Search Results - "Rowe, Robyn"
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The CARE Principles for Indigenous Data Governance
Published in Data science journal (04-11-2020)“…Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel…”
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Voicing our Realities
Published in Diversity of Research in Health Journal (21-06-2017)“…Promoting empowerment and growth for First Nations mothers is critical when attempting to improve the post-secondary educational attainment of Indigenous…”
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How the commercial virtual care industry gathers, uses and values patient data: a Canadian qualitative study
Published in BMJ open (08-02-2024)“…ObjectivesTo understand and report on the direct-to-consumer virtual care industry in Canada, focusing on how companies collect, use and value patient…”
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The SEEDS of Indigenous population health data linkage
Published in International journal of population data science (22-06-2021)“…Globally, the ways that Indigenous data are collected, used, stored, shared, and analyzed are advancing through Indigenous data governance movements. However,…”
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Traditional healing and medicine in dementia care for indigenous populations in North America, Australia, and New Zealand: A scoping review protocol
Published in Alzheimer's & dementia (01-12-2021)“…Objective In this scoping review we aim to explore approaches to the integration of traditional healing and medicine in dementia care for Indigenous…”
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Traditional healing and medicine in dementia care for Indigenous populations in North America, Australia, and New Zealand: Exploring culturally-safe dementia care policy from a global perspective
Published in Alzheimer's & dementia : diagnosis, assessment & disease monitoring (01-10-2024)“…In 2018, the World Health Organization recognized traditional healers as community stakeholders in dementia care. This scoping review aimed to summarize the…”
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Indigenous Peoples' Data During COVID-19: From External to Internal
Published in Frontiers in sociology (29-03-2021)“…Global disease trackers quantifying the size, spread, and distribution of COVID-19 illustrate the power of data during the pandemic. Data are required for…”
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Describing the process of ethical conduct of research in an Ontario-wide First Nations diabetes research project
Published in Canadian Medical Association journal (CMAJ) (07-11-2018)“…In recent decades, diabetes and related complications have emerged as substantial challenges in First Nations communities in Canada. To advocate for…”
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Identifying and understanding the health and social care needs of Indigenous older adults with multiple chronic conditions and their caregivers: a scoping review
Published in BMC geriatrics (19-04-2020)“…Indigenous people continue to experience high rates of multiple chronic conditions (MCC) at younger ages than other populations, resulting in an increase in…”
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Aligning policy and practice to implement CARE with FAIR through Indigenous Peoples' protocols
Published in Acta borealia (02-07-2024)“…In 2019, members of the Global Indigenous Data Alliance (GIDA) published the CARE Principles (Collective Benefit, Authority to Control, Responsibility, and…”
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Indigenous Peoples' Rights in Data: a contribution toward Indigenous Research Sovereignty
Published in Frontiers in research metrics and analytics (2023)“…Indigenous Peoples' right to sovereignty forms the foundation for advocacy and actions toward greater Indigenous self-determination and control across a range…”
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Planting the S.E.E.D.S of Indigenous Population Health Data Linkage
Published in International journal of population data science (07-12-2020)“…IntroductionThe increasing accessibility of data through digitization and linkage has resulted in Indigenous and allied individuals, scholars, practitioners,…”
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Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group
Published in Wellcome open research (2020)“…The systemic challenges of the COVID-19 pandemic require cross-disciplinary collaboration in a global and timely fashion. Such collaboration needs open…”
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Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group
Published in Wellcome open research (2020)“…The systemic challenges of the COVID-19 pandemic require cross-disciplinary collaboration in a global and timely fashion. Such collaboration needs open…”
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Perspectives on Linkage Involving Indigenous data
Published in International journal of population data science (10-09-2018)“…Topic: Perspectives on Linkage Involving Indigenous dataIndigenous populations across the globe are reaffirming their sovereignty rights in the collection and…”
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The commercialization of patient data in Canada: ethics, privacy and policy
Published in Canadian Medical Association journal (CMAJ) (24-01-2022)“…In Canada, commercial data brokers are currently able to use deidentified patient data from pharmacies, private drug insurers, the federal government and…”
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Exploring Traditional Healing and Medicine in Dementia Care for Indigenous Populations in North America, Australia, and New Zealand: A Policy Advocacy and Practice
Published in Alzheimer's & dementia (01-12-2022)“…Background Access to culturally‐safe dementia assessment, diagnosis, and care in Indigenous populations worldwide is an emerging challenge. In 2018, the World…”
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Implementing High-Quality Primary Care Through a Health Equity Lens
Published in Annals of family medicine (01-03-2022)“…The COVID-19 pandemic highlighted the importance of centering health equity in future health system and primary care reforms. Strengthening primary care will…”
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