Search Results - "Rae, Charlene"

Screening for distress and needs: Findings from a multinational validation of the Adolescent and Young Adult Psycho‐Oncology Screening Tool with newly diagnosed patients by Patterson, Pandora, D'Agostino, Norma M., McDonald, Fiona E. J., Church, Terry David, Costa, Daniel S. J., Rae, Charlene S., Siegel, Stuart E., Hu, James, Bibby, Helen, Stark, Dan P.

“…Objective Adolescents and young adults (AYAs) diagnosed with cancer commonly experience elevated psychological distress and need appropriate detection and…”
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Factors Associated With Adolescent and Young Adult Females Attending a Fertility Consultation Within 30 Days of a Cancer Diagnosis in Ontario, Canada by Rae, Charlene S, Costa, Andrew, Seow, Hsien, Barr, Ronald D

“…To examine the factors associated with females attending a fertility consultation within 30 days of cancer diagnosis. This is a retrospective cohort study,…”
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Development and Validation of an Indicator for Oncofertility Care in Ontario, Canada, for Adolescents and Young Adults with Cancer by Rae, Charlene S, Barr, Ronald D, Seow, Hsien, Costa, Andrew

“…There is a lack of metrics to monitor and evaluate fertility care in adolescents and young adults with cancer. This study evaluated the indicator "proportion…”
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Mapping maternal and infant health in Morocco: A global scoping review of themes, gaps, and the "unseen" in the published health research literature, 2000-2022 by Amster, Ellen, Jessani, Ghazal, Gupta, Gauri, Hlyva, Oksana, Rae, Charlene

“…Global efforts to reduce Maternal Mortality Rates (MMR) have been significant, but researchers are exploring new approaches to address stalled progress and…”
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Development of System Performance Indicators for Adolescent and Young Adult Cancer Care and Control in Canada by Rae, Charlene S., Pole, Jason D., Gupta, Sumit, Digout, Carol, Szwajcer, David, Flanders, Annette, Srikanthan, Amirrtha, Hammond, Chad, Schacter, Brent, Barr, Ronald D., Rogers, Paul C.

“…To develop an expert-group, consensus-based list of system performance indicators to be used for monitoring, evaluating, and benchmarking progress for cancer…”
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Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—A multicenter study using the FACE‐Q Craniofacial module by Morfouace, Michèle, Hol, Marinka L. F., Schoot, Reineke A., Slater, Olga, Indelicato, Daniel J., Kolb, Frédéric, Smeele, Ludwig E., Merks, Johannes H. M., Rae, Charlene, Maurice‐Stam, Heleen, Klassen, Anne F., Grootenhuis, Martha A.

“…Introduction Adverse events (AE) of treatment are prevalent and diverse in head and neck rhabdomyosarcoma (HNRMS) survivors. These AEs are often reported by…”
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A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research by Hlyva, Oksana, Rae, Charlene, Deibert, Shelby, Kamran, Rakhshan, Shaikh, Haniah, Thabane, Lehana, Rosenbaum, Peter, Klassen, Anne, Lim, Audrey

“…Introduction: Children with medical complexity (CMC) are among the most vulnerable children in society. These children and their families face challenges of…”
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Extending the Range of Measurement for Minimally Invasive Treatments by Adding New Concepts to FACE-Q Aesthetics Scales by Klassen, Anne F, Pusic, Andrea L, Kaur, Manraj, Rae, Charlene, Poulsen, Lotte, Mansouri, Jasmine, Tsangaris, Elena, Dayan, Steven, Klok, Jennifer, Armstrong, Kathleen, Santosa, Katherine, Cano, Stefan

“…The Satisfaction with Face Overall and Psychological Function scales are the most frequently used FACE-Q Aesthetics module scales. This study aimed to extend…”
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Measuring Outcomes Relevant to the Decolletage from the Patient Perspective: Development and Validation of the BODY-Q Decolletage Scale by Klassen, Anne F, Rae, Charlene, Pusic, Andrea L, Kaur, Manraj

“…Abstract Background A range of cosmetic treatments to improve skin quality of the decolletage are available. To measure outcomes from the patient perspective,…”
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Health-related quality of life in the treatment and survivorship phases of breast cancer by Kaur, Manraj, Klassen, Anne, Xie, Feng, Rae, Charlene, Pusic, Andrea

“…Abstract only e18621 Background: Understanding the health-related quality of life (HRQOL) of breast cancer during treatment and survivorship is important;…”
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Effect of onychomycosis and treatment on patient-reported quality-of-life outcomes: A systematic review by Stewart, Claire R., Algu, Leah, Kamran, Rakhshan, Leveille, Cameron F., Abid, Khizar, Rae, Charlene, Lipner, Shari R.

