Search Results - "Parr, Jeremy R"

Making the future together: Shaping autism research through meaningful participation by Fletcher-Watson, Sue, Adams, Jon, Brook, Kabie, Charman, Tony, Crane, Laura, Cusack, James, Leekam, Susan, Milton, Damian, Parr, Jeremy R, Pellicano, Elizabeth

“…Participatory research methods connect researchers with relevant communities to achieve shared goals. These methods can deliver results that are relevant to…”
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Predictors of quality of life for autistic adults by Mason, David, McConachie, Helen, Garland, Deborah, Petrou, Alex, Rodgers, Jacqui, Parr, Jeremy R.

“…Research with adults on the autism spectrum is as yet limited in scope and quality. The present study describes quality of life (QoL) of a large sample of…”
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Autism genetics: opportunities and challenges for clinical translation by Vorstman, Jacob A. S., Parr, Jeremy R., Moreno-De-Luca, Daniel, Anney, Richard J. L., Nurnberger Jr, John I., Hallmayer, Joachim F.

“…Key Points A rapidly growing list of rare genetic causes of autism spectrum disorders (ASDs) is being identified, giving insights into the underlying biology…”
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Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial by Pickles, Andrew, Prof, Le Couteur, Ann, Prof, Leadbitter, Kathy, PhD, Salomone, Erica, PhD, Cole-Fletcher, Rachel, PhD, Tobin, Hannah, BSc, Gammer, Isobel, MSc, Lowry, Jessica, MSc, Vamvakas, George, MSc, Byford, Sarah, Prof, Aldred, Catherine, PhD, Slonims, Vicky, PhD, McConachie, Helen, Prof, Howlin, Patricia, Prof, Parr, Jeremy R, MD, Charman, Tony, Prof, Green, Jonathan, Prof

“…Summary Background It is not known whether early intervention can improve long-term autism symptom outcomes. We aimed to follow-up the Preschool Autism…”
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Reducing specific phobia/fear in young people with autism spectrum disorders (ASDs) through a virtual reality environment intervention by Maskey, Morag, Lowry, Jessica, Rodgers, Jacqui, McConachie, Helen, Parr, Jeremy R

“…Anxiety is common in children with autism spectrum disorders (ASD), with specific fears and phobias one of the most frequent subtypes. Specific fears and…”
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The lived experiences of relatives of autistic adults, and their perceptions of their relationships with autistic adults across multiple age-related transitions and demands: A qualitative interview study with reflexive thematic analysis by Hamilton, Jahnese, Finch, Tracy, Le Couteur, Ann, Mackintosh, Joan, Petrou, Alex, Garland, Deborah, Parr, Jeremy R

“…There is a need to better understand autism across the life course, including the lives of both autistic people and supporting relatives. As part of a larger…”
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Systematic review of tools to measure outcomes for young children with autism spectrum disorder by McConachie, Helen, Parr, Jeremy R, Glod, Magdalena, Hanratty, Jennifer, Livingstone, Nuala, Oono, Inalegwu P, Robalino, Shannon, Baird, Gillian, Beresford, Bryony, Charman, Tony, Garland, Deborah, Green, Jonathan, Gringras, Paul, Jones, Glenys, Law, James, Le Couteur, Ann S, Macdonald, Geraldine, McColl, Elaine M, Morris, Christopher, Rodgers, Jacqueline, Simonoff, Emily, Terwee, Caroline B, Williams, Katrina

“…The needs of children with autism spectrum disorder (ASD) are complex and this is reflected in the number and diversity of outcomes assessed and measurement…”
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The importance and availability of adjustments to improve access for autistic adults who need mental and physical healthcare: findings from UK surveys by Brice, Samuel, Rodgers, Jacqui, Ingham, Barry, Mason, David, Wilson, Colin, Freeston, Mark, Le Couteur, Ann, Parr, Jeremy R

“…ObjectivesTo investigate autistic people’s views on the importance and availability of adjustments to mental and physical healthcare provision. To explore…”
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"We couldn't think in the box if we tried. We can't even find the damn box": A qualitative study of the lived experiences of autistic adults and relatives of autistic adults by Finch, Tracy L, Mackintosh, Joan, Petrou, Alex, McConachie, Helen, Le Couteur, Ann, Garland, Deborah, Parr, Jeremy R

“…Autistic children grow to become autistic adults, and autism is increasingly diagnosed in adulthood and later life. This qualitative study aimed to understand…”
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Health professionals’ and managers’ definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies by Farre, Albert, Wood, Victoria, McDonagh, Janet E, Parr, Jeremy R, Reape, Debbie, Rapley, Tim

“…ObjectivesWe aimed to (i) explore how health professionals and managers who work with young people seek to define developmentally appropriate healthcare (DAH),…”
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Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services by Hislop, Jenni, M.Sc, Mason, Helen, Ph.D, Parr, Jeremy R., M.B.Ch.B., M.D, Vale, Luke, Ph.D, Colver, Allan, M.B.B.S., M.D

