Search Results - "Verkerk, Marian A."

Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature by Otten, Ellen, Plantinga, Mirjam, Birnie, Erwin, Verkerk, Marian A., Lucassen, Anneke M., Ranchor, Adelita V., Van Langen, Irene M.

“…Purpose: With rapid advances in genetic technologies, new genetic information becomes available much faster today than just a few years ago. This has raised…”
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Population-based preconception carrier screening: how potential users from the general population view a test for 50 serious diseases by Plantinga, Mirjam, Birnie, Erwin, Abbott, Kristin M, Sinke, Richard J, Lucassen, Anneke M, Schuurmans, Juliette, Kaplan, Seyma, Verkerk, Marian A, Ranchor, Adelita V, van Langen, Irene M

“…With the increased international focus on personalized health care and preventive medicine, next-generation sequencing (NGS) has substantially expanded the…”
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Expanded carrier screening for autosomal recessive conditions in health care: Arguments for a couple‐based approach and examination of couples' views by Plantinga, Mirjam, Birnie, Erwin, Schuurmans, Juliette, Buitenhuis, Anne H., Boersma, Elise, Lucassen, Anneke M., Verkerk, Marian A., Langen, Irene M., Ranchor, Adelita V.

“…Background Expanded carrier screening (ECS) is aimed at detecting carrier states for autosomal recessive (AR) or X‐linked conditions in couples from the…”
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Expanded carrier screening: what determines intended participation and can this be influenced by message framing and narrative information? by Voorwinden, Jan S, Buitenhuis, Anne H, Birnie, Erwin, Lucassen, Anneke M, Verkerk, Marian A, van Langen, Irene M, Plantinga, Mirjam, Ranchor, Adelita V

“…Next-generation sequencing enabled us to create a population-based expanded carrier screening (ECS) test that simultaneously tests for 50 serious autosomal…”
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Maximising the efficiency of clinical screening programmes: balancing predictive genetic testing with a right not to know by Schuurman, Agnes G, van der Kolk, Dorina M, Verkerk, Marian A, Birnie, Erwin, Ranchor, Adelita V, Plantinga, Mirjam, van Langen, Irene M

“…We explored the dilemma between patients' right not to know their genetic status and the efficient use of health-care resources in the form of clinical cancer…”
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Theoretical resources for a globalised bioethics by Verkerk, Marian A, Lindemann, Hilde

“…In an age of global capitalism, pandemics, far-flung biobanks, multinational drug trials and telemedicine it is impossible for bioethicists to ignore the…”
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Parental experience at the end-of-life in children with cancer: ‘preservation’ and ‘letting go’ in relation to loss by Kars, Marijke C., Grypdonck, Mieke H. F., de Korte-Verhoef, Maria C., Kamps, Willem A., Meijer-van den Bergh, Esther M. M., Verkerk, Marian A., van Delden, Johannes J. M.

“…Purpose For children with incurable cancer death usually is anticipated and preceded by a phase of palliative care. Despite recognition that parents have…”
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Ethical aspects of soft tissue engineering for congenital birth defects in children--what do experts in the field say? by Oerlemans, Anke J M, Rodrigues, Catarina H C M L, Verkerk, Marian A, van den Berg, Paul P, Dekkers, Wim J M

“…This article is part of the EuroSTEC project, which aims at developing tissue engineering-based treatments for structural disorders present at birth. EuroSTEC…”
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Two Women with Multiple Sclerosis and Their Caregivers: conflicting normative expectations by Abma, Tineke A, Oeseburg, Barth, Widdershoven, Guy AM, Goldsteen, Minke, Verkerk, Marian A

“…It is not uncommon that nurses are unable to meet the normative expectations of chronically ill patients. The purpose of this article is to describe and…”
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Theoretical resources for a globalised bioethics: Table 1 by Verkerk, Marian A, Lindemann, Hilde

“…In an age of global capitalism, pandemics, far-flung biobanks, multinational drug trials and telemedicine it is impossible for bioethicists to ignore the…”
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The care perspective and autonomy by Verkerk, M A

“…In this article I wish to show how care ethics puts forward a fundamental critique on the ideal of independency in human life without thereby discounting…”
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