Search Results - "Van Rossum, Marion"

Anakinra as first‐line disease‐modifying therapy in systemic juvenile idiopathic arthritis: Report of forty‐six patients from an international multicenter series by Nigrovic, Peter A., Mannion, Melissa, Prince, Femke H. M., Zeft, Andrew, Rabinovich, C. Egla, van Rossum, Marion A. J., Cortis, Elisabetta, Pardeo, Manuela, Miettunen, Paivi M., Janow, Ginger, Birmingham, James, Eggebeen, Aaron, Janssen, Erin, Shulman, Andrew I., Son, Mary Beth, Hong, Sandy, Jones, Karla, Ilowite, Norman T., Cron, Randy Q., Higgins, Gloria C.

“…Objective To examine the safety and efficacy of the interleukin‐1 (IL‐1) receptor antagonist anakinra as first‐line therapy for systemic juvenile idiopathic…”
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Pediatric joint hypermobility: a diagnostic framework and narrative review by Tofts, Louise Jane, Simmonds, Jane, Schwartz, Sarah B, Richheimer, Roberto M, O'Connor, Constance, Elias, Ellen, Engelbert, Raoul, Cleary, Katie, Tinkle, Brad T, Kline, Antonie D, Hakim, Alan J, van Rossum, Marion A J, Pacey, Verity

“…Hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) are debilitating conditions. Diagnosis is currently clinical in the…”
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Effectiveness of a web-based application to monitor health-related quality of life by Haverman, Lotte, van Rossum, Marion A J, van Veenendaal, Mira, van den Berg, J Merlijn, Dolman, Koert M, Swart, Joost, Kuijpers, Taco W, Grootenhuis, Martha A

“…Monitoring health-related quality of life (HRQoL) by using electronic patient-reported outcomes (ePROs) has been only minimally evaluated in pediatrics…”
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MRP8/14 serum levels as a predictor of response to starting and stopping anti-TNF treatment in juvenile idiopathic arthritis by Anink, Janneke, Van Suijlekom-Smit, Lisette W A, Otten, Marieke H, Prince, Femke H M, van Rossum, Marion A J, Dolman, Koert M, Hoppenreijs, Esther P A H, ten Cate, Rebecca, Ursu, Simona, Wedderburn, Lucy R, Horneff, Gerd, Frosch, Michael, Vogl, Thomas, Gohar, Faekah, Foell, Dirk, Roth, Johannes, Holzinger, Dirk

“…Approximately 30% of juvenile idiopathic arthritis (JIA) patients fail to respond to anti-TNF treatment. When clinical remission is induced, some patients…”
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Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version by Limperg, Perrine F, Haverman, Lotte, van Oers, Hedy A, van Rossum, Marion A J, Maurice-Stam, Heleen, Grootenhuis, Martha A

“…The purpose of this study is to provide Dutch norm data and to assess internal consistency and construct validity for the Pediatric Quality of Life Inventory…”
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Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application by Haverman, Lotte, Engelen, Vivian, van Rossum, Marion A J, Heymans, Hugo S A, Grootenhuis, Martha A

“…Health Related Quality of Life (HRQOL) questionnaires are increasingly used in clinical practice. These Patient Reported Outcomes (PROs) are provided to the…”
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Psychometric Properties of the Pediatric Patient‐Reported Outcomes Measurement Information System Item Banks in a Dutch Clinical Sample of Children With Juvenile Idiopathic Arthritis by Luijten, Michiel A. J., Terwee, Caroline B., Oers, Hedy A., Joosten, Mala M. H., Berg, J. Merlijn, Schonenberg‐Meinema, Dieneke, Dolman, Koert M., ten Cate, Rebecca, Roorda, Leo D., Grootenhuis, Martha A., Rossum, Marion A. J., Haverman, Lotte

“…Objective To assess the psychometric properties of 8 pediatric Patient‐Reported Outcomes Measurement Information System (PROMIS) item banks in a clinical…”
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Reliability and responsiveness of the Juvenile Arthritis MRI Scoring (JAMRIS) system for the knee by Hemke, Robert, van Rossum, Marion A. J., van Veenendaal, Mira, Terra, Maaike P., Deurloo, Eline E., de Jonge, Milko C., van den Berg, J. Merlijn, Dolman, Koert M., Kuijpers, Taco W., Maas, Mario

