Search Results - "Vernon, Margaret K"

The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression by Lumry, William R, Castaldo, Anthony J, Vernon, Margaret K, Blaustein, Marc B, Wilson, David A, Horn, Patrick T

“…Hereditary angioedema (HAE) is a rare, autosomal dominant disorder characterized by recurrent acute attacks of swelling of the larynx, abdomen, and periphery…”
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Validation of the shortened Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale (HS-FOCUS) by Mattera, Maria, Vernon, Margaret K, Raluy-Callado, Mireia, Mikl, Jaromir

“…The rare disease, Hunter Syndrome (mucopolysaccharidosis type II; MPS II), characterized by iduronate-2-sulfatase deficiency, has heterogeneous symptoms often…”
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Psychometric validation and meaningful change thresholds of the Worst Itching Intensity Numerical Rating Scale for assessing itch in patients with chronic kidney disease-associated pruritus by Vernon, Margaret K., Swett, Laura L., Speck, Rebecca M., Munera, Catherine, Spencer, Robert H., Wen, Warren, Menzaghi, Frédérique

“…Background Chronic kidney disease-associated pruritus (CKD-aP) is characterized by persistent itch that often leads to substantially impaired quality of life…”
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The Burden of Pruritus Associated With CKD: A Mixed Methods Analysis Among Patients Undergoing Dialysis by Menzaghi, Frédérique, Vernon, Margaret K., Mattera, Maria, Cirulli, Joshua, Wen, Warren, Spencer, Robert H., Munera, Catherine

“…Despite its prevalence and distress to patients, chronic kidney disease-associated pruritus (CKD-aP) is poorly characterized, which may contribute to the…”
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Measurement of non-restorative sleep in insomnia: A review of the literature by Vernon, Margaret K, Dugar, Ashish, Revicki, Dennis, Treglia, Michael, Buysse, Daniel

“…Summary Objective Non-restorative sleep (NRS) is a core symptom of insomnia, typically defined as a subjective feeling of being unrefreshed upon awakening. NRS…”
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Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials: An ISPOR COA Emerging Good Practices Task Force Report by Benjamin, Katy, Vernon, Margaret K., Patrick, Donald L., Perfetto, Eleanor, Nestler-Parr, Sandra, Burke, Laurie

“…Rare diseases (RDs) affect a small number of people within a population. About 5000 to 8000 distinct RDs have been identified, with an estimated 6% to 8% of…”
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Reliability, Validity, and Responsiveness of the Daily Sleep Interference Scale Among Diabetic Peripheral Neuropathy and Postherpetic Neuralgia Patients by Vernon, Margaret K., PhD, Brandenburg, Nancy A., PhD, Alvir, Jose Ma. J., DrPH, Griesing, Teresa, PhD, Revicki, Dennis A., PhD

“…Abstract To evaluate the psychometric characteristics of the Daily Sleep Interference Scale (DSIS) in patients with painful diabetic peripheral neuropathy…”
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Psychometric evaluation of the 10-item Short Opiate Withdrawal Scale-Gossop (SOWS-Gossop) in patients undergoing opioid detoxification by Vernon, Margaret K, Reinders, Stefan, Mannix, Sally, Gullo, Kristen, Gorodetzky, Charles W, Clinch, Thomas

“…Abstract Introduction The Short Opiate Withdrawal Scale (SOWS)-Gossop is a 10-item questionnaire developed to evaluate opioid withdrawal symptom severity. The…”
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Defining Minimal Clinically Important Differences (MCID) on the Leicester Cough Questionnaire (LCQ): Analyses of a Phase 2 Randomized Controlled Trial in Chronic Cough by Birring, Surinder, Muccino, David, Bacci, Elizabeth D., Vernon, Margaret K., Nguyen, Allison M.

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What Do We Know about Asthma Triggers? A Review of the Literature by Vernon, Margaret K., Wiklund, Ingela, Bell, Jill A., Dale, Peter, Chapman, Kenneth R.

