Search Results - "Strong, Kimberly A"

Informing patients about emerging treatment options: creating 'saviour siblings' for haemopoietic stem cell transplant by Strong, Kimberly A

“…In June 2008, the ABC screened a television documentary involving a couple who decided to have an additional child in the hope of obtaining umbilical cord…”
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Evaluation for Genetic Disorders in the Absence of a Clinical Indication for Testing: Elective Genomic Testing by Lu, James T, Ferber, Matthew, Hagenkord, Jill, Levin, Elissa, South, Sarah, Kang, Hyunseok P, Strong, Kimberly A, Bick, David P

“…The increasing quality and diminishing cost of next-generation sequencing has transformed our ability to interrogate large quantities of genetic information…”
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On the ethics of clinical whole genome sequencing of children by May, Thomas, Zusevics, Kaija L, Strong, Kimberly A

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Can targeted genetic testing offer useful health information to adoptees? by May, Thomas, Strong, Kimberly A., Khoury, Muin J., Evans, James P.

“…In 2004, the US Surgeon General launched the Family History Public Health Initiative to increase awareness and discussions regarding family health history…”
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In sickness and in health: context matters when considering potential benefits and risks of genome-wide sequencing by Strong, Kimberly A., May, Thomas, Levy, Shawn A.

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Does Lack of "Genetic-Relative Family Health History" Represent a Potentially Avoidable Health Disparity for Adoptees? by May, Thomas, Strong, Kimberly A., Zusevics, Kaija L., Jeruzal, Jessica, Farrell, Michael H., LaPean Kirschner, Alison, Derse, Arthur R., Evans, James P., Grotevant, Harold D.

“…Many adoptees face a number of challenges relating to separation from biological parents during the adoption process, including issues concerning identity,…”
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Successful Application of Whole Genome Sequencing in a Medical Genetics Clinic by Bick, David, Fraser, Pamela C, Gutzeit, Michael F, Harris, Jeremy M, Hambuch, Tina M, Helbling, Daniel C, Jacob, Howard J, Kersten, Juliet N, Leuthner, Steven R, May, Thomas, North, Paula E, Prisco, Sasha Z, Schuler, Bryce A, Shimoyama, Mary, Strong, Kimberly A, Van Why, Scott K, Veith, Regan, Verbsky, James, Weborg, Jr, Arthur M, Wilk, Brandon M, Willoughby, Jr, Rodney E, Worthey, Elizabeth A, Dimmock, David P

“…A pilot program was initiated using whole genome sequencing (WGS) to diagnose suspected genetic disorders in the Genetics Clinic at Children's Hospital of…”
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Views of nonmedical, health system professionals regarding the return of whole genome sequencing incidental findings by Strong, Kimberly A, Zusevics, Kaija L, Bick, David P, Veith, Regan

“…Use of genome sequencing in the clinic continues to increase. In addition to its potential to provide findings of clinical benefit, it also has the potential…”
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Adult adoptees’ attitudes regarding the potential use of genetic information to fill the gap in their family health history by Strong, Kimberly A, May, Thomas, McCauley, Michael, Pean Kirschner, Alison La, Jeruzal, Jessica, Wilson, Samantha L, Zusevics, Kaija L, Knight, Carmen

“…Genetic testing can provide useful information related to a person’s health history. Adoptees who lack access to family health history due to inherent…”
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Genetics and Genomics in Clinical Practice: The Views of Wisconsin Physicians by McCauley, Michael P, Marcus, Rebecca K, Strong, Kimberly A, Visotcky, Alexis M, Shimoyama, Mary E, Derse, Arthur R

“…Decreasing costs and increased availability of genetic testing and genome sequencing mean many physicians will consider using these services over the next few…”
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Challenges to clinical utilization of hereditary cancer gene panel testing: perspectives from the front lines by Marcus, Rebecca K., Geurts, Jennifer L., Grzybowski, Jessica A., Turaga, Kiran K., Clark Gamblin, T., Strong, Kimberly A., Johnston, Fabian M.

“…Next generation sequencing (NGS) technology is rapidly being implemented into clinical practice. Qualitative research was performed to gain an improved…”
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Matching the Pace of Genomic Advances Through the Integration of Genomic Education Into High School Health Education by Zusevics, Kaija L., Strong, Kimberly A., Farrell, Michael H., Shimoyama, Mary E.

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Issues of "Cost, Capabilities, and Scope" in Characterizing Adoptees' Lack of "Genetic-Relative Family Health History" as an Avoidable Health Disparity: Response to Open Peer Commentaries on "Does Lack of 'Genetic-Relative Family Health History' Represent a Potentially Avoidable Health Disparity for Adoptees?" by May, Thomas, Evans, James P., Strong, Kimberly A., Zusevics, Kaija L., Derse, Arthur R., Jeruzal, Jessica, LaPean Kirschner, Alison, Farrell, Michael H., Grotevant, Harold D.

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In the Absence of Evidentiary Harm, Existing Societal Norms Regarding Parental Authority Should Prevail by Strong, Kimberly A., Derse, Arthur R., Dimmock, David P., Zusevics, Kaija L., Jeruzal, Jessica, Worthey, Elizabeth, Bick, David, Scharer, Gunter, La Pean Kirschner, Alison, Spellecy, Ryan, Farrell, Michael H., Geurts, Jennifer, Veith, Regan, May, Thomas

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The Limits of Traditional Approaches to Informed Consent for Genomic Medicine by May, Thomas, Zusevics, Kaija L., Derse, Arthur, Strong, Kimberly A., Jeruzal, Jessica, La Pean Kirschner, Alison, Farrell, Michael H., Spellecy, Ryan

“…This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that…”
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Evaluation for Genetic Disorders in the Absence of a Clinical Indication for Testing by Lu, James T., Ferber, Matthew, Hagenkord, Jill, Levin, Elissa, South, Sarah, Kang, Hyunseok P., Strong, Kimberly A., Bick, David P.

“…The increasing quality and diminishing cost of next-generation sequencing has transformed our ability to interrogate large quantities of genetic information…”
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Creating Savior Siblings for Transplantation: Discrepancy Between Parental Wishes and Clinical Practice by Strong, Kimberly A, Kerridge, Ian, Jordens, Christopher, Ankeny, Rachel A, Shaw, Peter J., O'Brien, Tracey, Carter, Stacy, Barlow-Stewart, Kristine

“…Thirty percent of patients who need a hematopoietic stem cell transplant (HSCT) have an HLA-matched related donor. Many other patients find a suitably matched…”
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The strengths and limitations of empirical bioethics by Strong, K A, Lipworth, W, Kerridge, I

“…The past two decades have been witness to an "empirical turn" in bioethics. Whereas once this field of study concerned itself purely with theoretical analysis…”
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What's in a name? Searching the web for information about ethically contentious and emerging healthcare technologies by Axler, Renata E., Strong, Kimberly A., Jordens, Christopher F. C., Ankeny, Rachel A., Barlow-Stewart, Kristine, Kerridge, Ian H.

“…This study examined the problems faced by lay people searching the web for information about emerging and ethically contentious technologies, by simulating a…”
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It's Time to Reframe the Savior Sibling Debate by Strong, Kimberly A., Jordens, Chris F., Kerridge, Ian H., Little, John Miles, Ankeny, Rachel A.

“…The creation of savior siblings has been the subject of intense ethical debate over the past decade. While ethical concerns might provide clinicians with valid…”
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