The lived experience by patients and family members of extracorporeal membrane oxygenation: A qualitative study

The lived experience by patients and family members of extracorporeal membrane oxygenation: A qualitative study

To examine the lived experience of extracorporeal membrane oxygenation (ECMO) by patients and their families, and their relationship with intensive care clinicians. Semi-structured interviews were conducted with six patients who had received ECMO and with four of their family members. The data were...

Full description

Saved in:
Bibliographic Details
Published in:Intensive & critical care nursing Vol. 73; p. 103307
Main Authors: Minion, Joel T, Mastikhina, Liza, Dowsett, Laura, Egunsola, Oluwaseun, Farkas, Brenlea, Flanagan, Jordyn, Hofmeister, Mark, Salmon, Charleen N C, Taplin, John, Clement, Fiona
Format: Journal Article
Language:English
Published: Netherlands Elsevier Limited 01-12-2022
Subjects:
Acute services
Adult
Adult children
Aftercare
Child
COVID-19
Data analysis
Data collection
Disease control
Extracorporeal membrane oxygenation
Extracorporeal Membrane Oxygenation - adverse effects
Families & family life
Family
Humans
Infections
Intensive care
Interviews
Nurses
Patient Discharge
Patient-centered care
Patients
Physicians
Post traumatic stress disorder
Qualitative research
Relatives
Research methodology
Retrospective Studies
Spouses
Teams
Technology
British Columbia Canada
Canada
Family-centred care
Qualitative research
Lived experience
Intensive care
Patient-centred care
Extracorporeal membrane oxygenation (ECMO)
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:To examine the lived experience of extracorporeal membrane oxygenation (ECMO) by patients and their families, and their relationship with intensive care clinicians. Semi-structured interviews were conducted with six patients who had received ECMO and with four of their family members. The data were analysed narratively using a constant comparative method. Patients were treated at a major acute care hospital in British Columbia between 2014 and 2021. ECMO was used either as a bridge to recovery or to organ transplant. Four had family members bedside throughout, while two had virtual visits due to COVID-19 infection control measures. ECMO was experienced through a triad of relationships between the patient, key family members and key clinicians. The strength, directionality and focus of these relationships shifted during therapy and realigned once ECMO was removed. The largest shift involved family members. Post-ECMO, patients relied almost entirely on spouses, adult children and clinical team members to reconstruct their experience. The connection between families and clinical team members was limited and changed little. The lived experience of ECMO was complex in ways yet to be comprehensively reported in the literature. This technology had particular impact on family members when ECMO was used as a bridge to transplant and where run times extended to multiple weeks. COVID-19 infection control restrictions further complicated how this technology was experienced. Findings from this study highlight the importance of intensive care nurses recognising the critical role family members play as witnesses whose experiences later allow patients to make sense of their journey post-discharge.
Bibliography:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
ISSN:0964-3397
1532-4036
DOI:10.1016/j.iccn.2022.103307