Search Results - "Natter, Marc D"

C3-PRO: Connecting ResearchKit to the Health System Using i2b2 and FHIR by Pfiffner, Pascal B, Pinyol, Isaac, Natter, Marc D, Mandl, Kenneth D

“…A renewed interest by consumer information technology giants in the healthcare domain is focused on transforming smartphones into personal health data storage…”
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The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months by Beukelman, Timothy, Kimura, Yukiko, Ilowite, Norman T, Mieszkalski, Kelly, Natter, Marc D, Burrell, Grendel, Best, Brian, Jones, Jason, Schanberg, Laura E

“…Herein we describe the history, design, and rationale of the new Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry and present the…”
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Claims-Based Algorithms for Identifying Patients With Pulmonary Hypertension: A Comparison of Decision Rules and Machine-Learning Approaches by Ong, Mei-Sing, Klann, Jeffrey G, Lin, Kueiyu Joshua, Maron, Bradley A, Murphy, Shawn N, Natter, Marc D, Mandl, Kenneth D

“…Background Real-world healthcare data are an important resource for epidemiologic research. However, accurate identification of patient cohorts-a crucial first…”
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A Computable Phenotype Improves Cohort Ascertainment in a Pediatric Pulmonary Hypertension Registry by Geva, Alon, MD, MPH, Gronsbell, Jessica L., BA, Cai, Tianxi, ScD, Cai, Tianrun, MD, Murphy, Shawn N., MD, PhD, Lyons, Jessica C., MS, Heinz, Michelle M., BS, Natter, Marc D., MD, Patibandla, Nandan, MS, Bickel, Jonathan, MD, MS, Mullen, Mary P., MD, PhD, Mandl, Kenneth D., MD, MPH

“…Objectives To compare registry and electronic health record (EHR) data mining approaches for cohort ascertainment in patients with pediatric pulmonary…”
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Using the Electronic Health Record to Enhance Care in Pediatric Rheumatology by Taxter, Alysha J., Natter, Marc D.

“…The electronic health record (EHR) ecosystem is undergoing rapid evolution in response to new rules and regulations promulgated by the US HITECH Act (2009) and…”
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Characterisation of paediatric pulmonary hypertensive vascular disease from the PPHNet Registry by Abman, Steven H, Mullen, Mary P, Sleeper, Lynn A, Austin, Eric D, Rosenzweig, Erika B, Kinsella, John P, Ivy, Dunbar, Hopper, Rachel K, Raj, J Usha, Fineman, Jeffrey, Keller, Roberta L, Bates, Angela, Krishnan, Usha S, Avitabile, Catherine M, Davidson, Alexander, Natter, Marc D, Mandl, Kenneth D

“…To characterise the clinical features of diseases associated with paediatric pulmonary hypertension, including natural history, evaluation and therapeutic…”
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Case 17-2022: A 17-Year-Old Boy with Chest Pain by Arya, Puneeta, Westra, Sjirk J., Benavidez, Oscar J., Natter, Marc D., Murali, Mandakolathur R.

“…A 17-year-old boy was admitted to the pediatric ICU with chest pain, syncope, electrocardiographic abnormalities, and elevated creatine kinase and troponin T…”
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Racial and Ethnic Differences in Pediatric Pulmonary Hypertension: An Analysis of the Pediatric Pulmonary Hypertension Network Registry by Ong, Mei-Sing, Abman, Steve, Austin, Eric D., Feinstein, Jeffrey A., Hopper, Rachel K., Krishnan, Usha S., Mullen, Mary P., Natter, Marc D., Raj, J. Usha, Rosenzweig, Erika B., Mandl, Kenneth D.

“…To investigate racial and ethnic differences in pulmonary hypertension subtypes and survival differences in a pediatric population. This was a retrospective…”
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Learning a Comorbidity-Driven Taxonomy of Pediatric Pulmonary Hypertension by Ong, Mei-Sing, Mullen, Mary P., Austin, Eric D., Szolovits, Peter, Natter, Marc D., Geva, Alon, Cai, Tianxi, Kong, Sek Won, Mandl, Kenneth D.

