Search Results - "Robey, Kenneth"
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Wanted: A vocabulary for talking about involuntary behaviors associated with Lesch‐Nyhan disease
Published in JIMD reports (01-05-2021)“…Lesch‐Nyhan disease (LND) is a rare genetic disorder with an unusual behavioral phenotype that includes severe and involuntary self‐injury requiring the near…”
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Journal Article -
2
Delineation of the motor disorder of Lesch–Nyhan disease
Published in Brain (London, England : 1878) (01-05-2006)“…Lesch–Nyhan disease (LND) is caused by deficiency of the purine salvage enzyme hypoxanthine-guanine phosphoribosyltransferase (HPRT). Affected individuals…”
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Journal Article -
3
Teaching medical students about disability: the use of standardized patients
Published in Academic medicine (01-09-2011)“…Standardized patients (SPs), now a mainstay of the undergraduate medical education experience, are beginning to play larger roles in helping students build…”
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4
Desired educational outcomes of disability-related training for the generalist physician: knowledge, attitudes, and skills
Published in Academic medicine (01-09-2011)“…The problems adults with disabilities face obtaining quality primary care services are persistent and undermine national efforts to improve the health status…”
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Journal Article -
5
Considering the culture of disability in cultural competence education
Published in Academic medicine (01-07-2005)“…Cultural competence extends beyond understanding those values, beliefs, and needs that are associated with patients' age or gender or with their racial,…”
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Journal Article -
6
Implicit Infantilizing Attitudes About Disability
Published in Journal of developmental and physical disabilities (01-12-2006)“…This study serves as a preliminary investigation of implicit (unconscious) attitudes that associate disability with child-like features. A version of the…”
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Journal Article -
7
Teaching health care students about disability within a cultural competency context
Published in Disability and health journal (01-10-2013)“…Abstract The training of health care providers has been identified as key to resolving the health disparities experienced by persons with disabilities. We…”
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Journal Article -
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Fine arts participation, self-determination, and locus of control among persons with developmental disabilities
Published in Arts & health (02-01-2018)“…Background: This study examined the degree to which individuals' sense of self-determination and internal locus of control might be suitable constructs to…”
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Journal Article -
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Identity related to living situation in six individuals with congenital quadriplegia
Published in Disability and rehabilitation (2008)“…Purpose. This study was a preliminary examination of structural aspects of identity, particularly identity associated with living situation, in individuals who…”
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Journal Article -
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Commentary: defining disability in health care education
Published in Academic medicine (01-09-2011)“…According to the 2008 American Community Survey, about 12% of the population of the United States is living with one or more disabling conditions. These…”
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Journal Article -
11
Modes and patterns of self-mutilation in persons with Lesch–Nyhan disease
Published in Developmental medicine and child neurology (01-03-2003)“…Lesch–Nyhan disease (LND) is a rare X-linked recessive genetic disorder associated with cognitive impairment, choreoathetosis, hyperuricemia, and the hallmark…”
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Journal Article -
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Data-driven quality improvement, culture change, and the high reliability journey at a special hospital for people with medically complex developmental disabilities
Published in International journal of healthcare management (03-07-2021)“…The journey towards high-reliability care is challenging for any organization, but particularly so for one whose ethos has historically straddled the…”
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Journal Article -
13
Nursing Students' Self-Attributions of Skill, Comfort, and Approach When Imagining Themselves Caring for Persons with Physical Impairments Due to Developmental Disability
Published in Journal of developmental and physical disabilities (01-12-2001)“…Fifty-two nursing students made self-attributions along a series of scales pertaining to skill level, comfort level, and interpersonal approach when imagining…”
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Journal Article -
14
Structural Examination of Identity in an Individual with Severe Physical Disabilities
Published in Journal of developmental and physical disabilities (01-06-1997)“…This paper explores the use of a structural modeling methodology in examining identity, particularly sources of disability-related identity, in an individual…”
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Journal Article -
15
The Use of Identity Structure Modeling to Examine the Central Role of Musical Experience Within the Self-concept of a Young Woman With Physical Disabilities
Published in Music therapy perspectives (2000)“…Abstract This paper illustrates the usefulness of a methodology for organizing self-reported qualitative information in examining the degree to which the roles…”
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Journal Article -
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Schelling’s Checkerboard and Computer Simulators’ Predictions of Spatial Isolation of Group Homes for Persons with Disabilities
Published in Environmental Contexts and Disability (01-01-2014)“…Abstract Purpose In Schelling’s “checkerboard” model of segregation, individuals’ moderately held preferences about the proportion of their neighbors who are…”
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Book Chapter -
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Arabic Literacy and Secrecy Among the Mende of Sierra Leone
Published in Man (01-06-1986)“…The social uses of Arabic literacy for concealing and manipulating knowledge among the Mende of Sierra Leone are examined. We show that those Mende who are…”
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Journal Article -
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Wanted: A vocabulary for talking about involuntary behaviors associated with Lesch-Nyhan disease
Published in JIMD reports (01-05-2021)“…Lesch-Nyhan disease (LND) is a rare genetic disorder with an unusual behavioral phenotype that includes severe and involuntary self-injury requiring the near…”
Get full text
Report -
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Self-Structure in Schizophrenia
Published in Journal of abnormal psychology (1965) (01-11-1989)“…This study used a set-theoretical model to construct self-perception structures and person-perception structures for 10 recently hospitalized schizophrenic…”
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Journal Article -
20
Modes and patterns of self‐mutilation in persons with Lesch‐Nyhan disease
Published in Developmental medicine and child neurology (01-03-2003)“…Lesch‐Nyhan disease (LND) is a rare X‐linked recessive genetic disorder associated with cognitive impairment, choreoathetosis, hyperuricemia, and the hallmark…”
Get full text
Journal Article