Beginnings, evolution and current situation of the Newborn Screening Programs in Spain.

Beginnings, evolution and current situation of the Newborn Screening Programs in Spain.

Newborn Screening Programs (NSP) in Spain were born in the city of Granada in 1968. Till the 1980s, they were developed around the so-called "National Plan for Preventing Subnormality", covering up to 30% of the Spanish newborns. From 1982, when the health system management was transferred...

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Published in:Revista espanola de salud publica Vol. 95
Main Authors: Marín Soria, José Luis, González de Aledo Castillo, José Manuel, Argudo Ramírez, Ana, López Galera, Rosa Mª, Pajares García, Sonia, Ribes Rubió, Antonia, García Villoria, Judith, Yahyaoui Macías, Raquel, Álvarez Ríos, Ana Isabel, Melguizo Madrid, Enrique, González Irazabal, Yolanda, Hernández de Abajo, Guillermo, Prieto García, Belén, Cardo González, Leire, Martínez Morillo, Eduardo, Robles Bauza, Juan, Bauçà Rosselló, Josep Miquel, Pérez Esteban, Gerardo, Díaz-Flores Estevez, Felícitas, Pérez Mangas, Eva, Cañadas Garzó, Verónica, Muñoz Boyero, Ana Cristina, Redondo Cardeña, Pedro A, Bueno Llarena, Mª Josefa, Sánchez Alarcon, Javier, Castiñeiras Ramos, Daisy, Cocho de Juan, José Ángel, Colón Mejeras, Cristóbal, Blanco Soto, Paula, Cambra Conejero, Ana, Fernández Ruano, Miguel L, Ortiz Temprado, Alicia, Egea Mellado, José Mª, González Gallego, Inmaculada, Juan Fita, Mª Jesús, Espada Saenz-Torre, Mercedes, Rausell Felix, Dolores, Marcos Tomás, Jose Vicente, Ruiz Aja, Sandra, Delgado Pecellín, Carmen, Bóveda Fontán, Mª Dolores
Format: Journal Article
Language:Spanish
Published: Spain 23-02-2021
Subjects:
History, 20th Century
History, 21st Century
Humans
Infant, Newborn
Neonatal Screening - history
Neonatal Screening - organization & administration
Spain
Spain
Newborn screening in Spain
Public Health
Detection panel
Intellectual disability
Prevalence
Newborn Screening Program
Autonomous communities
Spain
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Summary:Newborn Screening Programs (NSP) in Spain were born in the city of Granada in 1968. Till the 1980s, they were developed around the so-called "National Plan for Preventing Subnormality", covering up to 30% of the Spanish newborns. From 1982, when the health system management was transferred to the different autonomous regions, the NSP began to expand, and the bases to transform them into an organized and multidisciplinary activity, integrated and coordinated from the National Health System were settled. Despite this expansion, it is not until the 1990s when their coverage reaches almost 100% newborns in Spain. NSP grew up asymmetrically across the different autonomous regions. In 2005 and 2006 the scientific societies SEQC (Spanish Society of Clinical Chemistry) and AECNE (Spanish Society of Newborn Screening), coordinated by the Health Promotion Area of the General Directorate of Public Health, gathered together the necessary information to elaborate a report on the NSP in Spain addressed to the Interterritorial Council of the National Health System. In July 2013, that Council approved the seven diseases that should be part of each region newborn screening panel, being the first step towards the NSP harmonization in Spain. Currently, the NSP include between 8 and 29 diseases in their panels, thus more still more efforts are needed in order to achieve a higher uniformity.
ISSN:2173-9110