"When she goes out, she feels better:" co-designing a Green Activity Program with Hispanic/Latino people living with memory challenges and care partners

"When she goes out, she feels better:" co-designing a Green Activity Program with Hispanic/Latino people living with memory challenges and care partners

Utilizing a participatory approach, we sought to co-design a 12-week Green Activity Program (GAP) with Hispanic/Latino individuals living with memory challenges and their care partners, local outdoor professionals, and healthcare providers. Participants were recruited via convenience and snowball sa...

Full description

Saved in:
Bibliographic Details
Published in:Frontiers in aging neuroscience Vol. 16; p. 1401255
Main Authors: Lassell, Rebecca K F, Tamayo, Valeria, Pena, Triana A, Kishi, Misa, Zwerling, Jessica, Gitlin, Laura N, Brody, Abraham A
Format: Journal Article
Language:English
Published: Switzerland Frontiers Research Foundation 18-06-2024
Frontiers Media S.A
Subjects:
Aging Neuroscience
Alzheimer's disease
Animal cognition
Community support
community-engaged
Dementia
Dementia disorders
Exercise
Health care
Hispanic Americans
Latine
Lifestyles
Memory
Minority & ethnic groups
nature-based
occupational therapy
Older people
Physical fitness
Prescriptions
Primary care
Research design
United Kingdom > UK
New York
United States > US
community-engaged
Latine
Alzheimer's disease
nature-based
occupational therapy
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Utilizing a participatory approach, we sought to co-design a 12-week Green Activity Program (GAP) with Hispanic/Latino individuals living with memory challenges and their care partners, local outdoor professionals, and healthcare providers. Participants were recruited via convenience and snowball sampling in the Bronx, New York with Hispanic/Latino persons living with memory challenges and care partners, outdoor activity professionals, and interdisciplinary healthcare providers/dementia experts. Co-design occurred iteratively with 5 focus groups and 4 individual interviews lasting 30-90 min and focused on program and research design. Sessions were recorded and transcribed. Utilizing directed content analysis data was coded using a priori codes program design and research design. 21 participants completed co-design activities: ( = 8 outdoor activity professionals, = 6 Hispanic/Latino persons living with memory challenges and care partners, and = 7 interdisciplinary healthcare providers/dementia experts). Participant preferences for program design were captured by subcodes (30-90 min), (4-8 sessions), and (in-person and phone). Participants' preferred nature activities included group exercise and outdoor crafts [crocheting], outcomes of social participation, connectedness to nature, decreased loneliness, and stewardship were identified. Preferred language for recruiting and describing the program were "memory challenges," "Hispanic/Latino," and "wellbeing." were identified including community-based organizations and primary care. Co-design was a successful form of engagement for people living with memory challenges that enabled participants to help design key elements of the GAP and research design. Our processes, findings, and recommendations for tailoring co-design to engage Hispanic/Latino people living with memory challenges can inform the development of other programs for this population.
Bibliography:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
Edited by: Paolo Mazzola, University of Milano-Bicocca, Italy
Reviewed by: Carmen Requena, University of León, Spain
Lin Jiang, The University of Texas Rio Grande Valley, United States
These authors have contributed equally to this work and share last authorship
ISSN:1663-4365
1663-4365
DOI:10.3389/fnagi.2024.1401255