Search Results - "Schickhardt, Christoph"

German funders' data sharing policies-A qualitative interview study by Anger, Michael, Wendelborn, Christian, Schickhardt, Christoph

“…Data sharing is commonly seen as beneficial for science but is not yet common practice. Research funding agencies are known to play a key role in promoting…”
Get full text

Neither carrots nor sticks? Challenges surrounding data sharing from the perspective of research funding agencies-A qualitative expert interview study by Anger, Michael, Wendelborn, Christian, Winkler, Eva C, Schickhardt, Christoph

“…Data Sharing is widely recognised as crucial for accelerating scientific research and improving its quality. However, data sharing is still not a common…”
Get full text

Physicians' attitudes towards secondary use of clinical data for biomedical research purposes in Germany. Results of a quantitative survey by Köngeter, Anja, Schickhardt, Christoph, Jungkunz, Martin, Mehlis, Katja, Winkler, Eva C

“…For biomedical data-driven research purposes, secondary use of clinical data carries great but largely untapped potential. Physicians' attitudes and their…”
Get full text

Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer by Köngeter, Anja, Schickhardt, Christoph, Jungkunz, Martin, Bergbold, Susanne, Mehlis, Katja, Winkler, Eva C

“…Background Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies…”
Get full text

Data protection-compliant broad consent for secondary use of health care data and human biosamples for (bio)medical research: Towards a new German national standard by Zenker, Sven, Strech, Daniel, Ihrig, Kristina, Jahns, Roland, Müller, Gabriele, Schickhardt, Christoph, Schmidt, Georg, Speer, Ronald, Winkler, Eva, von Kielmansegg, Sebastian Graf, Drepper, Johannes

“…[Display omitted] •A nationally standardized broad consent for long-term secondary use of health data and biosamples was developed.•This consent has been…”
Get full text

Do patients and research subjects have a right to receive their genomic raw data? An ethical and legal analysis by Schickhardt, Christoph, Fleischer, Henrike, Winkler, Eva C

“…As Next Generation Sequencing technologies are increasingly implemented in biomedical research and (translational) care, the number of study participants and…”
Get full text

Applying systems biology to biomedical research and health care: a précising definition of systems medicine by Schleidgen, Sebastian, Fernau, Sandra, Fleischer, Henrike, Schickhardt, Christoph, Oßa, Ann-Kristin, Winkler, Eva C

“…Systems medicine has become a key word in biomedical research. Although it is often referred to as P4-(predictive, preventive, personalized and…”
Get full text

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods by Middleton, Anna, Niemiec, Emilia, Prainsack, Barbara, Bobe, Jason, Farley, Lauren, Steed, Claire, Smith, James, Bevan, Paul, Bonhomme, Natasha, Kleiderman, Erika, Thorogood, Adrian, Schickhardt, Christoph, Garattini, Chiara, Vears, Danya, Littler, Katherine, Banner, Natalie, Scott, Erick, Kovalevskaya, Nadezda V, Levin, Elissa, Morley, Katherine I, Howard, Heidi C

“…Our international study, 'Your DNA, Your Say', uses film and an online cross-sectional survey to gather public attitudes toward the donation, access and…”
Get more information

National standardisierter Broad Consent in der Praxis: erste Erfahrungen, aktuelle Entwicklungen und kritische Betrachtungen by Zenker, Sven, Strech, Daniel, Jahns, Roland, Müller, Gabriele, Prasser, Fabian, Schickhardt, Christoph, Schmidt, Georg, Semler, Sebastian C., Winkler, Eva, Drepper, Johannes

“…Zusammenfassung Hintergrund Die Digitalisierung im Gesundheitswesen verspricht eine Sekundärnutzung von Patientendaten im Sinne eines lernenden…”
Get full text

What is data stewardship? Towards a comprehensive understanding by Wendelborn, Christian, Anger, Michael, Schickhardt, Christoph

“…[Display omitted] Data stewardship is a term that is understood in heterogenous ways. In recent organisational developments and efforts to build…”
Get full text

Promoting Data Sharing: The Moral Obligations of Public Funding Agencies by Wendelborn, Christian, Anger, Michael, Schickhardt, Christoph

“…Sharing research data has great potential to benefit science and society. However, data sharing is still not common practice. Since public research funding…”
Get full text

Secondary Use of Clinical Data in Data-Gathering, Non-Interventional Research or Learning Activities: Definition, Types, and a Framework for Risk Assessment by Jungkunz, Martin, Köngeter, Anja, Mehlis, Katja, Winkler, Eva C, Schickhardt, Christoph

“…Background The secondary use of clinical data in data-gathering, non-interventional research or learning activities (SeConts) has great potential for…”
Get full text

German funders' data sharing policies-A qualitative interview study by Michael Anger, Christian Wendelborn, Christoph Schickhardt

“…BackgroundData sharing is commonly seen as beneficial for science but is not yet common practice. Research funding agencies are known to play a key role in…”
Get full text

Data infrastructures for health research : Ethical framework and legal implementation by Schickhardt, Christoph, Winkler, Eva, Sax, Ulrich, Buchner, Benedikt

“…The role of data infrastructures for health research is not limited to acting as a service or interface for data exchange between data producers and data…”
Get full text

Do Physicians Have a Duty to Support Secondary Use of Clinical Data in Biomedical Research? An Inquiry into the Professional Ethics of Physicians by Jungkunz, Martin, Köngeter, Anja, Winkler, Eva C, Schickhardt, Christoph

“…Secondary use of clinical data in research or learning activities ( ) has the potential to improve patient care and biomedical knowledge. Given this potential,…”
Get more information

Kinder im Wahlrecht und in Demokratien. Für eine elterliche Stellvertreterwahlpflicht by Schickhardt, Christoph

Get full text

Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature by Husedzinovic, Alma, Ose, Dominik, Schickhardt, Christoph, Fröhling, Stefan, Winkler, Eva C

“…The success of biobank-based genomic research is widely dependent on people's willingness to donate their tissue. Thus, stakeholders' opinions should be…”
Get full text

Nationally standardized broad consent in practice: initial experiences, current developments, and critical assessment by Zenker, Sven, Strech, Daniel, Jahns, Roland, Müller, Gabriele, Prasser, Fabian, Schickhardt, Christoph, Schmidt, Georg, Semler, Sebastian C, Winkler, Eva, Drepper, Johannes

“…The digitalization in the healthcare sector promises a secondary use of patient data in the sense of a learning healthcare system. For this, the Medical…”
Get full text

National standardisierter Broad Consent in der Praxis: erste Erfahrungen, aktuelle Entwicklungen und kritische Betrachtungen by Zenker, Sven, Strech, Daniel, Jahns, Roland, Müller, Gabriele, Prasser, Fabian, Schickhardt, Christoph, Schmidt, Georg, Semler, Sebastian C., Winkler, Eva, Drepper, Johannes

Get full text

Haben Krankenhäuser die Pflicht, die sekundäre Forschungsnutzung von Behandlungsdaten zu unterstützen? by Jungkunz, Martin, Winkler, Eva C., Schickhardt, Christoph

“…Zusammenfassung Die sekundäre Forschungsnutzung von Behandlungsdaten hat Potenzial, medizinisches Wissen zu erweitern und die Patientenbehandlung zu…”
Get full text