Search Results - "Potter, Beth K."

Reporting guidelines for survey research: an analysis of published guidance and reporting practices by Bennett, Carol, Khangura, Sara, Brehaut, Jamie C, Graham, Ian D, Moher, David, Potter, Beth K, Grimshaw, Jeremy M

“…Research needs to be reported transparently so readers can critically assess the strengths and weaknesses of the design, conduct, and analysis of studies…”
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A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability by Fairfax, Alana, Brehaut, Jamie, Colman, Ian, Sikora, Lindsey, Kazakova, Alessia, Chakraborty, Pranesh, Potter, Beth K

“…Parents of children with chronic illness have reported decreased psychological and physical quality of life (QoL) relative to parents of children without such…”
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A quality assessment of Health Management Information System (HMIS) data for maternal and child health in Jimma Zone, Ethiopia by Ouedraogo, Mariame, Kurji, Jaameeta, Abebe, Lakew, Labonté, Ronald, Morankar, Sudhakar, Bedru, Kunuz Haji, Bulcha, Gebeyehu, Abera, Muluemebet, Potter, Beth K, Roy-Gagnon, Marie-Hélène, Kulkarni, Manisha A

“…Health management information system (HMIS) data are important for guiding the attainment of health targets in low- and middle-income countries. However, the…”
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Development and external validation of machine learning algorithms for postnatal gestational age estimation using clinical data and metabolomic markers by Hawken, Steven, Ducharme, Robin, Murphy, Malia S Q, Olibris, Brieanne, Bota, A Brianne, Wilson, Lindsay A, Cheng, Wei, Little, Julian, Potter, Beth K, Denize, Kathryn M, Lamoureux, Monica, Henderson, Matthew, Rittenhouse, Katelyn J, Price, Joan T, Mwape, Humphrey, Vwalika, Bellington, Musonda, Patrick, Pervin, Jesmin, Chowdhury, A K Azad, Rahman, Anisur, Chakraborty, Pranesh, Stringer, Jeffrey S A, Wilson, Kumanan

“…Accurate estimates of gestational age (GA) at birth are important for preterm birth surveillance but can be challenging to obtain in low income countries. Our…”
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Guidelines for reporting pediatric and child health clinical trial protocols and reports: study protocol for SPIRIT-Children and CONSORT-Children by Baba, Ami, Smith, Maureen, Potter, Beth K, Chan, An-Wen, Moher, David, Offringa, Martin

“…Despite the critical importance of clinical trials to provide evidence about the effects of intervention for children and youth, a paucity of published…”
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Attitudes of undergraduate university women towards HPV vaccination: a cross-sectional study in Ottawa, Canada by Fernandes, Rachel, Potter, Beth K, Little, Julian

“…Persistent infection with certain subtypes of human papillomavirus (HPV) is a necessary cause of cervical cancer. Although two prophylactic vaccines have been…”
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Accurate prediction of gestational age using newborn screening analyte data by Wilson, Kumanan, MD, MSc, FRCPC, Hawken, Steven, PhD, Potter, Beth K., PhD, Chakraborty, Pranesh, MD, FRCPC, FCCMG, Walker, Mark, MD, FRCS(C), MSc(epi), MScHCM, Ducharme, Robin, MSc, Little, Julian, MA, PhD

“…Background Identification of preterm births and accurate estimates of gestational age for newborn infants is vital to guide care. Unfortunately, in developing…”
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Pregnancies with 'double-positive' multiple marker screening results: a population-based study in Ontario, Canada by Bellai-Dussault, Kara, Dougan, Shelley D, Fell, Deshayne B, Hawken, Steven, Huang, Tianhua, Venegas, Carolina Lavin, Little, Julian, Meng, Lynn, Okun, Nan, Walker, Mark, Armour, Christine M, Potter, Beth K

“…Multiple marker screening is offered to pregnant individuals in many jurisdictions to screen for trisomies 21 and 18. On occasion, the result is…”
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Stakeholder perspectives on clinical research related to therapies for rare diseases: therapeutic misconception and the value of research by Tingley, Kylie, Coyle, Doug, Graham, Ian D, Chakraborty, Pranesh, Wilson, Kumanan, Potter, Beth K

“…For many rare diseases, few treatments are supported by strong evidence. Patients, family members, health care providers, and policy-makers thus have to…”
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Maternal weight and paediatric health use: mediating role of adverse birth outcomes: a retrospective cohort study by Currie, Lisa M, Brown, Hilary K, Potter, Beth K, Hawken, Steven, Coyle, Doug, Wen, Shi Wu, Walker, Mark, Gaudet, Laura

