Search Results - "Naehrig, D."
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The lived experience of narcolepsy - from symptoms to stigma
Published in Sleep medicine (01-02-2024)Get full text
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O066 The Lived Experience of Narcolepsy - From Symptoms to Stigma
Published in Sleep advances. (23-10-2023)“…Abstract Introduction Narcolepsy is a rare neurological sleep disorder with a substantial adverse impact on health-related quality of life and psychological…”
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P107 Cost, Control, Compromise: Exploring the lived experience of narcolepsy in Australia
Published in Sleep advances. (09-11-2022)“…Abstract Introduction Persons with narcolepsy wrote of dissatisfaction with healthcare and unmet psychosocial needs in submissions made to the 2019…”
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P106 Where is the care in healthcare? Mother perspectives’ of caring for a child with narcolepsy
Published in Sleep advances. (09-11-2022)“…Abstract Introduction When caring for a child with a chronic illness, primary caregivers become care coordinators, system navigators, and illness experts…”
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P126 Systematic review of outcome measures used in narcolepsy clinical trials
Published in Sleep advances. (07-10-2021)“…Abstract Introduction Treatment of the sleep disorder narcolepsy is primarily symptomatic. With limited population data and insufficient systems to capture…”
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