Search Results - "Sinha, Cynthia"

Implementation and Evaluation of a Pediatric Palliative Care Curriculum for Adult-Track HPM Fellows by Flynn, Emilee, Murray, Camille, Sinha, Cynthia B., Luhanga, Ulemu

“…Hospice and Palliative Medicine (HPM) fellowship training provides education on caring for patients from early childhood through adulthood. Yet, there are few…”
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Proponent or collaborative: Physician perspectives and approaches to disease modifying therapies in sickle cell disease by Bakshi, Nitya, Sinha, Cynthia B, Ross, Diana, Khemani, Kirshma, Loewenstein, George, Krishnamurti, Lakshmanan

“…Sickle cell disease (SCD) is an inherited blood disorder that primarily affects African-American and other ethnic minority populations. There are three…”
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From trust to skepticism: An in-depth analysis across age groups of adults with sickle cell disease on their perspectives regarding hydroxyurea by Sinha, Cynthia B, Bakshi, Nitya, Ross, Diana, Krishnamurti, Lakshmanan

“…Despite its efficacy, the uptake of HU in adults with sickle cell disease (SCD) is poor likely due to a combination of system, provider, and patient-related…”
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Primary caregiver decision‐making in hematopoietic cell transplantation and gene therapy for sickle cell disease by Sinha, Cynthia B., Bakshi, Nitya, Ross, Diana, Loewenstein, George, Krishnamurti, Lakshmanan

“…Background Improved outcomes and the availability of clinical trials of hematopoietic cell transplantation (HCT) from alternate donors and genetically modified…”
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Parental perspective on the risk of infertility and fertility preservation options for children and adolescents with sickle cell disease considering hematopoietic stem cell transplantation by Sinha, Cynthia B., Meacham, Lillian R., Bakshi, Nitya, Ross, Diana, Krishnamurti, Lakshmanan

“…Background Allogeneic hematopoietic stem cell transplantation (HCT) performed in children from human leukocyte antigen (HLA)‐identical related donors is…”
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Management of Chronic Pain in Adults Living With Sickle Cell Disease in the Era of the Opioid Epidemic: A Qualitative Study by Sinha, Cynthia B, Bakshi, Nitya, Ross, Diana, Krishnamurti, Lakshmanan

“…The hallmark of sickle cell disease (SCD) is vaso-occlusive pain that may be acute and episodic or may progress to chronic, persistent pain with unpredictable…”
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Improving well-being among women in neonatology by Yanni, Diana, Scheid, Annette, Sinha, Cynthia B, Ramsey, Kara Wong, Hempel, Bridget, Hubbard, Dena, Pappagallo, Mariann, Vargas, Laura, Gowda, Sharada, Savich, Renate, Dammann, Christiane, Vyas-Read, Shilpa

“…To evaluate the factors that improve professional and personal well-being amongst women in neonatology (WiN). A 30-question survey of multiple choice, rank…”
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Multimodal phenotyping and correlates of pain following hematopoietic cell transplant in children with sickle cell disease by Bakshi, Nitya, Astles, Rachel, Chou, Eric, Hurreh, Asha, Sil, Soumitri, Sinha, Cynthia B, Sanders, Kolanda Ackey, Peddineni, Manasa, Gillespie, Scott E, Keesari, Rohali, Krishnamurti, Lakshmanan

“…Introduction There is limited understanding of pain, patient‐reported outcomes (PROs) of health‐related quality of life (HRQoL), psychological factors, and…”
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Toward better outcome measurement for insomnia in children with autism spectrum disorder by Scahill, Lawrence, Lecavalier, Luc, Edwards, Michael C, Wenzell, Megan L, Barto, Leah M, Mulligan, Arielle, Williams, Auscia T, Ousley, Opal, Sinha, Cynthia B, Taylor, Christopher A, Youn Kim, Soo, Johnson, Laura M, Gillespie, Scott E, Johnson, Cynthia R

“…This report presents a new parent-rated outcome measure of insomnia for children with autism spectrum disorder. Parents of 1185 children with autism spectrum…”
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Patient and family experience with chronic transfusion therapy for sickle cell disease: A qualitative study by Hawkins, Lauren M, Sinha, Cynthia B, Ross, Diana, Yee, Marianne E M, Quarmyne, Maa-Ohui, Krishnamurti, Lakshmanan, Bakshi, Nitya

