Search Results - "Shaw, Karen L."

The elements of end-of-life care provision in paediatric intensive care units: a systematic integrative review by Adistie, Fanny, Neilson, Susan, Shaw, Karen L, Bay, Betul, Efstathiou, Nikolaos

“…Deaths in paediatric intensive care units (PICUs) are not uncommon. End-of-life care in PICUs is generally considered more challenging than other settings…”
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A prospective randomised controlled mixed-methods pilot study of home monitoring in adults with cystic fibrosis by Nash, Edward F., Choyce, Jocelyn, Carrolan, Victoria, Justice, Edwin, Shaw, Karen L., Sitch, Alice, Mistry, Hema, Whitehouse, Joanna L.

“…Background: Home monitoring (HM) is able to detect more pulmonary exacerbations (PEx) than routine care (RC) in individuals with cystic fibrosis (CF), but…”
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The Role of Pharmacists in Caring for Young People With Chronic Illness by Gray, Nicola J., Ph.D, Shaw, Karen L., Ph.D, Smith, Felicity J., Ph.D, Burton, Jonathan, Prescott, Julie, Ph.D, Roberts, Rachel, Ph.D, Terry, David, Ph.D, McDonagh, Janet E., M.D., M.B.B.S

“…Abstract Purpose To explore the perceived and potential roles of pharmacists in the care of young people aged 10–24 years with chronic illness, through the…”
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An evaluation of the impact of the Gold Standards Framework on collaboration in end-of-life care in nursing homes. A qualitative and quantitative evaluation by Badger, Frances, Plumridge, Gillian, Hewison, Alistair, Shaw, Karen L., Thomas, Keri, Clifford, Collette

“…In the United Kingdom approaching 20% of people aged 85 years and over live in care homes and most will die there. Improving end-of-life care is a government…”
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‘A confident parent breeds a confident child’: Understanding the experience and needs of parents whose children will transition from paediatric to adult care by Shaw, Karen L, Baldwin, Lydia, Heath, Gemma

“…Transitional care for young people with long-term conditions emphasizes the importance of supporting parents, particularly in relation to promoting adolescent…”
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Adolescent rheumatology transition care in the UK by McDonagh, Janet E, Shaw, Karen L

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Integrating patient and public involvement and engagement in translational medicine by Shaw, Karen L, Calvert, Melanie J, Borrow, Persephone, Chakera, Evelyn, Chakraverty, Ronjon, Hughes, Sarah E, Khatsuria, Foram, Kinsella, Francesca A M, McMullan, Christel, Richardson-Abraham, Julie, Yarosh, Vlada, Aiyegbusi, Olalekan Lee

“…[...]despite the successful development of effective COVID-19 vaccines, the complex issue of vaccine hesitancy revealed the crucial role of social determinants…”
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Is children's choice in health care rhetoric or reality? A scoping review by Coad, Jane E., Shaw, Karen L.

“…Title.  Is children’s choice in health care rhetoric or reality? A scoping review. Aim.  This paper is a report of a scoping review examining children and…”
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A prospective pilot study of home monitoring in adults with cystic fibrosis (HOME-CF): protocol for a randomised controlled trial by Choyce, Jocelyn, Shaw, Karen L, Sitch, Alice J, Mistry, Hema, Whitehouse, Joanna L, Nash, Edward F

“…Home monitoring has the potential to detect early pulmonary exacerbations in people with cystic fibrosis (CF), with consequent improvements in health outcomes…”
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Prognostic indicators for children and young people at the end of life: A Delphi study by Shaw, Karen L, Brook, Lynda, Cuddeford, Lisa, Fitzmaurice, Nicki, Thomas, Claire, Thompson, Angela, Wallis, Maybelle

“…Background: Recognizing transitions in end of life care for children is difficult and hinders communication and care planning. Aim: To identify the signs and…”
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The Spectrum of Children's Palliative Care Needs: a classification framework for children with life-limiting or life-threatening conditions by Shaw, Karen L, Brook, Lynda, Mpundu-Kaambwa, Christine, Harris, Nicky, Lapwood, Susie, Randall, Duncan

“…This paper examined the potential of a new classification framework, The Spectrum of Children's Palliative Care Needs, to facilitate identification of children…”
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The Role of the Pharmacist in the Support of Young People With Chronic Illness, through the Exemplar of Juvenile Arthritis by Gray, Nicola J., PhD, FSAHM, McDonagh, Janet E., MD, Barker, Catrin, MSc, Burton, Jonathan, BS, Campbell, Roisin, BS, Prescott, Julie, PhD, Shaw, Karen L., PhD, Smith, Felicity J., PhD, Terry, David, PhD

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'Memorable patient deaths': reactions of hospital doctors and their need for support by Moores, Thomas S, Castle, Keri L, Shaw, Karen L, Stockton, Michael R, Bennett, Michael I

“…Objectives  To investigate the reactions experienced by hospital doctors following a recent memorable patient death, defined as a patient death that had…”
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Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis by McDonagh, Janet E., Shaw, Karen L., Southwood, Taunton R.

“…This article describes the development and initial evaluation of an evidence-based transitional care programme recently implemented in a multicentre controlled…”
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The development and initial validation of a questionnaire to measure help‐seeking behaviour in patients with new onset rheumatoid arthritis by Stack, Rebecca J., Mallen, Christian D., Deighton, Chris, Kiely, Patrick, Shaw, Karen L., Booth, Alison, Kumar, Kanta, Thomas, Susan, Rowan, Ian, Horne, Rob, Nightingale, Peter, Herron‐Marx, Sandy, Jinks, Clare, Raza, Karim

“…Background Early treatment for rheumatoid arthritis (RA) is vital. However, people often delay in seeking help at symptom onset. An assessment of the reasons…”
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Arthriting – Insights About the Links Between Identity, Arthritis and Medication in the Blogs of Young People Living with Juvenile Arthritis by Gray, Nicola J., PhD, FSAHM, McDonagh, Janet E., MBBS, Prescott, Julie, PhD, Smith, Felicity J., PhD, Harvey, Kevin, PhD, Shaw, Karen L., PhD, Terry, David, PhD

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Gold Standards Framework in Care Homes and advance care planning by Badger, Frances J, Shaw, Karen L, Hewison, Alistair, Clifford, Collette, Thomas, Keri

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The role of general practitioners in children’s end-of-life care: a survey of preferred involvement by Shaw, Karen L, Badger, Frances J, Brook, Lynda, Brown, Zoeta, Cuddeford, Lisa, Thomas, Keri, Wallis, Maybelle

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Friends United: An Evaluation of an Innovative Residential Self-Management Programme in Adolescent Rheumatology by Hackett, Janine, Johnson, Bernadette, Shaw, Karen L, McDonagh, Janet E

“…Independence in activities of daily living, self-advocacy and peer support are important aspects of adolescent development. These skills are potentially…”
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Health care transition counseling for youth with arthritis: Comment on the article by Scal et al by McDonagh, Janet E., Shaw, Karen L.

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