Search Results - "VIVAT, Bella"
-
1
Outcomes of prognostication in people living with advanced cancer: A qualitative study to inform a Core Outcome Set
Published in PloS one (11-07-2024)“…Studies of prognostication in advanced cancer use a wide range of outcomes and outcome measures, making it difficult to compare these studies and their…”
Get full text
Journal Article -
2
Shared decision-making in palliative cancer care: A systematic review and metasynthesis
Published in Palliative Medicine (01-04-2024)“…Background: Shared decision-making is a key element of person-centred care and promoted as the favoured model in preference-sensitive decision-making…”
Get full text
Book Review Journal Article -
3
Palliative care specialists in hospice and hospital/community teams predominantly use low doses of sedative medication at the end of life for patient comfort rather than sedation: Findings from focus groups and patient records for I-CAN-CARE
Published in Palliative medicine (01-06-2019)“…Background: Little research has explored the detail of practice when using sedative medications at the end of life. One work package of the I-CAN-CARE research…”
Get full text
Journal Article -
4
-
5
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies
Published in Palliative Medicine (01-10-2023)“…Background: Studies evaluating the impact of prognostication in advanced cancer patients vary in the outcomes they measure, and there is a lack of consensus…”
Get full text
Book Review Journal Article -
6
Identification and evaluation of observational measures for the assessment and/or monitoring of level of consciousness in adult palliative care patients: A systematic review for I-CAN-CARE
Published in Palliative Medicine (01-01-2020)“…Background: The use of observational measures to assess palliative care patients’ level of consciousness may improve patient care and comfort. However, there…”
Get full text
Book Review Journal Article -
7
Quality of life in primary sclerosing cholangitis: a systematic review
Published in Health and quality of life outcomes (20-03-2021)“…Primary sclerosing cholangitis (PSC) is a rare bile duct and liver disease which can considerably impact quality of life (QoL). As part of a project developing…”
Get full text
Journal Article -
8
Developing a Core Outcome Set for Prognostic Research in Palliative Cancer Care: Protocol for a Mixed Methods Study
Published in JMIR research protocols (01-09-2023)“…Studies exploring the impact of receiving end-of-life prognoses in patients with advanced cancer use a variety of different measures to evaluate the outcomes,…”
Get full text
Journal Article -
9
Spiritual Care in Palliative Care
Published in Religions (Basel, Switzerland ) (01-02-2023)“…Palliative care has always included spiritual care, but the provision and inclusion of spiritual care within and across palliative care services…”
Get full text
Journal Article -
10
Comment on Ramos-Rincon et al. Palliative Sedation in COVID-19 End-of-Life Care. Retrospective Cohort Study. Medicina 2021, 57 , 873
Published in Medicina (Kaunas, Lithuania) (06-01-2022)“…We read with interest the article by Ramos-Rincon and colleagues about patients with COVID-19 dying in acute medical wards in a Spanish University hospital…”
Get full text
Journal Article -
11
The (im)possibility of being a breastfeeding working mother: experiences of Ecuadorian healthcare providers
Published in Frontiers in communication (16-08-2023)“…Background Throughout the twentieth century, public health agencies and expert healthcare professionals have recognized breastfeeding as the most nutritious…”
Get full text
Journal Article -
12
Quality of life (QoL) for people with primary sclerosing cholangitis (PSC): a pragmatic strategy for identifying relevant QoL issues for rare disease
Published in Journal of patient-reported outcomes (15-07-2022)“…Background Primary sclerosing cholangitis (PSC) is a rare incurable disease of the bile ducts and liver which can significantly impair quality of life (QoL)…”
Get full text
Journal Article -
13
Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties
Published in The patient : patient-centered outcomes research (01-04-2019)“…Introduction Measuring the quality of care at the end of life and/or the quality of dying and death can be challenging. Some measurement tools seek to assess…”
Get full text
Journal Article -
14
What Do Palliative Care Professionals Understand as Spiritual Care? Findings from an EAPC Survey
Published in Religions (Basel, Switzerland ) (01-02-2023)“…From its inception palliative care has been understood as addressing four dimensions: physical, social, emotional/psychological, and spiritual/religious…”
Get full text
Journal Article -
15
Do palliative care patients and relatives think it would be acceptable to use Bispectral index (BIS) technology to monitor palliative care patients' levels of consciousness? A qualitative exploration with interviews and focus groups for the I-CAN-CARE research programme
Published in BMC palliative care (24-05-2022)“…Bispectral index (BIS) monitoring uses electroencephalographic data as an indicator of patients' consciousness level. This technology might be a useful adjunct…”
Get full text
Journal Article -
16
Advanced Breast Cancer Patients' Perceptions of Decision Making for Palliative Chemotherapy
Published in Journal of clinical oncology (01-03-2006)“…To examine advanced breast cancer patients' perceptions of the key decision-making consultation for palliative chemotherapy. One hundred two women with…”
Get full text
Journal Article -
17
Study protocol: delayed intervention randomised controlled trial within the Medical Research Council (MRC) Framework to assess the effectiveness of a new palliative care service
Published in BMC palliative care (02-10-2006)“…Palliative care has been proposed to help meet the needs of patients who suffer progressive non-cancer conditions but there have been few evaluations of…”
Get full text
Journal Article -
18
Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer
Published in Quality of life research (01-07-2017)“…Purpose For adolescents and young adults (AYAs), the impact of a cancer diagnosis and subsequent treatment is likely to be distinct from other age groups given…”
Get full text
Journal Article -
19
End-of-life care for homeless people: A qualitative analysis exploring the challenges to access and provision of palliative care
Published in Palliative medicine (01-01-2018)“…Background: Being homeless or vulnerably housed is associated with death at a young age, frequently related to medical problems complicated by drug or alcohol…”
Get full text
Journal Article -
20
Implementing spiritual care at the end of life: the UK
Published in European journal of palliative care (01-01-2013)“…In our occasional series on the implementation of spiritual care at the end of life, after the Netherlands and Italy, we take a look at the situation in the…”
Get full text
Journal Article