The Proxy Problem: Child Report versus Parent Report in Health-Related Quality of Life Research

The Proxy Problem: Child Report versus Parent Report in Health-Related Quality of Life Research

This study evaluates the agreement between child and parent reports on children's health-related quality of life (HRQoL) in a representative sample of 1,105 Dutch children (age 8-11 years old). Both children and their parents completed a 56 item questionnaire (TACQOL). The questionnaire contain...

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Bibliographic Details
Published in:Quality of life research Vol. 7; no. 5; pp. 387 - 397
Main Authors: N. C. M. Theunissen, T. G. C. Vogels, H. M. Koopman, G. H. W. Verrips, K. A. H. Zwinderman, S. P. Verloove-Vanhorick, Wit, J. M.
Format: Journal Article
Language:English
Published: Netherlands Rapid Communications of Oxford Ltd 01-07-1998
Springer Nature B.V
Subjects:
Adult
Child
Children
Children & youth
Correlations
Emotion
Emotions
Evaluation Studies as Topic
Female
Health status
Health Status Indicators
Humans
Linear Models
Male
Motor ability
Parent-Child Relations
Parents
Proxy reporting
Proxy statements
Quality of Life
Quality of Life in Children
Questionnaires
Sick Role
Studies
Surveys and Questionnaires
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Summary:This study evaluates the agreement between child and parent reports on children's health-related quality of life (HRQoL) in a representative sample of 1,105 Dutch children (age 8-11 years old). Both children and their parents completed a 56 item questionnaire (TACQOL). The questionnaire contains seven eight-item scales: physical complaints, motor functioning, autonomy, cognitive functioning, social functioning, positive emotions and negative emotions. The Pearson correlations between the child and parent reports were between 0.44 and 0.61 (p < 0.001). The intraclass correlations were between 0.39 and 0.62. On average, the children reported a significantly lower HRQoL than their parents on the physical complaints, motor functioning, autonomy, cognitive functioning and positive emotions scales (paired t-test: p < 0.05). Agreement on all of the scales was related to the magnitude of the HRQoL scores and to some background variables (gender, age, temporary illness and visiting a physician). According to multitrait-multimethod analyses, both the child and parent reports proved to be valid.
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ISSN:0962-9343
1573-2649
DOI:10.1023/a:1008801802877