HRQL and premature mortality. As…”
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Assessment of patients’ understanding of and adherence to oral anticancer medication (OAM): Results of a cross-sectional institutional pilot study
Published in Journal of oncology pharmacy practice (01-10-2021)“…Background Although oral anticancer medications (OAM) provide opportunity for treatment at home, challenges include prescription filling, monitoring side…”
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Opioid Utilization in Adults Hospitalized with Sickle Cell Pain Crises: An Understudied Population
Published in Blood (29-11-2018)“…Background: Vaso-occlusive crises (VOC), also known as painful crises, are the hallmark of sickle cell disease (SCD) and adults hospitalized with VOC are among…”
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Enhancing patients’ understanding of and adherence to oral anticancer medication: Results of a longitudinal pilot intervention
Published in Journal of oncology pharmacy practice (01-08-2021)“…Background Oral anticancer medications (OAM) make administration more convenient for patients, but shifts the responsibility of care from clinical providers to…”
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Timeliness of Treatment Initiation in Newly Diagnosed Patients With Breast Cancer
Published in Clinical breast cancer (01-02-2020)“…Evidence-based timeliness benchmarks have been established to assess quality of breast cancer care, as delays in treatment are associated with poor clinical…”
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Significantly Improved Long Term Health Related Quality of Life (HRQL) and Neurocognition Following Familial Haploidentical Stem Cell Transplantation (HISCT) Utilizing CD34 Enrichment and Mononuclear (CD3) Addback in High Risk Patients with Sickle Cell Disease (SCD)
Published in Blood (29-11-2018)“…Background SCD is a chronic debilitating disease secondary to frequent veno-occlusive events resulting in chronic organ damage, including cerebral…”
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