Search Results - "Salek, Sam S"

Equivalence of electronic and paper-based patient-reported outcome measures by Campbell, Niloufar, Ali, Faraz, Finlay, Andrew Y., Salek, Sam S.

“…Aim Electronic formats (ePROs) of paper-based patientreported outcomes (PROs) should be validated before they can be reliably used. This review aimed to…”
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The Psychological Burden of Skin Diseases: A Cross-Sectional Multicenter Study among Dermatological Out-Patients in 13 European Countries by Dalgard, Florence J., Gieler, Uwe, Tomas-Aragones, Lucia, Lien, Lars, Poot, Francoise, Jemec, Gregor B.E., Misery, Laurent, Szabo, Csanad, Linder, Dennis, Sampogna, Francesca, Evers, Andrea W.M., Halvorsen, Jon Anders, Balieva, Flora, Szepietowski, Jacek, Romanov, Dmitry, Marron, Servando E., Altunay, Ilknur K., Finlay, Andrew Y., Salek, Sam S., Kupfer, Jörg

“…The contribution of psychological disorders to the burden of skin disease has been poorly explored, and this is a large-scale study to ascertain the…”
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Validation of the German version of the Family Reported Outcome Measure (FROM-16) to assess the impact of disease on the partner or family member by Elsner, Susanne A, Salek, Sam S, Finlay, Andrew Y, Hagemeier, Anna, Bottomley, Catherine J, Katalinic, Alexander, Waldmann, Annika

“…The Family Reported Outcome Measure (FROM-16) assesses the impact of a patient's chronic illness on the quality of life (QoL) of the patient's partner or…”
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Exploring the EQ-5D Dimension of Pain/Discomfort in Dermatology Outpatients from a Multicentre Study in 13 European Countries by Sampogna, Francesca, Abeni, Damiano, Gieler, Uwe, Tomas Aragones, Lucía, Lien, Lars, Poot, Françoise, Jemec, Gregor B E, Szabó, Csanád, Linder, Dennis, van Middendorp, Henriët, Halvorsen, Jon Anders, Balieva, Flora, Szepietowski, Jacek C, Romanov, Dmitry V, Marron, Servando E, Altunay, Ilknur K, Finlay, Andrew Y, Salek, Sam S, Kupfer, Jörg, Misery, Laurent, Dalgard, Florence J

“…Pain and discomfort are important symptoms in dermatology. The aim of this cross-sectional, multicentre study was to describe the prevalence of pain/discomfort…”
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The Role of Therapy in Impairing Quality of Life in Dermatological Patients: A Multinational Study by Balieva, Flora N, Finlay, Andrew Y, Kupfer, Jörg, Aragones, Lucía Tomas, Lien, Lars, Gieler, Uwe, Poot, Françoise, Jemec, Gregor B E, Misery, Laurent, Kemeny, Lajos, Sampogna, Francesca, van Middendorp, Henriët, Halvorsen, Jon Anders, Ternowitz, Thomas, Szepietowski, Jacek C, Potekaev, Nikolay, Marron, Servando E, Altunay, Ilknur K, Salek, Sam S, Dalgard, Florence J

“…Skin disease and its therapy affect health-related quality of life (HRQoL). The aim of this study was to measure the burden caused by dermatological therapy in…”
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Attachment Styles of Dermatological Patients in Europe: A Multi-centre Study in 13 Countries by Szabó, Csanád, Altmayer, Anita, Lien, Lars, Poot, Françoise, Gieler, Uwe, Tomas-Aragones, Lucía, Kupfer, Jörg, Jemec, Gregor B E, Misery, Laurent, Linder, M Dennis, Sampogna, Francesca, van Middendorp, Henriët, Halvorsen, Jon Anders, Balieva, Flora, Szepietowski, Jacek C, Romanov, Dmitry, Marron, Servando E, Altunay, Ilknur K, Finlay, Andrew Y, Salek, Sam S, Dalgard, Florence

“…Attachment styles of dermatological outpatients and satisfaction with their dermatologists were investigated within the framework of a multicentre study…”
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Quality of life measurement in assessing treatment effectiveness in urticaria: European experts position statement by Chernyshov, Pavel Viktorovich, Tomas-Aragones, Lucia, Zuberbier, Torsten, Kocatürk, Emek, Manolache, Liana, Pustisek, Nives, Svensson, Åke, Marron, Servando E, Sampogna, Francesca, Bewley, Anthony, Salavastru, Carmen, Koumaki, Dimitra, Augustin, Matthias, Linder, Dennis, Abeni, Damiano, Salek, Sam S, Szepietowski, Jacek C, Jemec, Gregor B

