Search Results - "Simoncelli, Tania"
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From Bedside to Bench and Back
Published in Issues in science and technology (03-07-2023)“…Research that is driven by patients with rare diseases is producing faster discoveries and treatments—and challenging long-held assumptions about knowledge…”
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Dangerous Excursions: The Case Against Expanding Forensic DNA Databases to Innocent Persons
Published in The Journal of law, medicine & ethics (22-06-2006)“…Recent expansions of federal and state law enforcement databanks to include DNA samples and profiles of innocent persons threaten individual privacy, impose…”
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Building Capacity for a Global Genome Editing Observatory: Conceptual Challenges
Published in Trends in biotechnology (Regular ed.) (01-07-2018)“…A new infrastructure is urgently needed at the global level to facilitate exchange on key issues concerning genome editing. We advocate the establishment of a…”
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Testing Pesticides in Humans: Of Mice and Men Divided by Ten
Published in JAMA : the journal of the American Medical Association (06-06-2007)“…Breaking with a long tradition in the ethics of human experimentation that distinguished therapeutic from nontherapeutic agents, the Environmental Protection…”
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Building Capacity for a Global Genome Editing Observatory: Institutional Design
Published in Trends in biotechnology (Regular ed.) (01-08-2018)“…A new infrastructure is urgently needed at the global level to facilitate exchange on key issues concerning genome editing. We advocate the establishment of a…”
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The Metastatic Prostate Cancer project (MPCproject): Translational genomics through direct patient engagement
Published in Journal of clinical oncology (20-02-2018)“…Abstract only 279 Background: While there has been substantial advancement in the genomic understanding of metastatic prostate cancer (MPC), there is still…”
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The Prostate Cancer Project (PC Project): Translational genomics through direct patient engagement
Published in Journal of clinical oncology (20-02-2017)“…Abstract only 199 Background: While there has been substantial advancement in the genomic understanding of prostate cancer (PCa), there is still much to be…”
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Creating a data resource: what will it take to build a medical information commons?
Published in Genome medicine (22-09-2017)“…National and international public-private partnerships, consortia, and government initiatives are underway to collect and share genomic, personal, and…”
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Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons
Published in The Journal of law, medicine & ethics (01-03-2019)“…Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community…”
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California's Proposition 69: A Dangerous Precedent for Criminal DNA Databases
Published in The Journal of law, medicine & ethics (22-06-2006)“…On November 2, 2004, California voters elected to radically expand their state criminal DNA database through the passage of Proposition 69. The approved ballot…”
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California's Proposition 69: A Dangerous Precedent for Criminal DNA Databases
Published in The Journal of law, medicine & ethics (22-06-2005)“…On November 2, 2004, California voters approved Proposition 69, “The DNA Fingerprint, Unsolved Crime, and Innocence Protection Act” by a margin of…”
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Expanding databases, declining liberties
Published in Genewatch (01-01-2006)Get more information
Magazine Article -
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Spiralling Out of Control
Published in Index on censorship (01-08-2005)“…Simoncelli and Wallace discuss how the widening net cast by rapidly expanding DNA databases catches the innocent with the guilty, and scoops up whole families…”
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