Search Results - "Sparkes, Dwight"
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Patient Perspectives on Integrating Risk Prediction Into Kidney Care: Opinion Piece
Published in Canadian journal of kidney health and disease (01-03-2022)“…Although Chronic Kidney Disease is common, only a relatively small proportion of individuals will reach kidney failure requiring dialysis or transplantation…”
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Storytelling for impact: the creation of a storytelling program for patient partners in research
Published in Research involvement and engagement (25-07-2023)“…Storytelling is a powerful means to evoke empathy and understanding among people. When patient partners, which include patients, family members, caregivers and…”
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Development and Preliminary Psychometric Testing of an Adult Chronic Kidney Disease Self-Management (CKD-SM) Questionnaire
Published in Canadian journal of kidney health and disease (01-12-2021)“…Background: Self-management focused interventions to slow chronic kidney disease (CKD) progression are increasingly common. However, valid self-report…”
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Integrating Risk-Based Care for Patients With Chronic Kidney Disease in the Community: Study Protocol for a Cluster Randomized Trial
Published in Canadian journal of kidney health and disease (01-01-2019)“…Background: A risk-based model of care for managing patients with chronic kidney disease (CKD) using the Kidney Failure Risk Equation (KFRE) has been…”
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Program Report: Can-SOLVE CKD Network Presents an Inclusive Method for Developing Patient-Oriented Research Tools
Published in Canadian journal of kidney health and disease (01-02-2022)“…Purpose of program: Given the growing interest in patient-oriented research (POR) initiatives, there is a need to provide relevant training and education on…”
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The Canadian Glomerulonephritis Registry (CGNR) and Translational Research Initiative: Rationale and Clinical Research Protocol
Published in Canadian journal of kidney health and disease (01-04-2022)“…Background: Glomerulonephritis (GN) is a leading cause of kidney failure and accounts for 20% of incident cases of end-stage kidney disease (ESKD) in Canada…”
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Program Report: KidneyPRO, a Web-based Training Module for Patient Engagement in Kidney Research
Published in Canadian journal of kidney health and disease (01-01-2020)“…Purpose of report: Over the recent years, there has been increasing support and traction for patient-oriented research (POR). Such an approach ensures that…”
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Content and Quality of Websites for Patients With Chronic Kidney Disease: An Environmental Scan
Published in Canadian journal of kidney health and disease (01-01-2019)“…Background: Although numerous websites for patients with chronic kidney disease (CKD) are available, little is known about their content and quality…”
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A New Vision for Nephrology Trials in Canada: PO0571
Published in Journal of the American Society of Nephrology (01-10-2020)Get full text
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Peer Support Interventions for People With CKD: A Scoping Review
Published in American journal of kidney diseases (21-08-2024)“…Formalized peer support is a promising approach for addressing the emotional and practical needs of people living with chronic kidney disease (CKD). We…”
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Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study
Published in American journal of kidney diseases (01-10-2019)“…Fostering the ability of patients to self-manage their chronic kidney disease (CKD), with support from caregivers and providers, may slow disease progression…”
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Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
Published in CMAJ open (01-07-2023)“…BACKGROUNDPeer support can address the informational and emotional needs of people living with chronic kidney disease (CKD) and enable self-management. We…”
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A Web-Based Self-Management Support Prototype for Adults With Chronic Kidney Disease (My Kidneys My Health): Co-Design and Usability Testing
Published in JMIR formative research (09-02-2021)“…Supporting patients to self-manage their chronic kidney disease (CKD) has been identified as a research priority by patients with CKD and those who care for…”
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An eHealth self-management intervention for adults with chronic kidney disease, My Kidneys My Health: a mixed-methods study
Published in CMAJ open (01-07-2022)“…BACKGROUNDThere is limited research of electronic tools for self-management for patients with chronic kidney disease (CKD). We sought to evaluate participant…”
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Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop
Published in CMAJ open (01-10-2019)“…Electronic health (e-health) tools may support patients' self-management of chronic kidney disease. We aimed to identify preferences of patients with chronic…”
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