Search Results - "Okun, Sally"

Sharing health data for better outcomes on PatientsLikeMe by Wicks, Paul, Massagli, Michael, Frost, Jeana, Brownstein, Catherine, Okun, Sally, Vaughan, Timothy, Bradley, Richard, Heywood, James

“…PatientsLikeMe is an online quantitative personal research platform for patients with life-changing illnesses to share their experience using patient-reported…”
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DigitalMe: a journey towards personalized health and thriving by Okun, Sally, Wicks, Paul

“…The use of information and communication technologies for health (eHealth) delivered via mobile-based or digitally enhanced solutions (mHealth) have rapidly…”
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Overcoming the barriers to better evidence generation from clinical trials by Kehoe, Lindsay, Locke, Trevan, McClellan, Mark, Landray, Martin, Hernandez, Adrian, Okun, Sally

“…Clinical evidence generation from and for representative populations can be improved through increased research access and ease of trial participation. To…”
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Commitments for Ethically Responsible Sourcing, Use, and Reuse of Patient Data in the Digital Age: Cocreation Process by Okun, Sally, Hanger, Morgan, Browne-James, Letitia, Montgomery, Tara, Rafaloff, Gary, van Delden, Johannes Jm

“…Personal information, including health-related data, may be used in ways we did not intend when it was originally shared. However, the organizations that…”
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Understanding the Context of Health for Persons With Multiple Chronic Conditions: Moving From What Is the Matter to What Matters by Bayliss, Elizabeth A., MD, MSPH, Bonds, Denise E., MD, MPH, Boyd, Cynthia M., MD, MPH, Davis, Melinda M., PhD, Finke, Bruce, MD, Fox, Michael H., ScD, Glasgow, Russell E., PhD, Goodman, Richard A., MD, MPH, Heurtin-Roberts, Suzanne, PhD, Lachenmayr, Sue, MPH, CHES, Lind, Cristin, BA, Madigan, Elizabeth A., PhD, RN, FAAN, Meyers, David S., MD, Mintz, Suzanne, MS, Nilsen, Wendy J., PhD, Okun, Sally, RN, MMHS, Ruiz, Sarah, PhD, Salive, Marcel E., MD, MPH, Stange, Kurt C., MD, PhD

“…Abstract Purpose An isolated focus on 1 disease at a time is insufficient to generate the scientific evidence needed to improve the health of persons living…”
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The Missing Reality of Real Life in Real‐World Evidence by Okun, Sally

“…Reality is defined as a real event, a real thing, or state of affairs. Reality exists in the places where we live our daily lives, in the relationships we have…”
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Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe by Frost, Jeana, Okun, Sally, Vaughan, Timothy, Heywood, James, Wicks, Paul

“…Evaluating a new use for an existing drug can be expensive and time consuming. Providers and patients must all too often rely upon their own individual-level…”
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Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium Guidance by Banerjee, Anjan K., Okun, Sally, Edwards, I. Ralph, Wicks, Paul, Smith, Meredith Y., Mayall, Stephen J., Flamion, Bruno, Cleeland, Charles, Basch, Ethan

“…The Patient-Reported Outcomes Safety Event Reporting (PROSPER) Consortium was convened to improve safety reporting by better incorporating the perspective of…”
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The Charter on Professionalism for Health Care Organizations by Egener, Barry E., Mason, Diana J., McDonald, Walter J., Okun, Sally, Gaines, Martha E., Fleming, David A., Rosof, Bernie M., Gullen, David, Andresen, May-Lynn

“…In 2002, the Physician Charter on Medical Professionalism was published to provide physicians with guidance for decision making in a rapidly changing…”
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Enabling social listening for cardiac safety monitoring: Proceedings from a drug information association–cardiac safety research consortium cosponsored think tank by Seifert, Harry A., Malik, Raleigh E., Bhattacharya, Mondira, Campbell, Kevin R., Okun, Sally, Pierce, Carrie, Terkowitz, Jeffrey, Turner, J. Rick, Krucoff, Mitchell W., Powell, Gregory E.

“…This white paper provides a summary of the presentations and discussions from a think tank on “Enabling Social Listening for Cardiac Safety Monitoring” trials…”
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High performance team-based care for persons with chronic conditions by Schoenbaum, Stephen C, Okun, Sally

“…Care for patients with complex chronic conditions such as diabetes requires a coordinated and collaborative team working in partnership with the patient…”
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Acquisition, Analysis, and Sharing of Data in 2015 and Beyond: A Survey of the Landscape: A Conference Report From the American Heart Association Data Summit 2015 by Antman, Elliott M, Benjamin, Emelia J, Harrington, Robert A, Houser, Steven R, Peterson, Eric D, Bauman, Mary Ann, Brown, Nancy, Bufalino, Vincent, Califf, Robert M, Creager, Mark A, Daugherty, Alan, Demets, David L, Dennis, Bernard P, Ebadollahi, Shahram, Jessup, Mariell, Lauer, Michael S, Lo, Bernard, MacRae, Calum A, McConnell, Michael V, McCray, Alexa T, Mello, Michelle M, Mueller, Eric, Newburger, Jane W, Okun, Sally, Packer, Milton, Philippakis, Anthony, Ping, Peipei, Prasoon, Prad, Roger, Véronique L, Singer, Steve, Temple, Robert, Turner, Melanie B, Vigilante, Kevin, Warner, John, Wayte, Patrick

“…A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke…”
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Validating a Framework for Coding Patient-Reported Health Information to the Medical Dictionary for Regulatory Activities Terminology: An Evaluative Study by Brajovic, Sonja, Blaser, David A, Zisk, Meaghan, Caligtan, Christine, Okun, Sally, Hall, Marni, Pamer, Carol A

“…The availability of and interest in patient-generated health data (PGHD) have grown steadily. Patients describe medical experiences differently compared with…”
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Building a learning health community: By the people, for the people by Okun, Sally, Goodwin, Kim

“…The journey of illness as lived by patients and caregivers is not routinely captured for systematic sharing or continuous learning. Consequently, far too many…”
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Speaking the patient's language by Okun, Sally, Weinstock, Matthew

“…Former palliative care nurse Sally Okun believes that clinicians are missing a huge opportunity to listen to and speak the same language as their patients…”
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Speaking the patient's language by Okun, Sally, Weinstock, Matthew

“…Former palliative care nurse Sally Okun believes that clinicians are missing a huge opportunity to listen to and speak the same language as their patients…”
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