Search Results - "Pougheon Bertrand, D"
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Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study
Published in Orphanet journal of rare diseases (22-02-2022)“…In France, the cystic fibrosis (CF) care pathway is coordinated by multidisciplinary teams from specialised CF centres or transplant centres. It includes the…”
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A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study
Published in Orphanet journal of rare diseases (18-02-2023)“…The objective of the study was to elaborate a conceptual framework related to the domains of patient experience along the cystic fibrosis (CF) journey from the…”
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Provision of information on transplantation to cystic fibrosis patients and their relatives: Overview of French practices and recommendations
Published in Respiratory medicine and research (01-03-2020)“…How health-care professionals inform cystic fibrosis patients and their relatives about transplantation is not well known. Such information may not be provided…”
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252 Recognition of pulmonary exacerbation (PEX) in adult patients with CF: An educational process to overcome barriers
Published in Journal of cystic fibrosis (01-06-2015)“…Objectives PEX are the main cause of lung function worsening. Early recognition of PEX by patients should improve the management of the disease. The objective…”
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342 Therapeutic patient education and quality improvement program: What synergy?
Published in Journal of cystic fibrosis (01-06-2013)Get full text
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WS19.4 CF quality improvement program: a pilot phase to experiment the US QIP approach in France
Published in Journal of cystic fibrosis (01-06-2012)Get full text
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283 Sizing and financing multidisciplinary resources for CF care in the French healthcare system
Published in Journal of cystic fibrosis (01-06-2012)Get full text
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824 Implementation of patient experience surveys to improve CF care: the ExPaParM-ACTION research study
Published in Journal of cystic fibrosis (01-09-2024)Get full text
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Collaborative research protocol to define patient-reported experience measures of the cystic fibrosis care pathway in France: the ExPaParM study
Published in Orphanet journal of rare diseases (22-02-2022)“…Abstract Introduction In France, the cystic fibrosis (CF) care pathway is coordinated by multidisciplinary teams from specialised CF centres or transplant…”
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