“…RATIONALE:Pediatric pulmonary hypertension (PH) is a heterogeneous condition with varying natural history and therapeutic response. Precise classification of…”
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A federated EHR network data completeness tracking system by Estiri, Hossein, Klann, Jeffrey G, Weiler, Sarah R, Alema-Mensah, Ernest, Joseph Applegate, R, Lozinski, Galina, Patibandla, Nandan, Wei, Kun, Adams, William G, Natter, Marc D, Ofili, Elizabeth O, Ostasiewski, Brian, Quarshie, Alexander, Rosenthal, Gary E, Bernstam, Elmer V, Mandl, Kenneth D, Murphy, Shawn N

“…The study sought to design, pilot, and evaluate a federated data completeness tracking system (CTX) for assessing completeness in research data extracted from…”
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An i2b2-based, generalizable, open source, self-scaling chronic disease registry by Natter, Marc D, Quan, Justin, Ortiz, David M, Bousvaros, Athos, Ilowite, Norman T, Inman, Christi J, Marsolo, Keith, McMurry, Andrew J, Sandborg, Christy I, Schanberg, Laura E, Wallace, Carol A, Warren, Robert W, Weber, Griffin M, Mandl, Kenneth D

“…Registries are a well-established mechanism for obtaining high quality, disease-specific data, but are often highly project-specific in their design,…”
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The Association of Black Cardiologists (ABC) Cardiovascular Implementation Study (CVIS): A Research Registry Integrating Social Determinants to Support Care for Underserved Patients by Ofili, Elizabeth O, Schanberg, Laura E, Hutchinson, Barbara, Sogade, Felix, Fergus, Icilma, Duncan, Phillip, Hargrove, Joe, Artis, Andre, Onyekwere, Osita, Batchelor, Wayne, Williams, Marcus, Oduwole, Adefisayo, Onwuanyi, Anekwe, Ojutalayo, Folake, Cross, Jo Ann, Seto, Todd B, Okafor, Henry, Pemu, Priscilla, Immergluck, Lilly, Foreman, Marilyn, Mensah, Ernest Alema, Quarshie, Alexander, Mubasher, Mohamed, Baker, Almelida, Ngare, Alnida, Dent, Andrew, Malouhi, Mohamad, Tchounwou, Paul, Lee, Jae, Hayes, Traci, Abdelrahim, Muna, Sarpong, Daniel, Fernandez-Repollet, Emma, Sodeke, Stephen O, Hernandez, Adrian, Thomas, Kevin, Dennos, Anne, Smith, David, Gbadebo, David, Ajuluchikwu, Janet, Kong, B Waine, McCollough, Cassandra, Weiler, Sarah R, Natter, Marc D, Mandl, Kenneth D, Murphy, Shawn

“…African Americans, other minorities and underserved populations are consistently under- represented in clinical trials. Such underrepresentation results in a…”
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Supporting Multi-sourced Medication Information in i2b2 by Klann, Jeffrey G, Pfiffner, Pascal B, Natter, Marc D, Conner, Emily, Blazejewski, Paul, Murphy, Shawn N, Mandl, Kenneth D

“…Postmarketing drug surveillance is critical to assessing adverse events associated with medications, because prelaunch clinical trials frequently miss negative…”
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Next-generation registries: fusion of data for care, and research by Mandl, Kenneth D, Edge, Stephen, Malone, Chad, Marsolo, Keith, Natter, Marc D

“…Disease-based registries are a critical tool for electronic data capture of high-quality, gold standard data for clinical research as well as for population…”
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The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort by Natter, Marc D, Winsor, Jane R, Fox, Kathleen A, Ilowite, Norman T, Mandl, Kenneth D, Mieszkalski, Kelly L, Sandborg, Christy I, Sundy, John S, Wallace, Carol A, Schanberg, Laura E

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Case 17-2022: A 17-Year-Old Boy with Chest Pain by Taheri, Saeed, Natter, Marc D., Arya, Puneeta D., Murali, Mandakolathur R.

“…To the Editor: In the Case Record, Arya et al. (June 9 issue) 1 describe a 17-year-old boy with chest pain who received a diagnosis of undifferentiated…”
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Case 17-2022: A 17-Year-Old Boy with Chest Pain. Reply by Natter, Marc D, Arya, Puneeta D, Murali, Mandakolathur R

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A167: Variations in Patterns of Care Across Pediatric Rheumatic Diseases in the Childhood Arthritis & Rheumatology Alliance Network Registry by Natter, Marc D., Ong, Mei‐Sing, Ilowite, Norman T., Mandl, Kenneth D., Mieszkalski, Kelly L., Sandborg, Christy I., Wallace, Carol, Schanberg, Laura E.

“…Background/Purpose: In 2009, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) established a longitudinal multi‐center, multiple disease U.S…”
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Association between pediatric psoriasis and the metabolic syndrome by Au, Shiu-chung, MD, Goldminz, Ari M., BA, Loo, Daniel S., MD, Dumont, Nicole, Levine, Danielle, MD, Volf, Eva, MD, Michelon, Melissa, MD, Wang, Andrew, MD, Kim, Noori, MD, Yaniv, Shimrat, BA, Lizzul, Paul F., MD, PhD, MBA, MPH, Kerensky, Todd, MD, Lopez-Benitez, Jorge M., MD, Natter, Marc, MD, Miller, Laurie, MD, Pelajo, Christina F., MD, MSc, Davis, Trevor, MD, Gottlieb, Alice B., MD, PhD

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