Search Results - "Shipman, Kelly"

Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children With Severe Neurological Impairment During Decision-Making by Bogetz, Jori F., Trowbridge, Amy, Lewis, Hannah, Shipman, Kelly J., Jonas, Danielle, Hauer, Julie, Rosenberg, Abby R.

“…Parents of children with severe neurologic impairment (SNI) often face high-stakes medical decisions when their child is hospitalized. These decisions involve…”
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Life with pediatric home ventilation: Expectations versus experience by Henderson, Carrie M., Raisanen, Jessica C., Shipman, Kelly J., Jabre, Nicholas A., Wilfond, Benjamin S., Boss, Renee D.

“…Objectives To explore the family experience of home ventilation through a comparison of anticipated home life changes with subsequent experiences. Study Design…”
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Barriers and facilitators of the return‐to‐school process affecting adolescent recipients of allogeneic hematopoietic cell transplantation: A qualitative interview study of caregivers by Bhatt, Neel S., Shipman, Kelly J., Rosenberg, Abby R., Jenssen, Kari M., Ballard, Sheri A., Baker, Kevin Scott, Barton, Krysta S.

“…Background Adolescent hematopoietic cell transplant (HCT) recipients remain out of school for a prolonged period of time; navigating their return to school…”
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Parent perspectives on facilitating decision‐making around pediatric home ventilation by Jabre, Nicholas A., Raisanen, Jessica C., Shipman, Kelly J., Henderson, Carrie M., Boss, Renee D., Wilfond, Benjamin S.

“…Rationale Deciding about pediatric home ventilation is exceptionally challenging for parents. Understanding the decision‐making needs of parents who made…”
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A Randomized Trial Evaluating the Prophylactic Activity of DSM265 Against Preerythrocytic Plasmodium falciparum Infection During Controlled Human Malarial Infection by Mosquito Bites and Direct Venous Inoculation by Murphy, Sean C, Duke, Elizabeth R, Shipman, Kelly J, Jensen, Ryan L, Fong, Youyi, Ferguson, Sue, Janes, Holly E, Gillespie, Kevin, Seilie, Annette M, Hanron, Amelia E, Rinn, Laurie, Fishbaugher, Matthew, VonGoedert, Tracie, Fritzen, Emma, Kappe, Stefan H, Chang, Ming, Sousa, Jason C, Marcsisin, Sean R, Chalon, Stephan, Duparc, Stephan, Kerr, Nicola, Möhrle, Jörg J, Andenmatten, Nicole, Rueckle, Thomas, Kublin, James G

“…Abstract Background DSM265 is a selective inhibitor of Plasmodium dihydroorotate dehydrogenase that fully protected against controlled human malarial infection…”
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Home mechanical ventilation for children with severe neurological impairment: Parents' perspectives on clinician counselling by Bogetz, Jori F., Munjapara, Vasu, Henderson, Carrie M., Raisanen, Jessica C., Jabre, Nicholas A., Shipman, Kelly J., Wilfond, Benjamin S., Boss, Renee D.

“…Aim To retrospectively explore the perspectives of parents of children with severe neurological impairment (SNI), such as those with severe cerebral palsy,…”
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Strengthening the Therapeutic Alliance Between Parents of Children with Severe Neurologic Impairment and Healthcare Providers During Critical Decision-Making (T315B) by Bogetz, Jori F., Lewis, Hannah, Shipman, Kelly J., Jonas, Danielle, Trowbridge, Amy C., Rosenberg, Abby R.

“…Objectives 1. Recognize the barriers to developing a therapeutic alliance between parents of children with severe neurologic impairment (SNI) and…”
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Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation by Vo, Holly Hoa, Wilfond, Benjamin S., Ding, Yuanyuan, Henderson, Carrie M., Raisanen, Jessica C., Ashwal, Gary, Thomas, Alex, Jabre, Nicholas A., Shipman, Kelly J., Schrooten, Ann, Shaffer, Jennifer, Boss, Renee D.

“…The decision to initiate pediatric mechanical ventilation via tracheostomy (“home ventilation”) is complex and parents often desire information from other…”
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"What Would Give Her the Best Life?": Understanding Why Families Decline Pediatric Home Ventilation by Shipman, Kelly J, Mercer, Amanda H, Raisanen, Jessica C, Jabre, Nicholas A, Vo, Holly Hoa, Miles, Alison, Shepard, Jennifer, Henderson, Carrie M, Boss, Renee D, Wilfond, Benjamin S

“…Families who must decide about pediatric home ventilation rely on the clinicians who counsel them for guidance. Most studies about pediatric home ventilation…”
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Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings by Duenas, Devan M., Shipman, Kelly J., Porter, Kathryn M., Shuster, Elizabeth, Guerra, Claudia, Reyes, Ana, Kauffman, Tia L., Hunter, Jessica Ezzell, Goddard, Katrina A.B., Wilfond, Benjamin S., Kraft, Stephanie A.