“…In this study, the European Academy of Dermatology and Venereology (EADV) Task Forces on Quality of Life and Patient-Oriented Outcomes and Urticaria and…”
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The burden of disease in pyruvate kinase deficiency: Patients’ perception of the impact on health‐related quality of life by Grace, Rachael F., Cohen, Jennifer, Egan, Shayna, Wells, Ted, Witherspoon, Brooke, Ryan, Aisling, Salek, Sam S., Bodie, Susan, Klaassen, Robert J.

“…Objectives This study explored how signs and symptoms of pyruvate kinase (PK) deficiency, a rare hemolytic anemia caused by mutations in the PKLR gene, impacts…”
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Quality of life measurement in vitiligo. Position statement of the European Academy of Dermatology and Venereology Task Force on Quality of Life and Patient Oriented Outcomes with external experts by Chernyshov, Pavel V., Tomas‐Aragones, Lucia, Manolache, Liana, Pustisek, Nives, Salavastru, Carmen Maria, Marron, Servando E., Bewley, Anthony, Svensson, Ake, Poot, Françoise, Suru, Alina, Salek, Sam S., Augustin, Matthias, Szepietowski, Jacek С., Koumaki, Dimitra, Katoulis, Alexander C., Sampogna, Francesca, Abeni, Damiano, Linder, Dennis Michael, Speeckaert, Reinhart, Geel, Nanja, Seneschal, Julien, Ezzedine, Khaled, Finlay, Andrew Y.

“…Members of the European Academy of Dermatology and Venereology (EADV) Task Force on Quality of Life (QoL) and Patient Oriented Outcomes reviewed the…”
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Further insights into the wider impact of childhood atopic dermatitis – Comment on “Burden of childhood atopic dermatitis on parents: Fathers' and mothers' respective feelings” by Mahé et al by Chernyshov, Pavel V., Tomas‐Aragones, Lucia, Linder, Dennis, Bewley, Anthony, Salavastru, Carmen Maria, Marron, Servando E., Manolache, Liana, Pustisek, Nives, Evers, Andrea W. M., Koumaki, Dimitra, Abeni, Damiano, Suru, Alina, Salek, Sam S., Finlay, Andrew Y.

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Impairment of Sexual Life in 3,485 Dermatological Outpatients From a Multicentre Study in 13 European Countries by Sampogna, Francesca, Abeni, Damiano, Gieler, Uwe, Tomas-Aragones, Lucía, Lien, Lars, Titeca, Géraldine, Jemec, Gregor B E, Misery, Laurent, Szabó, Csanád, Linder, M Dennis, Evers, Andrea W M, Halvorsen, Jon Anders, Balieva, Flora, Szepietowski, Jacek C, Romanov, Dmitry V, Marron, Servando E, Altunay, Ilknur K, Finlay, Andrew Y, Salek, Sam S, Kupfer, Jörg, Dalgard, Florence

“…Skin conditions may have a strong impact on patients' sexual life, and thus influence personal relationships. Sexual issues are difficult to discuss directly…”
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Determinants of psychosocial health in psoriatic patients: A multinational study by Lesner, Karolina, Reich, Adam, Szepietowski, Jacek C, Dalgard, Florence, Gieler, Uwe, Tomasaragones, Lucia, Lien, Lars, Poot, Francoise, Jemec, Gregor B, Misery, Laurent, Szabó, Csanád, Linder, Dennis, Sampogna, Francesca, Evers, Andrea W.M, Halvorsen, Jon Anders, Balieva, Flora Nicol, Lvov, Andrey, Marrón, Servando E, Altunay, Ilknur K, Finlay, Andrew Y, Salek, Sam S, Kupfer, Jörg

“…There are limited data on the differences in the impact of psoriasis between various countries with respect to quality of life (QoL). The aim of this study was…”
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A review of the health-related quality of life and economic impact of Parkinson's disease by DOWDING, Clare H, SHENTON, Claire L, SALEK, Sam S

