Parent and Emergency Physician Comfort with a System of On-Line Emergency-Focused Medical Summaries for Infants with Significant Cardiac Disease

Surveys were developed and administered to assess parental comfort with emergency care for children with special health care needs (CSHCN) with cardiac disease and the impact of a web-based database of emergency-focused clinical summaries (emergency information forms-EIF) called Midwest Emergency Me...

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Bibliographic Details
Published in:	Maternal and child health journal Vol. 15; no. 4; pp. 534 - 541
Main Authors:	Pyles, Lee A., Scheid, Margaret, McBrady, Michael P., Hoyman, Kathryn H., Hanse, Molly, Jamrozek, Kathy, Hannan, Jessica C., Baker, Charles M., Duval, Susan J., Moller, James H., Hines, Claudia I.
Format:	Journal Article
Language:	English
Published:	Boston Springer US 01-05-2011 Springer Springer Nature B.V
Subjects:	Cardiovascular disease Cardiovascular diseases Children & youth Childrens health Communication Congenital diseases Consumer Behavior Critical Care Emergency medical care Emergency medical services Emergency medicine Emergency preparedness Emergency Service, Hospital Emergency services Families & family life Female Gynecology Health Care Surveys Health services Heart Heart Diseases - congenital Heart Diseases - physiopathology Hospitals Humans Infant Infants Information systems Internet Male Maternal & child health Maternal and Child Health Medical personnel Medicine Medicine & Public Health Metropolitan areas Ostomy Parenting Parents & parenting Pediatrics Physicians Population Economics Professional-Family Relations Public Health Severity of Illness Index Sociology United States United States Minneapolis Minnesota United States > US Minnesota Emergency information form Congenital heart disease Emergency preparedness Children with special health care needs
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Summary:	Surveys were developed and administered to assess parental comfort with emergency care for children with special health care needs (CSHCN) with cardiac disease and the impact of a web-based database of emergency-focused clinical summaries (emergency information forms-EIF) called Midwest Emergency Medical Services for Children Information System (MEMSCIS) on parental attitudes regarding emergency care of their CSHCN. We hypothesized that MEMSCIS would improve the parent and provider outlook regarding emergencies of young children with heart disease in a randomized controlled trial. Children under age 2 were enrolled in MEMSCIS by study nurses associated with pediatric cardiac centers in a metropolitan area. Parents were surveyed at enrollment and 1 year on a 5-Point Likert Scale. Validity and reliability of the survey were evaluated. Study nurses formulated the emergency-focused summaries with cardiologists. One-hundred-seventy parent subjects, 94 study and 76 control, were surveyed at baseline and 1 year. Parents felt that hospital personnel were well-prepared for emergencies of their children and this improved from baseline 4.07 ± 1.03 to 1 year 4.24 ± 1.04 in study parents who had an EIF for their child and participated in the program ( p = 0.0114) but not control parents. Parents perceived an improved comfort level by pre-hospital ( p = 0.0256) and hospital ( p = 0.0031) emergency personnel related to the MEMSCIS program. The MEMSCIS Program with its emergency-focused web-based clinical summary improved comfort levels for study parents. We speculate that the program facilitated normalization for parents even if the EIF was not used in an emergency during the study. The MEMSCIS program helps to prepare the family and the emergency system for care of CSHCN outside of the medical home.
Bibliography:	ObjectType-Article-2 SourceType-Scholarly Journals-1 ObjectType-Feature-1 content type line 23 ObjectType-Article-1 ObjectType-News-2 ObjectType-Feature-3
ISSN:	1092-7875 1573-6628
DOI:	10.1007/s10995-010-0593-8