“…Maternal pre-pregnancy body mass index (BMI) and gestational weight gain (GWG) above or below recommendations have been associated with increased paediatric…”
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Review of clinical trials and guidelines for children and youth with mucopolysaccharidosis: outcome selection and measurement by Howie, Alison H, Tingley, Kylie, Inbar-Feigenberg, Michal, Mitchell, John J, Angel, Kim, Gentle, Jenifer, Smith, Maureen, Offringa, Martin, Butcher, Nancy J, Campeau, Philippe M, Chakraborty, Pranesh, Chan, Alicia, Fergusson, Dean, Mamak, Eva, McClelland, Peyton, Mercimek-Andrews, Saadet, Mhanni, Aizeddin, Moazin, Zeinab, Rockman-Greenberg, Cheryl, Rupar, C Anthony, Skidmore, Becky, Stockler, Sylvia, Thavorn, Kednapa, Wyatt, Alexandra, Potter, Beth K

“…To inform the development of a core outcome set (COS) for children and youth with mucopolysaccharidoses (MPS), we aimed to identify all outcomes and associated…”
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Screening for depression among the general adult population and in women during pregnancy or the first-year postpartum: two systematic reviews to inform a guideline of the Canadian Task Force on Preventive Health Care by Beck, Andrew, Hamel, Candyce, Thuku, Micere, Esmaeilisaraji, Leila, Bennett, Alexandria, Shaver, Nicole, Skidmore, Becky, Colman, Ian, Grigoriadis, Sophie, Nicholls, Stuart Gordon, Potter, Beth K., Ritchie, Kerri, Vasa, Priya, Shea, Beverley J., Moher, David, Little, Julian, Stevens, Adrienne

“…Abstract Background Depression affects an individual’s physical health and mental well-being and, in pregnant and postpartum women, has specific adverse short-…”
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Psychosocial Response to Uncertain Newborn Screening Results for Cystic Fibrosis by Hayeems, Robin Z., ScM, PhD, Miller, Fiona A., PhD, Barg, Carolyn J., MSc, Bombard, Yvonne, PhD, Carroll, June C., MD, Tam, Karen, ScM, Kerr, Elizabeth, PhD, Chakraborty, Pranesh, MD, Potter, Beth K., PhD, Patton, Sarah, MA, Bytautas, Jessica P., MSc, Taylor, Louise, NP, Davies, Christine, MSc, Milburn, Jennifer, MHA, Price, April, MD, Gonska, Tanja, MD, Keenan, Katherine, BSc, Ratjen, Felix, MD, PhD, Guttmann, Astrid, MDCM, MSc

“…Objective To explore the psychosocial implications of diagnostic uncertainty that result from inconclusive results generated by newborn bloodspot screening…”
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Utilization of key preventive measures for pregnancy complications and malaria among women in Jimma Zone, Ethiopia by Ouedraogo, Mariame, Kurji, Jaameeta, Abebe, Lakew, Labonté, Ronald, Morankar, Sudhakar, Bedru, Kunuz Haji, Bulcha, Gebeyehu, Abera, Muluemebet, Potter, Beth K, Roy-Gagnon, Marie-Hélène, Kulkarni, Manisha A

“…In Ethiopia, malaria infections and other complications during pregnancy contribute to the high burden of maternal morbidity and mortality. Preventive measures…”
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Family‐centred care interventions for children with chronic conditions: A scoping review by Chow, Andrea J., Saad, Ammar, Al‐Baldawi, Zobaida, Iverson, Ryan, Skidmore, Becky, Jordan, Isabel, Pallone, Nicole, Smith, Maureen, Chakraborty, Pranesh, Brehaut, Jamie, Cohen, Eyal, Dyack, Sarah, Gillis, Jane, Goobie, Sharan, Greenberg, Cheryl R., Hayeems, Robin, Hutton, Brian, Inbar‐Feigenberg, Michal, Jain‐Ghai, Shailly, Khangura, Sara, MacKenzie, Jennifer J., Mitchell, John J., Moazin, Zeinab, Nicholls, Stuart G., Pender, Amy, Prasad, Chitra, Schulze, Andreas, Siriwardena, Komudi, Sparkes, Rebecca N., Speechley, Kathy N., Stockler, Sylvia, Taljaard, Monica, Teitelbaum, Mari, Trakadis, Yannis, Van Karnebeek, Clara, Walia, Jagdeep S., Wilson, Kumanan, Potter, Beth K.

