Search Results - "Skovgaard, Lasse"
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Unfolding biographies-a participatory narrative study on how older adults with multiple sclerosis make sense of and manage their everyday lives
Published in BMC geriatrics (01-12-2023)“…Today, public health research on later life, including the literature on aging with multiple sclerosis, is often centered on aging as a biological phenomenon…”
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The first global landscape analysis of multiple sclerosis research funding
Published in Multiple sclerosis (01-09-2024)“…Introduction: Multiple sclerosis (MS) is an immune-mediated central nervous system disorder and a growing global health challenge affecting nearly 3 million…”
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Perceived usefulness of digital self-tracking among people with multiple sclerosis
Published in Digital health (01-01-2024)“…Self-care technologies may support patients with multiple sclerosis (MS) in their everyday disease management by enabling self-monitoring of various health…”
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Shaping understandings through reflexive practice: Learnings from participatory research on aging with multiple sclerosis
Published in Research involvement and engagement (31-07-2024)“…Participatory research has gained traction as an approach to unlock perspectives when creating scientific knowledge and to facilitate societal changes. By…”
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Neurologists’ views on patient reported outcomes in multiple sclerosis care
Published in Heliyon (01-06-2022)“…The value that patient reported outcomes (PROs) can bring to the clinical encounter is increasingly being recognized. Within the field of Multiple Sclerosis…”
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Potentials and barriers of using digital tools for collecting daily measurements in multiple sclerosis research
Published in Digital health (01-11-2021)“…Objective Digital tools offer new ways of collecting outcome data in intervention research. Little is known about the potentials and barriers of using such…”
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Dietary Patterns and Their Associations with Symptom Levels Among People with Multiple Sclerosis: A Real-World Digital Study
Published in Neurology and therapy (01-08-2023)“…Introduction The objective of the study was to investigate long-term food intake patterns and establish possible associations between the inferred dietary…”
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Patient involvement in the development of PROMs within the MS Field: A systematic review
Published in Patient experience journal (27-04-2022)“…This review reports on the development of patient-reported outcome measures (PROMs), published within the past ten years, for people with multiple sclerosis…”
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Identifying challenges in crowdfunded product development: a review of Kickstarter projects
Published in Design Science (2018)“…This paper provides an empirical review of the reward-based crowdfunding platform Kickstarter.com , with the aim to explore and identify challenges in…”
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"I need personal experiences or some sort of documentation": a qualitative study on where people with multiple sclerosis seek information on dietary and herbal supplements
Published in BMC complementary and alternative medicine (21-08-2021)“…The use of dietary and herbal supplements (DIHES) is widespread among people with multiple sclerosis (PwMS). PwMS are a highly informed patient group, and they…”
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Types of treatment collaboration between conventional and alternative practitioners-results from a research project at a Danish MS hospital
Published in International journal of integrated care (23-12-2010)“…More than 50% of People with Multiple Sclerosis (PwMS) in Denmark use alternative treatment. Most of them combine alternative and conventional treatment, but…”
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Use and users of complementary and alternative medicine among people with multiple sclerosis in Denmark
Published in Danish medical journal (01-01-2016)“…It is known that complementary and alternative medicine (CAM) is popular among people with multiple Sclerosis (MS) and that use is widespread. However, very…”
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How people with multiple sclerosis experience the influence of nutrition and lifestyle factors on the disease
Published in Disability and rehabilitation (19-11-2020)“…Purpose: Increasing knowledge suggests that nutrition and lifestyle factors affect multiple sclerosis. This study explores how people with multiple sclerosis…”
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Social relations and leisure activities as predictors of wellbeing among older adults with multiple sclerosis: A cross-sectional survey study in Denmark
Published in Multiple sclerosis and related disorders (01-09-2023)“…•Perceived emotional social support and perceived instrumental social support, were associated with better wellbeing among older adults with MS compared with…”
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Use of complementary and alternative medicine at Norwegian and Danish hospitals
Published in BMC complementary and alternative medicine (18-01-2011)“…Several studies have found that a high proportion of the population in western countries use complementary and alternative medicine (CAM). However, little is…”
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Patient perspectives on patient-reported outcomes in multiple sclerosis treatment trajectories: A qualitative study of why, what, and how?
Published in Multiple sclerosis and related disorders (01-02-2022)“…•Patients are motivated to use patient-reported outcomes in clinical encounters.•Patient-reported outcomes can promote patient involvement in clinical care.•A…”
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The lived experience of uncertainty in everyday life with MS
Published in Disability and rehabilitation (25-09-2022)“…This article examines how issues of control, certainty, and uncertainty are experienced and managed in everyday life with multiple sclerosis (MS) and explores…”
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Identification of Factors That Motivate People With Multiple Sclerosis to Participate in Digital Data Collection in Research: Sequential Mixed Methods Study
Published in JMIR human factors (09-10-2019)“…Digital data collection has the potential to reduce participant burden in research projects that require extensive registrations from participants. To achieve…”
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