Search Results - "Van Enckevort, Esther"

BBMRI-ERIC's contributions to research and knowledge exchange on COVID-19 by Holub, Petr, Kozera, Lukasz, Florindi, Francesco, van Enckevort, Esther, Swertz, Morris, Reihs, Robert, Wutte, Andrea, Valík, Dalibor, Mayrhofer, Michaela Th

“…During the COVID-19 pandemic, the European biobanking infrastructure is in a unique position to preserve valuable biological material complemented with…”
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Semi-automatic translation of medicine usage data (in Dutch, free-text) from Lifelines COVID-19 questionnaires to ATC codes by Kellmann, Alexander J, Lanting, Pauline, Franke, Lude, van Enckevort, Esther J, Swertz, Morris A

“…Abstract The mapping of human-entered data to codified data formats that can be analysed is a common problem across medical research and health care. To…”
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The EU Child Cohort Network’s core data: establishing a set of findable, accessible, interoperable and re-usable (FAIR) variables by Pinot de Moira, Angela, Haakma, Sido, Strandberg-Larsen, Katrine, van Enckevort, Esther, Kooijman, Marjolein, Cadman, Tim, Cardol, Marloes, Corpeleijn, Eva, Crozier, Sarah, Duijts, Liesbeth, Elhakeem, Ahmed, Eriksson, Johan G., Felix, Janine F., Fernández-Barrés, Sílvia, Foong, Rachel E., Forhan, Anne, Grote, Veit, Guerlich, Kathrin, Heude, Barbara, Huang, Rae-Chi, Järvelin, Marjo-Riitta, Jørgensen, Anne Cathrine, Mikkola, Tuija M., Nader, Johanna L. T., Pedersen, Marie, Popovic, Maja, Rautio, Nina, Richiardi, Lorenzo, Ronkainen, Justiina, Roumeliotaki, Theano, Salika, Theodosia, Sebert, Sylvain, Vinther, Johan L., Voerman, Ellis, Vrijheid, Martine, Wright, John, Yang, Tiffany C., Zariouh, Faryal, Charles, Marie-Aline, Inskip, Hazel, Jaddoe, Vincent W. V., Swertz, Morris A., Nybo Andersen, Anne-Marie

“…The Horizon2020 LifeCycle Project is a cross-cohort collaboration which brings together data from multiple birth cohorts from across Europe and Australia to…”
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Visualization and exploration of linked data using virtual reality by Kellmann, Alexander J, Postema, Max, de Keijser, Joris, Svetachov, Pjotr, Wilson, Rebecca C, van Enckevort, Esther J, Swertz, Morris A

“…In this report, we analyse the use of virtual reality (VR) as a method to navigate and explore complex knowledge graphs. Over the past few decades, linked data…”
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The de novo FAIRification process of a registry for vascular anomalies by Groenen, Karlijn H J, Jacobsen, Annika, Kersloot, Martijn G, Dos Santos Vieira, Bruna, van Enckevort, Esther, Kaliyaperumal, Rajaram, Arts, Derk L, 't Hoen, Peter A C, Cornet, Ronald, Roos, Marco, Kool, Leo Schultze

“…Patient data registries that are FAIR-Findable, Accessible, Interoperable, and Reusable for humans and computers-facilitate research across multiple resources…”
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Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events by Eklund, Niina, Andrianarisoa, Ny Haingo, van Enckevort, Esther, Anton, Gabriele, Debucquoy, Annelies, Müller, Heimo, Zaharenko, Linda, Engels, Cäcilia, Ebert, Lars, Neumann, Michael, Geeraert, Joachim, T'Joen, Veronique, Demski, Hans, Caboux, Élodie, Proynova, Rumyana, Parodi, Barbara, Mate, Sebastian, van Iperen, Erik, Merino-Martinez, Roxana, Quinlan, Philip R, Holub, Petr, Silander, Kaisa