“…Objectives To assess the reliability and responsiveness of a new Juvenile Arthritis MRI Scoring (JAMRIS) system for evaluating disease activity of the knee…”
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Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop by Morgan, Esi M, Munro, Jane E, Horonjeff, Jennifer, Horgan, Ben, Shea, Beverley, Feldman, Brian M, Clairman, Hayyah, Bingham, 3rd, Clifton O, Thornhill, Susan, Strand, Vibeke, Alongi, Alessandra, Magni-Manzoni, Silvia, van Rossum, Marion A J, Vesely, Richard, Vojinovic, Jelena, Brunner, Hermine I, Harris, Julia G, Horton, Daniel B, Lovell, Daniel J, Mannion, Melissa, Rahimi, Homaira, Ravelli, Angelo, Ringold, Sarah, Ruperto, Nicolino, Schrandt, M Suzanne, Shenoi, Susan, Shiff, Natalie J, Toupin-April, Karine, Tzaribachev, Nikolay, Weiss, Pamela, Consolaro, Alessandro

“…The current Juvenile Idiopathic Arthritis (JIA) Core Set used in randomized controlled trials (RCT) and longitudinal observational studies (LOS) was developed…”
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Improving domain definition and outcome instrument selection: Lessons learned for OMERACT from imaging by D'Agostino, Maria Antonietta, Beaton, Dorcas E, Maxwell, Lara J, Cembalo, Sam Michel, Hoens, Alison Maria, Hofstetter, Catherine, Zabalan, Codruta, Bird, Paul, Christensen, Robin, de Wit, Maarten, Doria, Andrea S, Maksymowych, Walter P, Oo, Win Min, Østergaard, Mikkel, Serban, Teodora, Sloan, Victor S, Terslev, Lene, van Rossum, Marion A, Conaghan, Philip G, Boers, Maarten

“…•Clear definition of the domain we want to measure is a necessary prerequisite to the selection of a good instrument.•Measurement instruments, whatever the…”
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The diagnostic accuracy of unenhanced MRI in the assessment of joint abnormalities in juvenile idiopathic arthritis by Hemke, Robert, Kuijpers, Taco W., van den Berg, J. Merlijn, van Veenendaal, Mira, Dolman, Koert M., van Rossum, Marion A. J., Maas, Mario

“…Objectives To assess the diagnostic accuracy and reliability of MRI without contrast enhancement in the evaluation of JIA knee joint abnormalities. Methods JIA…”
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Magnetic Resonance Imaging (MRI) of the Knee as an Outcome Measure in Juvenile Idiopathic Arthritis: An OMERACT Reliability Study on MRI Scales by Hemke, Robert, Tzaribachev, Nikolay, Nusman, Charlotte M, van Rossum, Marion A J, Maas, Mario, Doria, Andrea S

“…There is increasing evidence that early therapeutic intervention improves longterm joint outcome in juvenile idiopathic arthritis (JIA). Given the existence of…”
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Identification of an Amino Acid Motif in HLA–DRβ1 That Distinguishes Uveitis in Patients With Juvenile Idiopathic Arthritis by Haasnoot, Anne‐Mieke J. W., Schilham, Marco W., Kamphuis, Sylvia, Hissink Muller, Petra C. E., Heiligenhaus, Arnd, Foell, Dirk, Minden, Kirsten, Ophoff, Roel A., Radstake, Timothy R. D. J., Den Hollander, Anneke I., Reinards, Tjitske H. C. M., Hiddingh, Sanne, Schalij‐Delfos, Nicoline E., Hoppenreijs, Esther P. A. H., Rossum, Marion A. J., Wouters, Carine, Saurenmann, Rotraud K., Berg, J. Merlijn, Wulffraat, Nico M., Cate, Rebecca, Boer, Joke H., Pulit, Sara L., Kuiper, Jonas J. W., Kallinich, Tilmann, Thon, Angelika, Kümmerle‐Deschner, Jasmin, Huppertz, Hans‐Iko, Horneff, Gerd, Hospach, Anton, Mönkemöller, Kirsten, Haas, Johannes‐Peter, Ganser, Gerd, Foeldvari, Ivan, Klotsche, Jens