“…Objective. For patients with asthma, exacerbations and poor control can result from exposure to environmental triggers, such as allergens and air particulates…”
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Defining Minimal Clinically Important Differences (MCID) in Chronic Cough: Analyses of Objective Cough Counts from a Phase 2 Randomized Controlled Trial by Nguyen, Allison M., Muccino, David, Birring, Surinder, Bacci, Elizabeth D., Vernon, Margaret K., Mines, Daniel, Smith, Jaclyn A.

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Psychometric evaluation of the Medication Satisfaction Questionnaire (MSQ) to assess satisfaction with antipsychotic medication among schizophrenia patients by Vernon, Margaret K, Revicki, Dennis A, Awad, A. George, Dirani, Riad, Panish, Jessica, Canuso, Carla M, Grinspan, Augusto, Mannix, Sally, Kalali, Amir H

“…Abstract The Medication Satisfaction Questionnaire (MSQ) is a single-item questionnaire which evaluates satisfaction with antipsychotic medication in…”
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Psychometric Validation of Two Patient-Reported Outcome Measures to Assess Symptom Severity and Changes in Symptoms in Hereditary Angioedema by Vernon, Margaret K., Rentz, Anne M., Wyrwich, Kathleen W., White, Martha V., Grienenberger, Aurelie

“…Purpose Hereditary angioedema (HAE) is a rare disorder characterized by highly variable, acute attacks of swelling at various anatomical locations. Clinical…”
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Content Validity of the Hypogonadism Impact of Symptoms Questionnaire (HIS-Q): A Patient-Reported Outcome Measure to Evaluate Symptoms of Hypogonadism by Gelhorn, Heather L., Vernon, Margaret K., Stewart, Katie D., Miller, Michael G., Brod, Meryl, Althof, Stanley E., DeRogatis, Leonard R., Dobs, Adrian, Seftel, Allen D., Revicki, Dennis A.

“…Background Hypogonadism, or low testosterone, is a common disorder. There are currently no patient-reported outcome (PRO) instruments designed to…”
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Use of latent growth curve models for assessing the effects of darbepoetin alfa on hemoglobin and fatigue by Stull, Donald E, Vernon, Margaret K, Legg, Jason C, Viswanathan, Hema N, Fairclough, Diane, Revicki, Dennis A

“…Abstract Background: The relationship between darbepoetin alfa and fatigue in chemotherapy-induced anemia (CIA) patients is complex because of patients…”
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Using the congestion quantifier seven-item test to assess change in patient symptoms and their impact by Stull, Donald E, Vernon, Margaret K, Canonica, G Walter, Crespi, Simone, Sandor, David

“…Generally, nasal congestion is reported to be the most troublesome symptom of allergic rhinitis and has been shown to have negative effects on sleep,…”
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Relations Between Social Self-Perceptions, Time Use, and Prosocial or Problem Behaviors During Adolescence by Jacobs, Janis E., Vernon, Margaret K., Eccles, Jacquelynne S.

“…This study investigated the relations between social self-perceptions, time use, and later involvement in prosocial or problem behaviors during early, middle,…”
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Validation of the shortened "Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale" (HS-FOCUS) questionnaire by Mattera, Maria, Vernon, Margaret K, Raluy-Callado, Mireia, Mikl, Jaromir

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Superior Restoration of Health with Siltuximab Among Multicentric Castleman’s Disease Patients When Measured By SF-36 by van Rhee, Frits, Casper, Corey, Vernon, Margaret K, Trundell, Dylan, Robinson, Don, He, Jianming, Vermeulen, Jessica, van de Velde, Helgi, Wong, Raymond S

“…INTRODUCTION Siltuximab (SylvantTM), a monoclonal antibody against interleukin-6, was recently approved in both US and EU for treatment of adult patients with…”
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Time Use as a Way of Examining Contexts of Adolescent Development in the United States by Vernon, Margaret K.

“…Participation in structured extracurricular activities such as sports, arts, school clubs, and volunteering is associated with higher academic achievement,…”
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