“…There is a limited understanding of the patient and family experience of Chronic Transfusion Therapy (CTT) for prevention of complications of Sickle Cell…”
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Decision-making about gene therapy in transfusion dependent thalassemia by Quarmyne, Maa-Ohui, Ross, Diana, Sinha, Cynthia, Bakshi, Nitya, Boudreaux, Jeanne, Krishnamurti, Lakshmanan

“…Hematopoietic stem cell transplantation (HSCT) is a treatment option with curative intent for patients with transfusion dependent thalassemia (TDT) but its…”
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Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease: A Qualitative Study by Bakshi, Nitya, Katoch, Deeksha, Sinha, Cynthia B, Ross, Diana, Quarmyne, Maa-Ohui, Loewenstein, George, Krishnamurti, Lakshmanan

“…Bone marrow transplant (BMT) is a potentially curative treatment for sickle cell disease (SCD). Patient and caregiver attitudes toward BMT for SCD and the…”
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A pilot study of the acceptability, feasibility and safety of yoga for chronic pain in sickle cell disease by Bakshi, Nitya, Cooley, Anthony, Ross, Diana, Hawkins, Lauren, Sullivan, Marlysa, Astles, Rachel, Sinha, Cynthia, Katoch, Deeksha, Peddineni, Manasa, Gee, Beatrice E., Lane, Peter A., Krishnamurti, Lakshmanan

“…•Patients with SCD and chronic pain have a positive opinion of yoga.•There are barriers to feasibilty of an in-person group yoga intervention for chronic pain…”
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A Decision Support Tool for Allogeneic Hematopoietic Stem Cell Transplantation for Children With Sickle Cell Disease: Acceptability and Usability Study by Veludhandi, Anirudh, Ross, Diana, Sinha, Cynthia B, McCracken, Courtney, Bakshi, Nitya, Krishnamurti, Lakshmanan

“…Background: Individuals living with sickle cell disease (SCD) may benefit from a variety of disease-modifying therapies, including hydroxyurea, voxelotor,…”
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Constructing the Transition to Parenthood by LaRossa, Ralph, Sinha, Cynthia B.

“…How is the transition to parenthood constructed in a context in which fatherhood and motherhood are therapeutically defined? Relying on ethnographic…”
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1946-LB: Patterns of Insulin Discontinuation in Youth with New-Onset Type 2 Diabetes by Hao, Shuai, Westbrook, Adrianna, Sinha, Cynthia B, Hsia, Daniel S, Vellanki, Priyathama

“…Heterogeneity in the clinical course of T2D in youth presenting with and without diabetic ketoacidosis (DKA) at diagnosis is not well described. In this study,…”
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Educational needs of patients and caregivers living with sickle cell disease results in development of web‐based patient decision aid by Ross, Diana, Sinha, Cynthia, Bakshi, Nitya, Krishnamurti, Lakshmanan

“…Aims We performed an assessment to understand perceived decisional needs among those living with sickle cell disease. Additionally, we desired understanding of…”
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Parental perspective on the risk of infertility and fertility preservation options for children and adolescents with SCD considering HCT by Sinha, Cynthia B., Meacham, Lillian R, Bakshi, Nitya, Ross, Diana, Krishnamurti, Lakshmanan

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The Influence of the Age of Adults with Sickle Cell Disease on the Uptake, Utilization and Efficacy of Hydroxyurea by Sinha, Cynthia, Bakshi, Nitya, Ross, Diana, Krishnamurti, Lakshmanan

“…Background Despite the efficacy of Hydroxyurea (HU) in decreasing morbidity and mortality in adults with sickle cell disease (SCD) the uptake of and adherence…”
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A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease by Matthie, Nadine, Ross, Diana, Sinha, Cynthia, Khemani, Kirshma, Bakshi, Nitya, Krishnamurti, Lakshmanan

“…Acute, intermittent vaso-occlusive pain is the hallmark of sickle cell disease (SCD) and is associated with substantial morbidity and impaired quality of life…”
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