Search Results - "Thompkins, Jessica"
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Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT
Published in Pediatrics (Evanston) (01-06-2021)“…Little is known about how families respond to pediatric advance care planning. Physicians are concerned that initiating pediatric advance care planning…”
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Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Published in Pediatrics (Evanston) (01-06-2024)“…Pediatric rare diseases are often life-limiting conditions and/or require constant caregiving. Investigators assessed the initial efficacy of the FAmily…”
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Congruence Gaps Between Adolescents With Cancer and Their Families Regarding Values, Goals, and Beliefs About End-of-Life Care
Published in JAMA network open (01-05-2020)“…Lack of pediatric advance care planning has been associated with poor communication, increased hospitalization, poor quality of life, and legal actions…”
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Adolescent and Young Adult Initiated Discussions of Advance Care Planning: Family Member, Friend and Health Care Provider Perspectives
Published in Frontiers in psychology (08-06-2022)“…Background and Aims End-of-life (EoL) discussions can be difficult for seriously ill adolescents and young adults (AYAs). Researchers aimed to determine…”
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Effect of the Family-Centered Advance Care Planning for Teens with Cancer Intervention on Sustainability of Congruence About End-of-Life Treatment Preferences: A Randomized Clinical Trial
Published in JAMA network open (01-07-2022)“…The effect of pediatric advance care planning (pACP) on the sustainability of end-of-life treatment preference congruence between adolescents with cancer and…”
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Safety outcomes of SARS-CoV-2 vaccination in pediatric patients with a first dose reaction history or allergy to polyethylene glycol or polysorbate
Published in The journal of allergy and clinical immunology in practice (Cambridge, MA) (01-08-2022)“…Clinical Implications The second dose of Pfizer-BioNTech vaccine can be administered safely in children with a history of immediate and potentially allergic…”
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18-Month Sustainability of FACE®-TC Pediatric Advance Care Planning for Teens with Cancer: A Longitudinal Randomized Clinical Trial
Published in Journal of pain and symptom management (01-05-2022)“…1. Explain the key principles of pediatric advance care planning 2. Appraise the value of FACE-TC approach to pediatric advance care planning 3. Evaluate…”
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Is it safe and worthwhile? A multi-site randomized clinical trial of FAmily CEntered (FACE) pediatric advance care planning for adolescents with cancer and their families
Published in Journal of clinical oncology (20-05-2020)“…Abstract only 10557 Background: Many clinicians express concern that pediatric ACP (pACP) is too distressful for families. We describe the effect of FAmily…”
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Effect of FAmily CEntered (FACE) advance care planning (ACP) on families’ appraisals of caregiving for their teens with cancer
Published in Journal of clinical oncology (20-05-2020)“…Abstract only e22533 Background: Little is known about how well family caregivers respond to participating in pACP. The research objective was to understand…”
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Intersectionality of Gender and Poverty on Symptom Suffering Among Adolescents with Cancer (RP423)
Published in Journal of pain and symptom management (01-07-2020)“…Objectives Describe the need for attending to gender and poverty in assessing symptom suffering among adolescents with cancer. Explain the importance of…”
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LET'S TALK: QUALITY OF FACILITATOR COMMUNICATION AS A DETERMINANT OF SATISFACTION WITH FAMILY CENTERED PEDIATRIC ADVANCE CARE PLANNING FOR TEENS WITH CANCER (FACE-TC PACP)
Published in Journal of adolescent health (01-02-2020)“…Purpose: Research regarding communication about end-of-life issues in families with adolescents facing serious illnesses is limited. We examined the…”
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Shared spiritual beliefs between adolescents with cancer and their families
Published in Pediatric blood & cancer (01-12-2020)“…Background FAmily CEntered (FACE) Advance Care Planning helps family decision makers to understand and honor patients’ preferences for future health care, if…”
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Relationship of spiritual constructs to mental health PROs in adolescents with cancer
Published in Journal of clinical oncology (01-11-2019)“…Abstract only 136 Background: Global beliefs and goals form a meaning system, which plays a role in adjusting to stressors like cancer. Spirituality (search…”
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Voicing their choices: Advance care planning with adolescents and young adults with cancer and other serious conditions
Published in Palliative & supportive care (01-08-2022)“…To determine whether engaging in advance care planning (ACP) using a formal tool, (VMC), would alleviate adolescent and young adults (AYAs) anxiety surrounding…”
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Association of Religious and Spiritual Factors With Patient-Reported Outcomes of Anxiety, Depressive Symptoms, Fatigue, and Pain Interference Among Adolescents and Young Adults With Cancer
Published in JAMA network open (16-06-2020)“…Importance The associations of spiritual and religious factors with patient-reported outcomes among adolescents with cancer are unknown. Objective To model the…”
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