Search Results - "Soucie, J Michael"

Global Hemophilia Care: Data for Action by Soucie, J Michael

“…Soucie discusses the study by Iorio et al which makes the case that measurement of the global burden of hemophilia is an important step in developing…”
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Impact of inhibitors on hemophilia a mortality in the United States by Walsh, Christopher E., Soucie, J. Michael, Miller, Connie H.

“…The previously published mortality studies are limited in hemophilia populations but suggest that there is no increased risk of mortality in factor VIII…”
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Associations between intracranial haemorrhage and prescribed prophylaxis in a large cohort of haemophilia patients in the United States by Witmer, Char, Presley, Rodney, Kulkarni, Roshni, Michael Soucie, J., Manno, Catherine S., Raffini, Leslie

“…Summary Intracranial haemorrhage (ICH) is the most serious type of bleeding for patients with haemophilia. Prior published reports regarding ICH predate the…”
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A study of variations in the reported haemophilia A prevalence around the world by STONEBRAKER, J. S., BOLTON-MAGGS, P. H. B., MICHAEL SOUCIE, J., WALKER, I., BROOKER, M.

“…The objectives of this paper were to study the reported haemophilia A prevalence (per 100 000 males) on a country‐by‐country basis and address the following:…”
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The CDC Hemophilia A Mutation Project (CHAMP) Mutation List: A New Online Resource by Payne, Amanda B., Miller, Connie H., Kelly, Fiona M., Michael Soucie, J., Craig Hooper, W.

“…ABSTRACT Genotyping efforts in hemophilia A (HA) populations in many countries have identified large numbers of unique mutations in the Factor VIII gene (F8)…”
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Vascular access and increased risk of death among hemodialysis patients by Pastan, Stephen, Soucie, J. Michael, McClellan, William M.

“…Vascular access and increased risk of death among hemodialysis patients. Hemodialysis with a venous catheter increases the risk of infection. The extent to…”
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The frequency of joint hemorrhages and procedures in nonsevere hemophilia A vs B by Soucie, J. Michael, Monahan, Paul E., Kulkarni, Roshni, Konkle, Barbara A., Mazepa, Marshall A.

“…Data are needed on minimal factor activity (FA) levels required to prevent bleeding in hemophilia. We aimed to evaluate associations between hemophilia type…”
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A study of variations in the reported haemophilia B prevalence around the world by STONEBRAKER, J. S., BOLTON-MAGGS, P. H. B., MICHAEL SOUCIE, J., WALKER, I., BROOKER, M.

“…The objectives of this article were to study the reported prevalence of haemophilia B (HB) on a country‐by‐country basis and to analyse whether the prevalence…”
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Increased prevalence of inhibitors in Hispanic patients with severe haemophilia A enrolled in the Universal Data Collection database by CARPENTER, S. L., MICHAEL SOUCIE, J., STERNER, S., PRESLEY, R.

“…  Neutralizing inhibitors develop in 20–30% of patients with severe factor VIII (FVIII) deficiency. It is well established that Blacks have a higher prevalence…”
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Risk Factors for Candidal Bloodstream Infections in Surgical Intensive Care Unit Patients: The NEMIS Prospective Multicenter Study by Blumberg, Henry M., Jarvis, William R., Soucie, J. Michael, Edwards, Jack E., Patterson, Jan E., Pfaller, Michael A., Rangel-Frausto, M. Sigfrido, Rinaldi, Michael G., Saiman, Lisa, Wiblin, R. Todd, Wenzel, Richard P.

“…To assess risk factors for development of candidal blood stream infections (CBSIs), a prospective cohort study was performed at 6 sites that involved all…”
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Public health surveillance and data collection: general principles and impact on hemophilia care by Soucie, J Michael

“…Public health surveillance is the ongoing collection, analysis, and dissemination of health related data to provide information that can be used to monitor and…”
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Physical Functioning in Boys with Hemophilia in the U.S by Monahan, Paul E., MD, Baker, Judith R., MHSA, Riske, Brenda, MS, MBA, MPA, Soucie, J. Michael, PhD

“…Background Hemophilia is the most common inherited severe bleeding disorder. Although the most frequent complication of repeated hemorrhages is a crippling…”
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The Universal Data Collection Surveillance System for Rare Bleeding Disorders by Soucie, J. Michael, PhD, McAlister, Sally, BSN, McClellan, Ann, PhD, Oakley, Meredith, MPH, DVM, Su, Ying, MD

“…Abstract Since 1998, the CDC has coordinated a national public health surveillance project—the Universal Data Collection (UDC) program—on chronic, rare,…”
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Prevalence of malignancies among U.S. male patients with haemophilia: a review of the Haemophilia Surveillance System by DUNN, A. L., AUSTIN, H., MICHAEL SOUCIE, J.

“…The prevalence of malignancies in US male patients with haemophilia, with or without concomitant viral infections, remains unknown. To estimate the prevalence…”
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Hemophilia without prophylaxis: Assessment of joint range of motion and factor activity by Wang, Michael, Recht, Michael, Iyer, Neeraj N., Cooper, David L., Soucie, J. Michael

“…Recurrent joint bleeding in hemophilia results in arthropathy and functional impairment. The relationship of arthropathy development and factor activity (FA)…”
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Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project by Manco-Johnson, Marilyn J., Soucie, J.Michael, Gill, Joan Cox

“…This analysis of the US Hemophilia Treatment Center Network and the Centers for Disease Control and Prevention surveillance registry assessed trends in…”
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A Public Health Approach to the Prevention of Inhibitors in Hemophilia by Soucie, J. Michael, PhD, Miller, Connie H., PhD, Kelly, Fiona M., MPH, Oakley, Meredith, DVM, MPH, Brown, Deborah L., MD, Kucab, Phillip, MD

“…The development of an antibody in people with hemophilia to products used in the treatment and prevention of bleeding, also referred to as an inhibitor, is the…”
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Burden of Disease Resulting from Hemophilia in the U.S by Siddiqi, Azfar-e-Alam, MD, PhD, Ebrahim, Shahul H., MD, PhD, Soucie, J. Michael, PhD, Parker, Christopher S., PhD, Atrash, Hani K., MD, MPH

“…Background Hemophilia is a hereditary bleeding disorder. Its complications can result in substantial morbidity, but few efforts have been made to quantify the…”
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Assessing Emerging Infectious Threats to Blood Safety for the Blood Disorders Community by Trimble, Sean R., MPH, Parker, Christopher S., PhD, Grant, Althea M., PhD, Soucie, J. Michael, PhD, Reyes, Nimia, MD

“…Abstract Technologic advances in diagnostic testing, vaccinations, pathogen inactivation, and vigilant donor screening have greatly reduced the risk of…”
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Prevalence of comorbid conditions among older males with haemophilia receiving care in haemophilia treatment centers in the United States by Soucie, J. Michael, Le, Binh, Dupervil, Brandi, Poston, Jacqueline N.

“…Introduction Increased survival among men with haemophilia has brought with it an increased risk of age‐related comorbidities that may be challenging to treat…”
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