“…Abstract Purpose This study sought to identify and describe the views of young people with chronic conditions about the transition from pediatric to adult…”
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Professional perspectives on facilitators and barriers for high quality provision of health, education and social care services to disabled children in England during the COVID-19 pandemic: a qualitative study by Merrick, Hannah, Driver, Helen, Main, Chloe, Potts, Lily, Russell, Siân, Exley, Catherine, Allard, Amanda, Morris, Christopher, Parr, Jeremy R, Pennington, Lindsay, Teare, Dawn, Yu, Ge, Carr, Sara, Grahame, Vicki, Haining, Shona, Platts, Lesley, Gray, Laura, Heslop, Philip, Bola, Kulwinder

“…ObjectivesTo understand how health, education and social care services for disabled children changed during the COVID-19 pandemic, what did or did not work…”
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Coping with Uncertainty in Everyday Situations (CUES©) to address intolerance of uncertainty in autistic children: study protocol for an intervention feasibility trial by Rodgers, Jacqui, Goodwin, Jane, Parr, Jeremy R, Grahame, Victoria, Wright, Catharine, Padget, John, Garland, Deborah, Osborne, Malcolm, Labus, Marie, Kernohan, Ashleigh, Freeston, Mark

“…Anxiety is a common diagnosis in children with autism spectrum disorder (ASD). One key mechanism underlying anxiety is intolerance of uncertainty, which is a…”
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Treating anxiety in autistic adults: study protocol for the Personalised Anxiety Treatment-Autism (PAT-A©) pilot randomised controlled feasibility trial by Parr, Jeremy R, Brice, Samuel, Welsh, Patrick, Ingham, Barry, Le Couteur, Ann, Evans, Gemma, Monaco, Alexander, Freeston, Mark, Rodgers, Jacqui

“…Anxiety is common in autistic adults and significantly limits everyday opportunities and quality of life. Evidence-based psychological therapies offered by…”
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Standing frames for children with cerebral palsy: a mixed-methods feasibility study by Goodwin, Jane, Lecouturier, Jan, Basu, Anna, Colver, Allan, Crombie, Sarah, Smith, Johanna, Howel, Denise, McColl, Elaine, Parr, Jeremy R, Kolehmainen, Niina, Roberts, Andrew, Miller, Keith, Cadwgan, Jill

“…Standing frames are recommended as part of postural management for young people with cerebral palsy (CP) Gross Motor Function Classification System (GMFCS)…”
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Paediatric Autism Communication Therapy-Generalised (PACT-G) against treatment as usual for reducing symptom severity in young children with autism spectrum disorder: study protocol for a randomised controlled trial by Green, Jonathan, Aldred, Catherine, Charman, Tony, Le Couteur, Ann, Emsley, Richard A, Grahame, Victoria, Howlin, Patricia, Humphrey, Neil, Leadbitter, Kathy, McConachie, Helen, Parr, Jeremy R, Pickles, Andrew, Slonims, Vicky, Taylor, Carol

“…Prior evidence shows that behaviours closely related to the intervention delivered for autism are amenable to change, but it is more difficult to generalise…”
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Enhancing the Validity of a Quality of Life Measure for Autistic People by McConachie, Helen, Mason, David, Parr, Jeremy R., Garland, Deborah, Wilson, Colin, Rodgers, Jacqui

“…Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation…”
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A Phase II Randomized, Double-Blind, Placebo-Controlled Study of the Efficacy, Safety, and Tolerability of Arbaclofen Administered for the Treatment of Social Function in Children and Adolescents With Autism Spectrum Disorders: Study Protocol for AIMS-2-TRIALS-CT1 by Parellada, Mara, San José Cáceres, Antonia, Palmer, Melanie, Delorme, Richard, Jones, Emily J. H., Parr, Jeremy R., Anagnostou, Evdokia, Murphy, Declan G. M., Loth, Eva, Wang, Paul P., Charman, Tony, Strydom, Andre, Arango, Celso

“…Background: Autism Spectrum Disorder (ASD or autism) is characterized by difficulties in social communication and interaction, which negatively impact on…”
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Factors Affecting Age at ASD Diagnosis in UK: No Evidence that Diagnosis Age has Decreased Between 2004 and 2014 by Brett, Denise, Warnell, Frances, McConachie, Helen, Parr, Jeremy R.

“…Clinical initiatives have aimed to reduce the age at ASD diagnosis in the UK. This study investigated whether the median age at diagnosis in childhood has…”
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A systematic review of quality of life of adults on the autism spectrum by Ayres, Michael, Parr, Jeremy R, Rodgers, Jacqui, Mason, David, Avery, Leah, Flynn, Darren

“…Autism spectrum disorder is associated with co-existing conditions that may adversely affect an individual’s quality of life. No systematic review of quality…”
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