“…The Minimum Information About BIobank data Sharing (MIABIS) was initiated in 2012. MIABIS aims to create a common biobank terminology to facilitate data…”
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Getting your DUCs in a row - standardising the representation of Digital Use Conditions by Jeanson, Francis, Gibson, Spencer J., Alper, Pinar, Bernier, Alexander, Woolley, J. Patrick, Mietchen, Daniel, Strug, Andrzej, Becker, Regina, Kamerling, Pim, Sanchez Gonzalez, Maria del Carmen, Mah, Nancy, Novakowski, Ann, Wilkinson, Mark D., Benhamed, Oussama Mohammed, Landi, Annalisa, Krog, Georg Philip, Müller, Heimo, Riaz, Umar, Veal, Colin, Holub, Petr, van Enckevort, Esther, Brookes, Anthony J.

“…Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical…”
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Common conditions of use elements. Atomic concepts for consistent and effective information governance by Sanchez Gonzalez, Maria del Carmen, Kamerling, Pim, Iermito, Mariapia, Casati, Sara, Riaz, Umar, Veal, Colin D., Maini, Monika, Jeanson, Francis, Benhamed, Oussama Mohammed, van Enckevort, Esther, Landi, Annalisa, Mimouni, Yanis, Le Cornec, Clèmence, Coviello, Domenico A., Franchin, Tiziana, Fusco, Francesca, Ramírez García, Jose Antonio, van der Zanden, Loes F. M., Bernier, Alexander, Wilkinson, Mark D., Mueller, Heimo, Gibson, Spencer J., Brookes, Anthony J.

“…Myriad policy, ethical and legal considerations underpin the sharing of biological resources, implying the need for standardised and yet flexible ways to…”
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Life course of retrospective harmonization initiatives: key elements to consider by Fortier, Isabel, Wey, Tina W, Bergeron, Julie, Pinot de Moira, Angela, Nybo-Andersen, Anne-Marie, Bishop, Tom, Murtagh, Madeleine J, Miočević, Milica, Swertz, Morris A, van Enckevort, Esther, Marcon, Yannick, Mayrhofer, Michaela Th, Ornelas, Jos Pedro, Sebert, Sylvain, Santos, Ana Cristina, Rocha, Artur, Wilson, Rebecca C, Griffith, Lauren E, Burton, Paul

“…Optimizing research on the developmental origins of health and disease (DOHaD) involves implementing initiatives maximizing the use of the available cohort…”
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FAIR Genomes metadata schema promoting Next Generation Sequencing data reuse in Dutch healthcare and research by van der Velde, K. Joeri, Singh, Gurnoor, Kaliyaperumal, Rajaram, Liao, XiaoFeng, de Ridder, Sander, Rebers, Susanne, Kerstens, Hindrik H. D., de Andrade, Fernanda, van Reeuwijk, Jeroen, De Gruyter, Fini E., Hiltemann, Saskia, Ligtvoet, Maarten, Weiss, Marjan M., van Deutekom, Hanneke W. M., Jansen, Anne M. L., Stubbs, Andrew P., Vissers, Lisenka E. L. M., Laros, Jeroen F. J., van Enckevort, Esther, Stemkens, Daphne, ‘t Hoen, Peter A. C., Beliën, Jeroen A. M., van Gijn, Mariëlle E., Swertz, Morris A.

“…The genomes of thousands of individuals are profiled within Dutch healthcare and research each year. However, this valuable genomic data, associated clinical…”
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Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution by Bernabé, César H., Thielemans, Lieze, Kaliyaperumal, Rajaram, Carta, Claudio, Zhang, Shuxin, van Gelder, Celia W.G., Benis, Nirupama, da Silva Santos, Luiz Olavo Bonino, Cornet, Ronald, dos Santos Vieira, Bruna, Lalout, Nawel, Henriques, Ines, Ballesteros, Alberto Cámara, Burger, Kees, Kersloot, Martijn G., Ehrhart, Friederike, van Enckevort, Esther, Evelo, Chris T., Gray, Alasdair J. G., Hanauer, Marc, Hettne, Kristina, de Ligt, Joep, Pereira, Arnaldo, Queralt-Rosinach, Núria, Schultes, Erik, Taruscio, Domenica, Waagmeester, Andra, Wilkinson, Mark D., Willighagen, Egon L., Jansen, Mascha, Mons, Barend, Roos, Marco, Jacobsen, Annika

