Search Results - "Schlenz, Alyssa"
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Implementation of Two Developmental Screening Programs in Sickle Cell Disease Specialty Care
Published in Clinical practice in pediatric psychology (01-06-2023)“…Objective: Developmental screening is a critical component of care for children with sickle cell disease (SCD), who are at elevated risk for neurodevelopmental…”
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Patient and Family Opioid Decision-Making for Pain Management in Sickle Cell Disease: A Qualitative Study
Published in The journal of pain (01-07-2023)“…Pain is a significant symptom experienced frequently by individuals with sickle cell disease (SCD). Pain management includes strategies such as oral…”
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Transcranial Doppler Screening in a Current Cohort of Children With Sickle Cell Anemia: Results From the DISPLACE Study
Published in Journal of pediatric hematology/oncology (01-11-2021)“…Stroke prevention guidelines for sickle cell anemia (SCA) recommend transcranial Doppler (TCD) screening to identify children at stroke risk; however, TCD…”
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Changes in Care Delivery for Children With Sickle Cell Anemia During the COVID-19 Pandemic
Published in Journal of pediatric hematology/oncology (01-11-2021)“…BACKGROUNDSpecialty care for children with sickle cell disease (SCD) may be disrupted during the coronavirus (COVID-19) pandemic. Our DISPLACE consortium…”
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Practice patterns for stroke prevention using transcranial Doppler in sickle cell anemia: DISPLACE Consortium
Published in Pediatric blood & cancer (01-04-2020)“…Background Children with sickle cell anemia (SCA) are at increased risk for stroke. In 2014, the National Heart, Lung, and Blood Institute (NHLBI) developed…”
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Health-related Quality of Life in Children With Sickle Cell Disease Undergoing Chronic Red Cell Transfusion Therapy
Published in Journal of pediatric hematology/oncology (01-05-2019)“…Chronic red cell transfusion (CRCT) therapy is one of few disease-modifying treatments for sickle cell disease (SCD). This study evaluated health-related…”
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Examining Biopsychosocial Factors in Relation to Multiple Pain Features in Pediatric Sickle Cell Disease
Published in Journal of pediatric psychology (01-09-2016)“…To examine biopsychosocial variables in relation to multiple pain features in pediatric sickle cell disease (SCD). 76 children with SCD (M = 14.05, SD = 3.26),…”
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Predictive validity of developmental screening in young children with sickle cell disease: a longitudinal follow‐up study
Published in Developmental medicine and child neurology (01-05-2018)“…Aim To assess the predictive validity of developmental screenings in children with sickle cell disease (SCD) for academic outcomes and stroke risk. Method…”
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Sleep quality and pain in adolescents and young adults with sickle cell disease
Published in Journal of clinical sleep medicine (01-12-2022)“…This study evaluated sleep quality in relation to pain and pain-related impairment in adolescents and young adults with sickle cell disease. The purpose was to…”
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Practice patterns for neuroimaging and transfusion therapy for management of neurologic complications in sickle cell anemia: DISPLACE consortium
Published in Pediatric blood & cancer (01-11-2020)“…Background Children with sickle cell anemia (SCA) are at risk for neurologic complications (stroke and silent cerebral infarct). The 2014 National Heart, Lung,…”
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Changes in Coping, Pain, and Activity After Cognitive-Behavioral Training: A Randomized Clinical Trial for Pediatric Sickle Cell Disease Using Smartphones
Published in The Clinical journal of pain (01-06-2015)“…OBJECTIVES:We examined the outcomes of a cognitive-behavioral therapy (CBT) intervention for pain in pediatric sickle cell disease (SCD) using smartphones as a…”
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Practice Patterns for Addressing Developmental-Behavioral Concerns in Sickle Cell Specialty Care
Published in Clinical practice in pediatric psychology (01-09-2023)“…Objective: Children with sickle cell disease (SCD) are at elevated risk for neurodevelopmental and behavioral disorders. This article describes…”
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Age Differences in Emergency Department Visits and Inpatient Hospitalizations in Preadolescent and Adolescent Youth with Autism Spectrum Disorders
Published in Journal of autism and developmental disorders (01-08-2015)“…This paper evaluated age differences in emergency department care and inpatient hospitalizations in 252 preadolescent and adolescent youth with autism spectrum…”
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Longitudinal Predictors of Pain in Pediatric Sickle Cell Disease
Published in Journal of pediatric psychology (05-07-2023)“…Abstract Objective Despite the identified pathophysiology of vaso-occlusive pain in sickle cell disease (SCD), predictors of pain in youth with SCD remain…”
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Current Methods of Newborn Screening Follow-Up for Sickle Cell Disease Are Highly Variable and without Quality Assurance: Results from the ENHANCE Study
Published in International journal of neonatal screening (01-03-2024)“…Newborn screening (NBS) for sickle cell disease (SCD) has significantly improved childhood survival but there are still gaps resulting in delayed care for…”
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Identifying patterns of neurocognitive dysfunction through direct comparison of children with leukemia, central nervous system tumors, and sickle cell disease
Published in Pediatric blood & cancer (01-06-2023)“…Purpose To quantify and compare the magnitude and type of neurocognitive dysfunction in at‐risk children with central nervous system (CNS) tumors, acute…”
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Incomplete implementation of guideline‐based stroke prevention therapy in sickle cell disease
Published in American journal of hematology (01-09-2018)Get full text
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Barriers and Facilitators to Chronic Red Cell Transfusion Therapy in Pediatric Sickle Cell Anemia
Published in Journal of pediatric hematology/oncology nursing (01-07-2022)“…Background: Chronic red cell transfusion (CRCT) therapy is one of a few effective disease-modifying therapies for children with sickle cell anemia (SCA). CRCT…”
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DISPLACE study shows poor quality of transcranial doppler ultrasound for stroke risk screening in sickle cell anemia
Published in Blood advances (09-07-2024)“…•DISPLACE study shows inconsistencies in the use and reporting of TCD for stroke risk screening in sickle cell anemia in the United States.•A standardized…”
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Modulation of pain in pediatric sickle cell disease: Understanding the balance between endothelin mediated vasoconstriction and apelin mediated vasodilation
Published in Blood cells, molecules, & diseases (01-02-2015)“…Children with sickle cell disease (SCD) have painful vaso-occlusive episodes (VOEs), which often reoccur across the individual's lifespan. Vaso-constrictive…”
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