Search Results - "Pol, Sarah J."
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"Tremendous financial burden": Crowdfunding for organ transplantation costs in Canada
Published in PloS one (20-12-2019)“…Online crowdfunding platforms such as GoFundMe are used to raise funds for health-related expenses associated with medical conditions such as organ…”
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Correction: "Tremendous financial burden": Crowdfunding for organ transplantation costs in Canada
Published in PloS one (12-03-2020)“…[This corrects the article DOI: 10.1371/journal.pone.0226686.]…”
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Creation of an electronic patient-reported outcome measure platform Voxe: a mixed methods study protocol in paediatric solid organ transplantation
Published in BMJ open (19-10-2021)“…IntroductionPatient-reported outcome measures (PROMs) provide an opportunity for meaningful patient engagement and shared decision-making. The objective of…”
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User-Centered Design and Usability of Voxe as a Pediatric Electronic Patient-Reported Outcome Measure Platform: Mixed Methods Evaluation Study
Published in JMIR human factors (19-09-2024)“…Electronic patient-reported outcome measures (ePROMs) are standardized digital instruments integrated into clinical care to collect subjective data regarding…”
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"Weighing the Pros and Cons of Everything": A Qualitative Descriptive Study Exploring Perspectives About Living Donor Kidney Transplantation From Parents of Chinese Canadian Pediatric Patients With Chronic Kidney Disease
Published in Canadian journal of kidney health and disease (01-01-2024)“…As of 2021, more than 6000 children and youth in Canada were living with end-stage kidney disease (ESKD), for which kidney transplantation is considered the…”
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Family veto in organ donation: the experiences of Organ and Tissue Donation Coordinators in Ontario
Published in Canadian journal of anesthesia (01-05-2021)“…Purpose In Ontario, an individual’s registered wish for organ donation is legally valid consent following death. Family veto occurs when the deceased donor’s…”
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Quality of life and psychosocial outcomes of adults who were pediatric solid organ transplant recipients: A systematic review
Published in Pediatric transplantation (01-05-2023)“…Background The number of pediatric SOT recipients surviving into adulthood is increasing. Thus, understanding their psychosocial and QoL outcomes is important…”
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Patient-reported outcome measures in pediatric solid organ transplantation: Exploring stakeholder perspectives on clinical implementation through qualitative description
Published in Quality of life research (01-05-2021)“…Purpose Patient-reported outcome measures (PROMs) are standardized instruments used to collect data about the subjective assessment of medical care from the…”
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Impact of COVID-19 Public Health Protocols on Teachers Instructing Children and Adolescents During an In-Person Simulation
Published in Journal of the Canadian Academy of Child and Adolescent Psychiatry (01-05-2022)“…As a result of the COVID-19 pandemic, public health agencies and school boards across Canada enacted new protocols, including face masks, physical distancing…”
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Implementation of a sudden cardiac death risk prediction tool in clinical practice through electronic health records (INSERT-HCM study design)
Published in CJC open (Online) (01-10-2024)Get full text
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