US incidence of juvenile dermatomyositis, 1995–1998: Results from the National Institute of Arthritis and Musculoskeletal and Skin Diseases Registry

Objective To estimate the incidence of juvenile dermatomyositis (juvenile DM) in the United States between 1995 and 1998. Methods Physician referrals to the National Institute of Arthritis and Musculoskeletal and Skin Diseases Juvenile Dermatomyositis Research Registry and the National Pediatric Rhe...

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Bibliographic Details
Published in:	Arthritis and rheumatism Vol. 49; no. 3; pp. 300 - 305
Main Authors:	Mendez, Eduardo P., Lipton, Rebecca, Ramsey‐Goldman, Rosalind, Roettcher, Phil, Bowyer, Susan, Dyer, Alan, Pachman, Lauren M.
Format:	Journal Article
Language:	English
Published:	Hoboken Wiley Subscription Services, Inc., A Wiley Company 15-06-2003 Lippincott Williams and Wilkins
Subjects:	Adolescent Biological and medical sciences Capture‐recapture Child Child, Preschool Dermatomyositis - epidemiology Dermatomyositis - ethnology Epidemiology Female Humans Incidence Juvenile dermatomyositis Male Medical sciences National Institutes of Health (U.S.) Registries Registry Sarcoidosis. Granulomatous diseases of unproved etiology. Connective tissue diseases. Elastic tissue diseases. Vasculitis Sex Distribution United States - epidemiology United States North America America Human Immunopathology Connective tissue disease Skin disease Methodology Dermatomyositis Autoimmune disease Registry Epidemiology Incidence Juvenile dermatomyositis Striated muscle disease Capture recapture method Capture-recapture Register Systemic disease Adolescent Child Public health
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Summary:	Objective To estimate the incidence of juvenile dermatomyositis (juvenile DM) in the United States between 1995 and 1998. Methods Physician referrals to the National Institute of Arthritis and Musculoskeletal and Skin Diseases Juvenile Dermatomyositis Research Registry and the National Pediatric Rheumatology Disease Registry from Indiana University were utilized for a 2‐source capture‐recapture estimation of Juvenile DM annual incidence. Results For children 2–17 years of age, the estimated annual incidence rates from 1995 to 1998 in the US ranged from 2.5 to 4.1 juvenile DM cases per million children, and the 4‐year average annual rate was 3.2 per million children (95% confidence interval 2.9–3.4). Estimated annual incidence rates by race were 3.4 for white non‐Hispanics, 3.3 for African American non‐Hispanics, and 2.7 for Hispanics. During the 4‐year period of the study, completeness of ascertainment for the combined registries ranged from 56% to 86% and girls were affected more than boys (ratio 2.3:1). Conclusion This study provides evidence for sex, and possibly racial differences in the risk of juvenile DM in the US.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	0004-3591 0893-7524 1529-0131 1529-0123
DOI:	10.1002/art.11122