Search Results - "Rinaldi, Eugenia"
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The Children's Hepatic tumors International Collaboration (CHIC): Novel global rare tumor database yields new prognostic factors in hepatoblastoma and becomes a research model
Published in European journal of cancer (1990) (01-01-2016)“…Contemporary state-of-the-art management of cancer is increasingly defined by individualized treatment strategies. For very rare tumors, like hepatoblastoma,…”
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Creation of Standardized Common Data Elements for Diagnostic Tests in Infectious Disease Studies: Semantic and Syntactic Mapping
Published in Journal of medical Internet research (10-06-2024)“…It is necessary to harmonize and standardize data variables used in case report forms (CRFs) of clinical studies to facilitate the merging and sharing of the…”
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The German Corona Consensus Dataset (GECCO): a standardized dataset for COVID-19 research in university medicine and beyond
Published in BMC medical informatics and decision making (21-12-2020)“…The current COVID-19 pandemic has led to a surge of research activity. While this research provides important insights, the multitude of studies results in an…”
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Harmonization and standardization of data for a pan-European cohort on SARS- CoV-2 pandemic
Published in NPJ digital medicine (14-06-2022)“…The European project ORCHESTRA intends to create a new pan-European cohort to rapidly advance the knowledge of the effects and treatment of COVID-19…”
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Towards interoperability in infection control: a standard data model for microbiology
Published in Scientific data (23-09-2023)“…The COVID-19 pandemic has made it clear: sharing and exchanging data among research institutions is crucial in order to efficiently respond to global health…”
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Author Correction: Towards interoperability in infection control: a standard data model for microbiology
Published in Scientific data (20-12-2023)Get full text
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How European Research Projects Can Support Vaccination Strategies: The Case of the ORCHESTRA Project for SARS-CoV-2
Published in Vaccines (Basel) (01-08-2023)“…ORCHESTRA (“Connecting European Cohorts to Increase Common and Effective Response To SARS-CoV-2 Pandemic”) is an EU-funded project which aims to help rapidly…”
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An innovative technological infrastructure for managing SARS-CoV-2 data across different cohorts in compliance with General Data Protection Regulation
Published in Digital health (01-01-2024)“…The ORCHESTRA project, funded by the European Commission, aims to create a pan-European cohort built on existing and new large-scale population cohorts to help…”
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Federated systems for automated infection surveillance: a perspective
Published in Antimicrobial resistance & infection control (27-09-2024)“…Automation of surveillance of infectious diseases-where algorithms are applied to routine care data to replace manual decisions-likely reduces workload and…”
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ISO/TS 21564:2019- based Evaluation of a Semantic Map between Variables in the ISARIC Freestanding Follow Up Survey and ORCHESTRA Studies
Published in Journal of medical systems (14-11-2023)“…The COVID-19 pandemic has led to tremendous investment in clinical studies to generate much-needed knowledge on the prevention, diagnosis, treatment and…”
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Mapping from openEHR to FHIR and OMOP CDM to support interoperability for infection control
Published in GMS Medizinische Informatik, Biometrie und Epidemiologie (01-04-2021)“…Healthcare delivery and health outcomes of patients could significantly improve if the different electronic health systems of medical institutions were…”
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Risk-stratified staging in paediatric hepatoblastoma: a unified analysis from the Children's Hepatic tumors International Collaboration
Published in The lancet oncology (01-01-2017)“…Summary Background Comparative assessment of treatment results in paediatric hepatoblastoma trials has been hampered by small patient numbers and the use of…”
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The importance of age as prognostic factor for the outcome of patients with hepatoblastoma: Analysis from the Children's Hepatic tumors International Collaboration (CHIC) database
Published in Pediatric blood & cancer (01-08-2020)“…Purpose Treatment outcomes for hepatoblastoma have improved markedly in the contemporary treatment era, principally due to therapy intensification, with…”
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Standardized data sharing in a paediatric oncology research network--a proof-of-concept study
Published in Studies in health technology and informatics (2015)“…Data that has been collected in the course of clinical trials are potentially valuable for additional scientific research questions in so called secondary use…”
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The C hildren's H epatic tumors I nternational C ollaboration (CHIC): Novel global rare tumor database yields new prognostic factors in hepatoblastoma and becomes a research model
Published in European journal of cancer (1990) (2015)“…Abstract Introduction Contemporary state-of-the-art management of cancer is increasingly defined by individualized treatment strategies. For very rare tumors,…”
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Privacy-Preserving Workflow for the Cross-Border Federated Analysis of Clinical Data
Published in Studies in health technology and informatics (22-08-2024)“…The motivation behind this research is to perform a privacy-preserving analysis of data located at remote sites and in different jurisdictions with no…”
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