Search Results - "Webster, Kimberly A."
-
1
Patient preferences and quality of life implications of ravulizumab (every 8 weeks) and eculizumab (every 2 weeks) for the treatment of paroxysmal nocturnal hemoglobinuria
Published in PloS one (04-09-2020)“…Background Eculizumab has transformed management of paroxysmal nocturnal hemoglobinuria (PNH) since its approval. However, its biweekly dosing regimen remains…”
Get full text
Journal Article -
2
Protocol for a type 2 hybrid effectiveness-implementation study expanding, implementing and evaluating electronic health record-integrated patient-reported symptom monitoring in a multisite cancer centre
Published in BMJ open (03-05-2022)“…IntroductionCancer symptom monitoring and management interventions can address concerns that may otherwise go undertreated. However, such programmes and their…”
Get full text
Journal Article -
3
Content validation of the National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Lymphoma Symptom Index-18 (NFLymSI-18) in indolent B-cell non-Hodgkin’s lymphoma
Published in Journal of patient-reported outcomes (09-07-2024)“…Background The NFLymSI-18 is a patient-reported outcome measure comprised of the highest priority symptoms, emotional concerns, treatment side effects, and…”
Get full text
Journal Article -
4
A mixed methods evaluation of patient perspectives on the implementation of an electronic health record-integrated patient-reported symptom and needs monitoring program in cancer care
Published in Journal of patient-reported outcomes (02-07-2024)“…Background As cancer centers have increased focus on patient-centered, evidenced-based care, implementing efficient programs that facilitate effective…”
Get full text
Journal Article -
5
Risk of significant functional impairment across cancer diagnosis and care continuum
Published in Cancer (19-09-2024)“…The authors examined baseline physical functional (PF) impairment among cancer outpatients in the National Cancer Institute Cancer Moonshot study Northwestern…”
Get full text
Journal Article -
6
Development of the Functional Assessment of Cancer Therapy-Carcinoid Syndrome Symptom Index
Published in Neuroendocrinology (01-08-2021)“…To develop a symptom-focused index to evaluate representative symptoms, treatment side effects, and emotional and functional well-being of patients with…”
Get more information
Journal Article -
7
Tracking dynamic changes in implementation strategies over time within a hybrid type 2 trial of an electronic patient-reported oncology symptom and needs monitoring program
Published in Frontiers in health services (01-11-2022)“…Longitudinal tracking of implementation strategies is critical in accurately reporting when and why they are used, for promoting rigor and reproducibility in…”
Get full text
Journal Article -
8
Validation of brief symptom indexes among patients with recurrent or metastatic squamous cell carcinoma of the head and neck: A trial of the ECOG‐ACRIN Cancer Research Group (E1302)
Published in Cancer medicine (Malden, MA) (01-12-2020)“…Background Patients with advanced head and neck cancer have identified pain, fatigue, and difficulties swallowing, breathing, and communicating as…”
Get full text
Journal Article -
9
Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ © )
Published in Patient preference and adherence (01-01-2020)“…To develop a patient preference questionnaire (PPQ) assessing eculizumab and ravulizumab treatment for paroxysmal nocturnal hemoglobinuria (PNH). The…”
Get full text
Journal Article -
10
Measuring the concerns of cancer patients with low platelet counts: the Functional Assessment of Cancer Therapy--thrombocytopenia (FACT-Th) questionnaire
Published in Supportive care in cancer (01-12-2006)“…The specific concerns of people with low platelet counts (thrombocytopenia) have not been characterized well in the literature and as a result proper…”
Get full text
Journal Article -
11
Patient preferences and quality of life implications of ravulizumab for the treatment of paroxysmal nocturnal hemoglobinuria
Published in PloS one (04-09-2020)“…Background Eculizumab has transformed management of paroxysmal nocturnal hemoglobinuria (PNH) since its approval. However, its biweekly dosing regimen remains…”
Get full text
Journal Article -
12
Patient preferences and quality of life implications of ravulizumab
Published in PloS one (04-09-2020)“…Background Eculizumab has transformed management of paroxysmal nocturnal hemoglobinuria (PNH) since its approval. However, its biweekly dosing regimen remains…”
Get full text
Journal Article -
13
Measuring Health-Related Quality of Life in Leukemia: The Functional Assessment of Cancer Therapy – Leukemia (FACT-Leu) Questionnaire
Published in Value in health (01-12-2012)“…ABSTRACT Objective Develop and validate a health-related quality-of-life (measure for patients with acute and chronic leukemia. Methods The study consisted of…”
Get full text
Journal Article -
14
Symptom and needs assessment screening in oncology patients: Alternate outreach methods during COVID-19
Published in Journal of psychosocial oncology (2021)“…Patients with cancer are ideally screened for symptoms, including distress, using patient-reported outcome measures (PROMs). This initiative was developed to…”
Get full text
Journal Article -
15
Missing data in quality of life research in Eastern Cooperative Oncology Group (ECOG) clinical trials: problems and solutions
Published in Statistics in medicine (15-03-1998)“…Incorporation of quality of life (QOL) investigation into Eastern Cooperative Oncology Group (ECOG) multi‐centre clinical trials has led to innovative…”
Get full text
Journal Article Conference Proceeding -
16
Rehabilitation Needs of Patients with Oropharyngeal Cancer
Published in Otolaryngologic clinics of North America (01-08-2012)“…Swallowing and swallowing-related impairments present important posttreatment challenges in individuals undergoing organ preservation therapy for head and neck…”
Get full text
Journal Article -
17
Effects of Laryngeal Cancer on Voice and Swallowing
Published in Otolaryngologic clinics of North America (01-08-2008)“…Specific deficits that may be encountered as well as interventional strategies and evidence-based practice are discussed. When discussing the voice, it is…”
Get full text
Journal Article