“…Parkinson's disease (PD) is a chronic, neurodegenerative disease that places a substantial burden on patients, their families and carers, as well as on society…”
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Presenting signs and patient co‐variables in Gaucher disease: outcome of the Gaucher Earlier Diagnosis Consensus (GED‐C) Delphi initiative by Mehta, Atul, Kuter, David J., Salek, Sam S., Belmatoug, Nadia, Bembi, Bruno, Bright, Jeremy, vom Dahl, Stephan, Deodato, Federica, Di Rocco, Maja, Göker‐Alpan, Ozlem, Hughes, Derralynn A., Lukina, Elena A., Machaczka, Maciej, Mengel, Eugen, Nagral, Aabha, Nakamura, Kimitoshi, Narita, Aya, Oliveri, Beatriz, Pastores, Gregory, Pérez‐López, Jordi, Ramaswami, Uma, Schwartz, Ida V., Szer, Jeff, Weinreb, Neal J., Zimran, Ari

“…Background Gaucher disease (GD) presents with a range of signs and symptoms. Physicians can fail to recognise the early stages of GD owing to a lack of disease…”
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Psychosocial Aspects of Adult Acne: Data from 13 European Countries by Altunay, Ilknur K, Özkur, Ezgi, Dalgard, Florence J, Gieler, Uwe, Tomas Aragones, Lucía, Lien, Lars, Poot, Françoise, Jemec, Gregor B, Misery, Laurent, Szabó, Csanád, Linder, Dennis, Sampogna, Francesca, Evers, Andrea W M, Halvorsen, Jon Anders, Balieva, Flora, Szepietowski, Jacek C, Romanov, Dmitry V, Marron, Servando E, Finlay, Andrew Y, Salek, Sam, Kupfer, Jörg

“…The link between acne and psychiatric morbidities has been demonstrated in many studies; however, large scale studies aiming to reveal the psychosocial impact…”
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Measuring family impact of skin diseases: FDLQI and FROM-16 by Finlay, Andrew Y, Salek, Sam S, Piguet, Vincent

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Determinants of Psychosocial Health in Psoriatic Patients: A Multi-national Study by Lesner, Karolina, Reich, Adam, Szepietowski, Jacek C, Dalgard, Florence J, Gieler, Uwe, Tomas-Aragones, Lucía, Lien, Lars, Poot, Françoise, Jemec, Gregor B, Misery, Laurent, Szabó, Csanád, Linder, Dennis, Sampogna, Francesca, Evers, Andrea W M, Halvorsen, Jon Anders, Balieva, Flora, Lvov, Andrey, Marron, Servando E, Altunay, Ilknur K, Finlay, Andrew Y, Salek, Sam S, Kupfer, Jörg

“…There are limited data on the differences in the impact of psoriasis between various countries with respect to quality of life (QoL). The aim of this study was…”
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The development and validation of the major life changing decision profile (MLCDP) by Bhatti, Zaheer U, Salek, Sam S, Bolton, Charlotte E, George, Lindsay, Halcox, Julian P, Jones, Sharon M, Ketchell, Ian R, Moore, Richard H, Sabit, Ramsey, Piguet, Vincent, Finlay, Andrew Y

“…Chronic diseases may influence patients taking major life changing decisions (MLCDs) concerning for example education, career, relationships, having children…”
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A review of quality of life in Alzheimer's disease. Part 1: Issues in assessing disease impact by Walker, M D, Salek, S S, Bayer, A J

“…There are numerous methods available for assessing patients with Alzheimer's disease (AD) or other forms of dementia. Quality-of-life (QOL) assessment is…”
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Itch and Mental Health in Dermatological Patients across Europe: A Cross-Sectional Study in 13 Countries by Dalgard, Florence J., Svensson, Åke, Halvorsen, Jon Anders, Gieler, Uwe, Schut, Christina, Tomas-Aragones, Lucia, Lien, Lars, Poot, Francoise, Jemec, Gregor B.E., Misery, Laurent, Szabo, Csanad, Linder, Dennis, Sampogna, Francesca, Koulil, Saskia Spillekom-van, Balieva, Flora, Szepietowski, Jacek C., Lvov, Andrey, Marron, Servando E., Altunay, Ilknur K., Finlay, Andrew Y., Salek, Sam, Kupfer, Jörg

“…Itch is a highly prevalent and multidimensional symptom. We aimed to analyze the association between itch and mental health in dermatological patients. This…”
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