“…Understanding the motivations and concerns of patients from diverse populations regarding participation in implementation research provides the needed evidence…”
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Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development by Smith, Hadley Stevens, Morain, Stephanie R., Robinson, Jill Oliver, Canfield, Isabel, Malek, Janet, Rubanovich, Caryn Kseniya, Bloss, Cinnamon S., Ackerman, Sara L., Biesecker, Barbara, Brothers, Kyle B., Goytia, Crispin N., Horowitz, Carol R., Knight, Sara J., Koenig, Barbara, Kraft, Stephanie A., Outram, Simon, Rini, Christine, Shipman, Kelly J., Waltz, Margaret, Wilfond, Benjamin, McGuire, Amy L.

“…Background and Objectives Successful clinical integration of genomic sequencing (GS) requires evidence of its utility. While GS potentially has benefits…”
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Exploring Ethical Concerns About Human Challenge Studies: A Qualitative Study of Controlled Human Malaria Infection Study Participants' Motivations and Attitudes by Kraft, Stephanie A., Duenas, Devan M., Kublin, James G., Shipman, Kelly J., Murphy, Sean C., Shah, Seema K.

“…Controlled human malaria infection (CHMI) studies deliberately infect healthy participants with malaria to test interventions faster and more efficiently. Some…”
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Assessment of Resilience Training for Hospital Employees in the Era of COVID-19 by Yi-Frazier, Joyce P., O’Donnell, Maeve B., Adhikari, Elizabeth A., Zhou, Chuan, Bradford, Miranda C., Garcia-Perez, Samantha, Shipman, Kelly J., Hurtado, Samantha E., Junkins, Courtney C., O’Daffer, Alison, Rosenberg, Abby R.

“…Importance Health care workers face serious mental health challenges as a result of ongoing work stress. The COVID-19 pandemic exacerbated that stress,…”
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Engaging Patient Advisory Committees to Inform a Genomic Cancer Risk Study: Lessons for Future Efforts by Lindberg, Nangel M, Mittendorf, Kathleen F, Duenas, Devan M, Anderson, Katherine, Koomas, Alyssa, Kraft, Stephanie A, Okuyama, Sonia, Shipman, Kelly J, Vandermeer, Meredith L, Goddard, Katrina AB, Wilfond, Benjamin S, McMullen, Carmit

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Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study by Kraft, Stephanie A., Porter, Kathryn M., Duenas, Devan M., Guerra, Claudia, Joseph, Galen, Lee, Sandra Soo-Jin, Shipman, Kelly J., Allen, Jake, Eubanks, Donna, Kauffman, Tia L., Lindberg, Nangel M., Anderson, Katherine, Zepp, Jamilyn M., Gilmore, Marian J., Mittendorf, Kathleen F., Shuster, Elizabeth, Muessig, Kristin R., Arnold, Briana, Goddard, Katrina A.B, Wilfond, Benjamin S.

“…Background: Clinical genomic implementation studies pose challenges for informed consent. Consent forms often include complex language and concepts, which can…”
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Multiplex, DNase-free one-step reverse transcription PCR for Plasmodium 18S rRNA and spliced gametocyte-specific mRNAs by Hanron, Amelia E, Billman, Zachary P, Seilie, Annette M, Olsen, Tayla M, Fishbaugher, Matthew, Chang, Ming, Rueckle, Thomas, Andenmatten, Nicole, Greenhouse, Bryan, Arinaitwe, Emmanuel, Rek, John, Das, Smita, Domingo, Gonzalo J, Shipman, Kelly, Kappe, Stefan H, Kublin, James G, Murphy, Sean C

“…Plasmodium gametocytes are sexual stages transmitted to female Anopheles mosquitoes. While Plasmodium parasites can be differentiated microscopically on…”
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“There Is No Good Decision”: Understanding Why Parents Decline Home Mechanical Ventilation for Their Children (FR264) by Shipman, Kelly, Mercer, Amanda, Boss, Renee, Henderson, Carrie, Wilfond, Benjamin

“…Outcomes 1. Identify key reasons supporting a family decision that have implications for clinician partnership in goals-of-care conversations about…”
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Return to School Challenges Affecting Adolescent Recipients of Allogeneic Hematopoietic Cell Transplantation: A Qualitative Interview Study of Caregivers by Bhatt, Neel S., Shipman, Kelly J., Rosenberg, Abby R., Jenssen, Kari M., Baker, K. Scott, Ballard, Sheri A., Barton, Krysta S.

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Family Experiences Deciding For and Against Pediatric Home Ventilation by Boss, Renee D., Henderson, Carrie M., Raisanen, Jessica C., Jabre, Nicholas A., Shipman, Kelly, Wilfond, Benjamin S.

“…To understand what considerations drive family decisions for, and against, pediatric home ventilation. Qualitative interviews with parents of children who…”
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Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions by Bogetz, Jori F., Strub, Bryan, Bradford, Miranda C., McGalliard, Julie, Shipman, Kelly, Jeyte, Astan, Patneaude, Arika, Johnston, Emily E., Ananth, Prasanna, Thienprayoon, Rachel, Rosenberg, Abby R.

“…Limited data exists about care received by children with complex chronic conditions (CCCs) in the final years of their disease and end-of-life (EOL). To…”
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