Search Results - "Villanueva, Angela G."

Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons by Deverka, Patricia A., Gilmore, Dierdre, Richmond, Jennifer, Smith, Zachary, Mangrum, Rikki, Koenig, Barbara A., Cook-Deegan, Robert, Villanueva, Angela G., Majumder, Mary A., McGuire, Amy L.

“…A medical information commons (MIC) is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we…”
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Hashtag who’s missing? Lessons for genomic databases by Villanueva, Angela G., Majumder, Mary A.

“…Genomic databases support research intended to advance understanding, diagnosis, and treatment of disease. Utility is linked to diversity, and initiatives are…”
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Characterizing the Biomedical Data-Sharing Landscape by Villanueva, Angela G., Cook-Deegan, Robert, Koenig, Barbara A., Deverka, Patricia A., Versalovic, Erika, McGuire, Amy L., Majumder, Mary A.

“…Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a…”
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Genomic Data-Sharing Practices by Villanueva, Angela G., Cook-Deegan, Robert, Robinson, Jill O., McGuire, Amy L., Majumder, Mary A.

“…Making data broadly accessible is essential to creating a medical information commons (MIC). Transparency about data-sharing practices can cultivate trust…”
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What is a Medical Information Commons? by Bollinger, Juli M., Zuk, Peter D., Majumder, Mary A., Versalovic, Erika, Villanueva, Angela G., Hsu, Rebecca L., McGuire, Amy L., Cook-Deegan, Robert

“…A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical…”
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The Role of Participants in a Medical Information Commons by Majumder, Mary A., Bollinger, Juli M., Villanueva, Angela G., Deverka, Patricia A., Koenig, Barbara A.

“…Meaningful participant engagement has been identified as a key contributor to the success of efforts to share data via a “Medical Information Commons” (MIC)…”
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Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons by McGuire, Amy L., Majumder, Mary A., Villanueva, Angela G., Bardill, Jessica, Bollinger, Juli M., Boerwinkle, Eric, Bubela, Tania, Deverka, Patricia A., Evans, Barbara J., Garrison, Nanibaa' A., Glazer, David, Goldstein, Melissa M., Greely, Henry T., Kahn, Scott D., Knoppers, Bartha M., Koenig, Barbara A., Lambright, J. Mark, Mattison, John E., O'Donnell, Christopher, Rai, Arti K., Rodriguez, Laura L., Simoncelli, Tania, Terry, Sharon F., Thorogood, Adrian M., Watson, Michael S., Wilbanks, John T., Cook-Deegan, Robert

“…Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community…”
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Creating a data resource: what will it take to build a medical information commons? by Deverka, Patricia A, Majumder, Mary A, Villanueva, Angela G, Anderson, Margaret, Bakker, Annette C, Bardill, Jessica, Boerwinkle, Eric, Bubela, Tania, Evans, Barbara J, Garrison, Nanibaa' A, Gibbs, Richard A, Gentleman, Robert, Glazer, David, Goldstein, Melissa M, Greely, Hank, Harris, Crane, Knoppers, Bartha M, Koenig, Barbara A, Kohane, Isaac S, La Rosa, Salvatore, Mattison, John, O'Donnell, Christopher J, Rai, Arti K, Rehm, Heidi L, Rodriguez, Laura L, Shelton, Robert, Simoncelli, Tania, Terry, Sharon F, Watson, Michael S, Wilbanks, John, Cook-Deegan, Robert, McGuire, Amy L

“…National and international public-private partnerships, consortia, and government initiatives are underway to collect and share genomic, personal, and…”
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