Search Results - "Schofield, Cara"
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Using Focussed Ethnography to Observe and Understand the Actions and Interactions of People With Prader-Willi Syndrome When They Exercise at a Community Gym: A Protocol
Published in International journal of qualitative methods (01-09-2024)“…Exercise for people with Prader-Willi syndrome (PWS) is important for their health and wellbeing and can provide opportunities for community participation…”
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Progressive resistance training in young people with Prader-Willi syndrome: protocol for a randomised trial (PRESTO)
Published in BMJ open (22-12-2022)“…IntroductionPreliminary evidence suggests that progressive resistance training may be beneficial for people with Prader-Willi Syndrome (PWS), a rare genetic…”
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Using a trauma informed practice framework to enhance understanding of and identify support strategies for behavioural difficulties in young people with Prader-Willi syndrome
Published in Research in developmental disabilities (01-03-2021)“…•A TIP framework can be used to map support for young people with complex needs.•Novel domains specific to PWS aided the development of support…”
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Associations Between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study
Published in Journal of autism and developmental disorders (01-09-2022)“…Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and…”
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Benefits of powered standing wheelchair devices for adolescents with Duchenne muscular dystrophy in the first year of use
Published in Journal of paediatrics and child health (01-09-2020)“…Aim Poorer physical and mental health often accompany loss of walking in Duchenne muscular dystrophy. This study assessed the impacts of powered wheelchair…”
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Daytime sleepiness and emotional and behavioral disturbances in Prader-Willi syndrome
Published in European journal of pediatrics (01-06-2022)“…Individuals with Prader-Willi syndrome (PWS) often have excessive daytime sleepiness and emotional/behavioral disturbances. The objective of this study was to…”
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Requirements for improving health and well‐being of children with Prader‐Willi syndrome and their families
Published in Journal of paediatrics and child health (01-09-2019)“…Prader‐Willi syndrome (PWS) is a rare genetic condition with multi‐system involvement. The literature was reviewed to describe neurodevelopment and the…”
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