“…Onychomycosis is the most common nail disorder, often causing physical, emotional, and aesthetic consequences. The effect of both the condition itself and…”
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26423 Psychometric properties of patient-reported outcome measures for nail conditions: A systematic review by Kamran, Rakhshan, Algu, Leah, Leveille, Cameron F., Stewart, Claire, Lipner, Shari R., Klassen, Anne, Rae, Charlene

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Impact of Completing Face-Q Craniofacial Module Scales on Children and Young Adults with Facial Differences: An International Study by Gallo, Lucas, Kamran, Rakhshan, Rae, Charlene, Deibert, Shelby, Voineskos, Sophocles H., Wong Riff, Karen W.Y., Klassen, Anne F.

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Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties by Furlong, William, Rae, Charlene, Feeny, David, Ghotra, Satvinder, Breakey, Vicky R., Carter, Teresa, Pai, Nikhil, Pullenayegum, Eleanor, Xie, Feng, Barr, Ronald

“…Health Utilities Preschool (HuPS) was developed to fill the need for a generic preference-based measure (GPM) applicable in early childhood. A GPM has all the…”
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Content Analysis of Patient-Reported Outcome Measures Used in Patients With Nail Conditions: A Systematic Review by Abid, Khizar, Algu, Leah, Kamran, Rakhshan, Leveille, Cameron F, Rae, Charlene, Lipner, Shari R, Klassen, Anne F

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"I Want It to Look Natural": Development and Validation of the FACE-Q Aesthetics Natural Module by Klassen, Anne F, Cano, Stefan, Mansouri, Jasmine, Poulsen, Lotte, Rae, Charlene, Kaur, Manraj, Dayan, Steven, Tsangaris, Elena, Armstrong, Kathleen, Klok, Jennifer, Santosa, Katherine, Pusic, Andrea

“…The concept of "natural" after a facial aesthetic treatment represents an understudied area. We added scales to FACE-Q Aesthetics to provide a means to measure…”
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Further psychometric evaluation of the WOUND‐Q: A responsiveness study by Gallo, Lucas, Rae, Charlene, Voineskos, Sophocles, Simonsen, Nina Vestergaard, Pusic, Andrea L., Poulsen, Lotte, Sørensen, Jens Ahm, Klassen, Anne F., Cano, Stefan J.

“…The WOUND‐Q is a modular patient‐reported outcome measure (PROM) with 13 scales measuring constructs across 4 domains (i.e., wound characteristics, health…”
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Impact of Completing FACE-Q Craniofacial Module Scales on Children and Young Adults with Facial Differences: An International Study by Gallo, Lucas, Kamran, Rakhshan, Rae, Charlene, Deibert, Shelby, Voineskos, Sophocles H., Wong Riff, Karen W. Y., Klassen, Anne F.

“…The FACE-Q Craniofacial Module measures outcomes that matter to patients with diverse craniofacial conditions. However, it is not known whether completing a…”
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Psychometric Validation of the CLEFT-Q Patient Reported Outcome Measure: A Prospective Study to Examine Cross-Sectional Construct Validity by Miroshnychenko, Anna, Rae, Charlene, Riff, Karen Wong, Forrest, Christopher, Goodacre, Tim, Swan, Marc, Slator, Rona, Goldstein, Jesse, Thoma, Achilleas, Harman, Karen, Klassen, Anne

“…Objective CLEFT-Q is a condition-specific patient-reported outcome measure (PROM) for patients with cleft lip and/or palate (CL/P). The aim of this study was…”
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Establishing test-retest reliability and the smallest detectable change of FACE-Q Aesthetic Module scales by Gallo, Lucas, Rae, Charlene, Kim, Patrick J., Voineskos, Sophocles H., Thoma, Achilles, Pusic, Andrea L., Klassen, Anne F., Cano, Stefan J.

“…The test-retest (TRT) reliability of FACE-Q Aesthetic scales is yet to be assessed. The aim of this study was to establish the TRT reliability of 17 FACE-Q…”
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