“…Since 2014, “Bring Your Own Data” workshops (BYODs) have been organised to inform people about the process and benefits of making resources Findable,…”
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Update of the Minimum Information About BIobank Data Sharing (MIABIS) Core Terminology to the 3 rd Version by Eklund, Niina, Engels, Cäcilia, Neumann, Michael, Strug, Andrzej, van Enckevort, Esther, Baber, Ronny, Bloemers, Margreet, Debucquoy, Annelies, van der Lugt, Aad, Müller, Heimo, Parkkonen, Lauri, Quinlan, Philip R, Urwin, Esmond, Holub, Petr, Silander, Kaisa, Anton, Gabriele

“…The Minimum Information About BIobank Data Sharing (MIABIS) is a biobank-specific terminology enabling the sharing of biobank-related data for different…”
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Visually guided inspiration breath-hold facilitated with nasal high flow therapy in locally advanced lung cancer by Peeters, Stephanie T H, Vaassen, Femke, Hazelaar, Colien, Vaniqui, Ana, Rousch, Eva, Tissen, Debby, Van Enckevort, Esther, De Wolf, Michiel, Öllers, Michel C, van Elmpt, Wouter, Verhoeven, Karolien, Van Loon, Judith G M, Vosse, Bettine A, De Ruysscher, Dirk K M, Vilches-Freixas, Gloria

“…Reducing breathing motion in radiotherapy (RT) is an attractive strategy to reduce margins and better spare normal tissues. The objective of this prospective…”
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Expanding the BBMRI-ERIC Directory into a Global Catalogue of COVID-19-Ready Collections: A Joint Initiative of BBMRI-ERIC and ISBER by Catchpoole, Daniel R, Florindi, Francesco, Ahern, Caitlin, Garcia, Debra Leiolani, Mullins, Piper, Van Enckevort, Esther, Zaayenga, Andy, Mayrhofer, Michaela Th, Holub, Petr

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The case for open science: rare diseases by Rubinstein, Yaffa R, Robinson, Peter N, Gahl, William A, Avillach, Paul, Baynam, Gareth, Cederroth, Helene, Goodwin, Rebecca M, Groft, Stephen C, Hansson, Mats G, Harris, Nomi L, Huser, Vojtech, Mascalzoni, Deborah, McMurry, Julie A, Might, Matthew, Nellaker, Christoffer, Mons, Barend, Paltoo, Dina N, Pevsner, Jonathan, Posada, Manuel, Rockett-Frase, Alison P, Roos, Marco, Rubinstein, Tamar B, Taruscio, Domenica, van Enckevort, Esther, Haendel, Melissa A

“…The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is…”
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Towards an Interoperable Ecosystem of Research Cohort and Real-world Data Catalogues Enabling Multi-center Studies by Swertz, Morris, van Enckevort, Esther, Oliveira, José Luis, Fortier, Isabel, Bergeron, Julie, Thurin, Nicolas H., Hyde, Eleanor, Kellmann, Alexander, Pahoueshnja, Romin, Sturkenboom, Miriam, Cunnington, Marianne, Nybo Andersen, Anne-Marie, Marcon, Yannick, Gonçalves, Gonçalo, Gini, Rosa