“…Introduction Children with chronic conditions have greater health care needs than the general paediatric population but may not receive care that centres their…”
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Outcomes in pediatric studies of medium-chain acyl-coA dehydrogenase (MCAD) deficiency and phenylketonuria (PKU): a review by Pugliese, Michael, Tingley, Kylie, Chow, Andrea, Pallone, Nicole, Smith, Maureen, Rahman, Alvi, Chakraborty, Pranesh, Geraghty, Michael T, Irwin, Julie, Tessier, Laure, Nicholls, Stuart G, Offringa, Martin, Butcher, Nancy J, Iverson, Ryan, Clifford, Tammy J, Stockler, Sylvia, Hutton, Brian, Paik, Karen, Tao, Jessica, Skidmore, Becky, Coyle, Doug, Duddy, Kathleen, Dyack, Sarah, Greenberg, Cheryl R, Ghai, Shailly Jain, Karp, Natalya, Korngut, Lawrence, Kronick, Jonathan, MacKenzie, Alex, MacKenzie, Jennifer, Maranda, Bruno, Mitchell, John J, Potter, Murray, Prasad, Chitra, Schulze, Andreas, Sparkes, Rebecca, Taljaard, Monica, Trakadis, Yannis, Walia, Jagdeep, Potter, Beth K

“…Inherited metabolic diseases (IMDs) are a group of individually rare single-gene diseases. For many IMDs, there is a paucity of high-quality evidence that…”
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Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases by Tingley, Kylie, Coyle, Doug, Graham, Ian D, Sikora, Lindsey, Chakraborty, Pranesh, Wilson, Kumanan, Mitchell, John J, Stockler-Ipsiroglu, Sylvia, Potter, Beth K

“…For many rare diseases, strong analytic study designs for evaluating the efficacy and effectiveness of interventions are challenging to implement because of…”
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Yield and Efficiency of Mental Health Screening: A Comparison of Screening Protocols at Intake to Prison by Martin, Michael S, Potter, Beth K, Crocker, Anne G, Wells, George A, Colman, Ian

“…The value of screening for mental illness has increasingly been questioned in low prevalence settings due to high false positive rates. However, since false…”
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The use of relative incidence ratios in self-controlled case series studies: an overview by Hawken, Steven, Potter, Beth K, Little, Julian, Benchimol, Eric I, Mahmud, Salah, Ducharme, Robin, Wilson, Kumanan

“…The self-controlled case series (SCCS) is a useful design for investigating associations between outcomes and transient exposures. The SCCS design controls for…”
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Assessing the quality and value of metabolic chart data for capturing core outcomes for pediatric medium-chain acyl-CoA dehydrogenase (MCAD) deficiency by Iverson, Ryan, Taljaard, Monica, Geraghty, Michael T, Pugliese, Michael, Tingley, Kylie, Coyle, Doug, Kronick, Jonathan B, Wilson, Kumanan, Austin, Valerie, Brunel-Guitton, Catherine, Buhas, Daniela, Butcher, Nancy J, Chan, Alicia K J, Dyack, Sarah, Goobie, Sharan, Greenberg, Cheryl R, Jain-Ghai, Shailly, Inbar-Feigenberg, Michal, Karp, Natalya, Kozenko, Mariya, Langley, Erica, Lines, Matthew, Little, Julian, MacKenzie, Jennifer, Maranda, Bruno, Mercimek-Andrews, Saadet, Mhanni, Aizeddin, Mitchell, John J, Nagy, Laura, Offringa, Martin, Pender, Amy, Potter, Murray, Prasad, Chitra, Ratko, Suzanne, Salvarinova, Ramona, Schulze, Andreas, Siriwardena, Komudi, Sondheimer, Neal, Sparkes, Rebecca, Stockler-Ipsiroglu, Sylvia, Tapscott, Kendra, Trakadis, Yannis, Turner, Lesley, Van Karnebeek, Clara, Vandersteen, Anthony, Walia, Jagdeep S, Wilson, Brenda J, Yu, Andrea C, Potter, Beth K, Chakraborty, Pranesh

“…Generating rigorous evidence to inform care for rare diseases requires reliable, sustainable, and longitudinal measurement of priority outcomes. Having…”
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