Child and parental adaptation to pediatric stem cell transplantation

Child and parental adaptation to pediatric stem cell transplantation

Goals of work Allogeneic pediatric stem cell transplantation (SCT) is a very intensive treatment with a high mortality and morbidity. The objectives of this study were to assess the (1) self- and proxy-reported health-related quality of life (HRQoL) compared to a norm group, (2) levels of parenting...

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Bibliographic Details
Published in:Supportive care in cancer Vol. 17; no. 6; pp. 707 - 714
Main Authors: Vrijmoet-Wiersma, C. M. Jantien, Kolk, Annemarie M., Grootenhuis, Martha A., Spek, Emmelien M., van Klink, Jeanine M. M., Egeler, R. Maarten, Bredius, Robbert G. M., Koopman, Hendrik M.
Format: Journal Article
Language:English
Published: Berlin/Heidelberg Springer-Verlag 01-06-2009
Springer Nature B.V
Subjects:
Adaptation, Psychological
Adolescent
Adult
Child
Child, Preschool
Children & youth
Female
Follow-Up Studies
Humans
Male
Medicine
Medicine & Public Health
Middle Aged
Nursing
Nursing Research
Oncology
Original Article
Pain Medicine
Parents & parenting
Parents - psychology
Pediatrics
Prospective Studies
Quality of Life
Rehabilitation Medicine
Stem Cell Transplantation - psychology
Stress, Psychological - etiology
Surveys and Questionnaires
Transplantation, Homologous
Parenting stress
Health-related quality of life
Pediatric SCT
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Summary:Goals of work Allogeneic pediatric stem cell transplantation (SCT) is a very intensive treatment with a high mortality and morbidity. The objectives of this study were to assess the (1) self- and proxy-reported health-related quality of life (HRQoL) compared to a norm group, (2) levels of parenting stress compared to a norm group, (3) differences in HRQoL and parenting stress pre- and post-SCT, and (4) effect of child age and parenting stress on self- and proxy-reported HRQoL pre- and post-SCT. Materials and methods Pre- and on average 10 months post-SCT, 21 children and adolescents and their parent(s) completed questionnaires on HRQoL and the mothers completed a measure of parenting stress. Main results Post-SCT, home functioning, physical functioning, and total HRQoL scores were lower than the norm group. We found stable HRQoL scores over time with the exception of the domain home functioning, which was rated lower post-SCT than pre-SCT. Parents reported lower HRQoL scores than the children pre- and post-SCT and younger children experienced better HRQoL than older children. Parenting stress was higher post-SCT than pre-SCT and high levels of parenting stress were predictive of poor parental ratings of child HRQoL post-SCT. Conclusions Ongoing psychosocial assessment post-SCT is necessary to target children with a lowered HRQoL and parents who experience elevated parenting stress who may be in greater need of more supportive care.
Bibliography:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
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ISSN:0941-4355
1433-7339
DOI:10.1007/s00520-008-0544-8