“…Objectives: Existing individual-level human data cover large populations on many dimensions such as lifestyle, demography, laboratory measures, clinical…”
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LongITools: Dynamic longitudinal exposome trajectories in cardiovascular and metabolic noncommunicable diseases by Ronkainen, Justiina, Nedelec, Rozenn, Atehortua, Angelica, Balkhiyarova, Zhanna, Cascarano, Anna, Ngoc Dang, Vien, Elhakeem, Ahmed, van Enckevort, Esther, Goncalves Soares, Ana, Haakma, Sido, Halonen, Miia, Heil, Katharina F., Heiskala, Anni, Hyde, Eleanor, Jacquemin, Bénédicte, Keikkala, Elina, Kerckhoffs, Jules, Klåvus, Anton, Kopinska, Joanna A., Lepeule, Johanna, Marazzi, Francesca, Motoc, Irina, Näätänen, Mari, Ribbenstedt, Anton, Rundblad, Amanda, Savolainen, Otto, Simonetti, Valentina, de Toro Eadie, Nina, Tzala, Evangelia, Ulrich, Anna, Wright, Thomas, Zarei, Iman, d’Amico, Enrico, Belotti, Federico, Brunius, Carl, Castleton, Christopher, Charles, Marie-Aline, Gaillard, Romy, Hanhineva, Kati, Hoek, Gerard, Holven, Kirsten B., Jaddoe, Vincent W. V., Kaakinen, Marika A., Kajantie, Eero, Kavousi, Maryam, Lakka, Timo, Matthews, Jason, Piano Mortari, Andrea, Vääräsmäki, Marja, Voortman, Trudy, Webster, Claire, Zins, Marie, Atella, Vincenzo, Bulgheroni, Maria, Chadeau-Hyam, Marc, Conti, Gabriella, Evans, Jayne, Felix, Janine F., Heude, Barbara, Järvelin, Marjo-Riitta, Kolehmainen, Marjukka, Landberg, Rikard, Lekadir, Karim, Parusso, Stefano, Prokopenko, Inga, de Rooij, Susanne R., Roseboom, Tessa, Swertz, Morris, Timpson, Nicholas, Ulven, Stine M., Vermeulen, Roel, Juola, Teija, Sebert, Sylvain

“…The current epidemics of cardiovascular and metabolic noncommunicable diseases have emerged alongside dramatic modifications in lifestyle and living…”
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The Data Use Ontology to streamline responsible access to human biomedical datasets by Lawson, Jonathan, Cabili, Moran N., Kerry, Giselle, Boughtwood, Tiffany, Thorogood, Adrian, Alper, Pinar, Bowers, Sarion R., Boyles, Rebecca R., Brookes, Anthony J., Brush, Matthew, Burdett, Tony, Clissold, Hayley, Donnelly, Stacey, Dyke, Stephanie O.M., Freeberg, Mallory A., Haendel, Melissa A., Hata, Chihiro, Holub, Petr, Jeanson, Francis, Jene, Aina, Kawashima, Minae, Kawashima, Shuichi, Konopko, Melissa, Kyomugisha, Irene, Li, Haoyuan, Linden, Mikael, Rodriguez, Laura Lyman, Morita, Mizuki, Mulder, Nicola, Muller, Jean, Nagaie, Satoshi, Nasir, Jamal, Ogishima, Soichi, Ota Wang, Vivian, Paglione, Laura D., Pandya, Ravi N., Parkinson, Helen, Philippakis, Anthony A., Prasser, Fabian, Rambla, Jordi, Reinold, Kathy, Rushton, Gregory A., Saltzman, Andrea, Saunders, Gary, Sofia, Heidi J., Spalding, John D., Swertz, Morris A., Tulchinsky, Ilia, van Enckevort, Esther J., Varma, Susheel, Voisin, Craig, Yamamoto, Natsuko, Yamasaki, Chisato, Zass, Lyndon, Guidry Auvil, Jaime M., Nyrönen, Tommi H., Courtot, Mélanie

“…Human biomedical datasets that are critical for research and clinical studies to benefit human health also often contain sensitive or potentially identifying…”
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Towards an Interoperable Ecosystem of Research Cohort and Real-world Data Catalogues Enabling Multi-center Studies by Swertz, Morris, van Enckevort, Esther, Oliveira, José Luis, Fortier, Isabel, Bergeron, Julie, Thurin, Nicolas H, Hyde, Eleanor, Kellmann, Alexander, Pahoueshnja, Romin, Sturkenboom, Miriam, Cunnington, Marianne, Nybo Andersen, Anne-Marie, Marcon, Yannick, Gonçalves, Gonçalo, Gini, Rosa

“…Existing individual-level human data cover large populations on many dimensions such as lifestyle, demography, laboratory measures, clinical parameters, etc…”
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