Psychosocial well-being and health-related quality of life in a UK population with Usher syndrome

Psychosocial well-being and health-related quality of life in a UK population with Usher syndrome

ObjectivesTo determine whether psychosocial well-being is associated with the health-related quality of life (HRQOL) of people with Usher syndrome.SettingThe survey was advertised online and through deafblind-related charities, support groups and social groups throughout the UK.Participants90 people...

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Bibliographic Details
Published in:BMJ open Vol. 7; no. 1; p. e013261
Main Authors: Dean, Gavin, Orford, Amy, Staines, Roy, McGee, Anna, Smith, Kimberley J
Format: Journal Article
Language:English
Published: England BMJ Publishing Group LTD 01-01-2017
BMJ Publishing Group
Subjects:
Adaptation, Psychological
Adult
Aged
Blindness
Chronic illnesses
Deafness
Depression - epidemiology
Female
Health Status Indicators
Health Surveys
Hearing loss
Humans
Loneliness
Loneliness - psychology
Male
Mental depression
Middle Aged
Older people
Ophthalmology
Population
Public health
Quality of Life
Questionnaires
Registration
Self employment
Sign language
Social isolation
Social networks
Social Support
Socioeconomic Factors
United Kingdom - epidemiology
Usher Syndromes - epidemiology
Usher Syndromes - psychology
Visual impairment
United Kingdom > UK
PUBLIC HEALTH
OPHTHALMOLOGY
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Summary:ObjectivesTo determine whether psychosocial well-being is associated with the health-related quality of life (HRQOL) of people with Usher syndrome.SettingThe survey was advertised online and through deafblind-related charities, support groups and social groups throughout the UK.Participants90 people with Usher syndrome took part in the survey. Inclusion criteria are having a diagnosis of Usher syndrome, being 18 or older and being a UK resident.Primary and secondary outcome measuresAll participants took part in a survey that measured depressive symptoms, loneliness and social support (predictors) and their physical and mental HRQOL (outcomes). Measured confounders included age-related, sex-related and health-related characteristics. Hierarchical multiple linear regression analyses examined the association of each psychosocial well-being predictor with the physical and mental HRQOL outcomes while controlling for confounders in a stepwise manner.ResultsAfter adjusting for all confounders, psychosocial well-being was shown to predict physical and mental HRQOL in our population with Usher syndrome. Increasing depressive symptoms were predictive of poorer physical (β=−0.36, p<0.01) and mental (β=−0.60, p<0.001) HRQOL. Higher levels of loneliness predicted poorer mental HRQOL (β=−0.20, p<0.05). Finally, increasing levels of social support predicted better mental HRQOL (β=0.19, p<0.05).ConclusionsDepression, loneliness and social support all represent important issues that are linked with HRQOL in a UK population with Usher syndrome. Our results add to the growing body of evidence that psychosocial well-being is an important factor to consider in people with Usher syndrome alongside functional and physical impairment within research and clinical practice.
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ISSN:2044-6055
2044-6055
DOI:10.1136/bmjopen-2016-013261