“…Objective Uveitis is a visually debilitating disorder that affects up to 30% of children with the most common forms of juvenile idiopathic arthritis (JIA). The…”
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Current Status of Efforts on Standardizing Magnetic Resonance Imaging of Juvenile Idiopathic Arthritis: Report from the OMERACT MRI in JIA Working Group and Health-e-Child by Nusman, Charlotte M, Ording Muller, Lil-Sofie, Hemke, Robert, Doria, Andrea S, Avenarius, Derk, Tzaribachev, Nikolay, Malattia, Clara, van Rossum, Marion A J, Maas, Mario, Rosendahl, Karen

“…To report on the progress of an ongoing research collaboration on magnetic resonance imaging (MRI) in juvenile idiopathic arthritis (JIA) and describe the…”
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Factors Associated With Treatment Response to Etanercept in Juvenile Idiopathic Arthritis by Otten, Marieke H, Prince, Femke H. M, Armbrust, Wineke, ten Cate, Rebecca, Hoppenreijs, Esther P. A. H, Twilt, Marinka, Koopman-Keemink, Yvonne, Gorter, Simone L, Dolman, Koert M, Swart, Joost F, van den Berg, J. Merlijn, Wulffraat, Nico M, van Rossum, Marion A. J, van Suijlekom-Smit, Lisette W. A

“…CONTEXT Since the introduction of biologic therapies, the pharmacological treatment approach for juvenile idiopathic arthritis (JIA) has changed substantially,…”
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Increasing the etanercept dose in a treat-to-target approach in juvenile idiopathic arthritis: does it help to reach the target? A post-hoc analysis of the BeSt for Kids randomised clinical trial by van Dijk, Bastiaan T, Bergstra, Sytske Anne, van den Berg, J Merlijn, Schonenberg-Meinema, Dieneke, van Suijlekom-Smit, Lisette W A, van Rossum, Marion A J, Koopman-Keemink, Yvonne, Ten Cate, Rebecca, Allaart, Cornelia F, Brinkman, Daniëlle M C, Hissink Muller, Petra C E

“…Etanercept has been studied in doses up to 0.8 mg/kg/week (max 50 mg/week) in juvenile idiopathic arthritis (JIA) patients. In clinical practice higher doses…”
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Contrast-enhanced MRI of the knee in children unaffected by clinical arthritis compared to clinically active juvenile idiopathic arthritis patients by Nusman, Charlotte M., Hemke, Robert, Benninga, Marc A., Schonenberg-Meinema, Dieneke, Kindermann, Angelika, van Rossum, Marion A. J., van den Berg, J. Merlijn, Maas, Mario, Kuijpers, Taco W.

“…Objectives To evaluate enhancing synovial thickness upon contrast-enhanced magnetic resonance imaging (MRI) of the knee in children unaffected by clinical…”
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Contrast-enhanced MRI compared with the physical examination in the evaluation of disease activity in juvenile idiopathic arthritis by Hemke, Robert, Maas, Mario, van Veenendaal, Mira, Dolman, Koert M., van Rossum, Marion A. J., van den Berg, J. Merlijn, Kuijpers, Taco W.

“…Objectives To assess the value of magnetic resonance imaging (MRI) in discriminating between active and inactive juvenile idiopathic arthritis (JIA) patients…”
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Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders by Koning, Lisanne E., Warnink‐Kavelaars, Jessica, Rossum, Marion A., Bosman, Diederik, Menke, Leonie A., Malfait, Fransiska, Boer, Rosa, Oosterlaan, Jaap, Engelbert, Raoul H. H., Rombaut, Lies

“…The aim of the present study was to investigate the nature and prevalence of nonspecific somatic symptoms, pain and catastrophizing in children with Heritable…”
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Significant pain decrease in children with non-systemic Juvenile Idiopathic Arthritis treated to target: results over 24 months of follow up by Spekking, Katinka, Anink, Janneke, de Boer, Piroska, Bergstra, Sytske Anne, van den Berg, J. Merlijn, Schonenberg-Meinema, Dieneke, van Suijlekom-Smit, Lisette W. A, van Rossum, Marion A. J, Koopman-Keemink, Yvonne, Cate, Rebecca ten, Allaart, Cornelia F, Brinkman, Daniëlle M. C, Muller, Petra C. E. Hissink

“…Abstract Background The aim of this study was to compare pain-scores in three targeted treatment-strategies in JIA-patients and to identify characteristics…”
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