Search Results - "Motte, Anna de la"
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Three Novel Patient-Reported Outcome Measures to Assess the Patient Experience With Daily and Weekly HIV Oral Antiretroviral Therapy
Published in Journal of acquired immune deficiency syndromes (1999) (01-11-2024)“…Patient-reported outcome measures (PROMs) can provide data on the barriers and facilitators of adherence to daily oral antiretroviral therapy (OART) regimens…”
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Establishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn’s disease
Published in Journal of patient-reported outcomes (12-02-2020)“…Background PROMIS Pediatric patient-reported outcome measures were developed with children from the general population, and their content validity has not been…”
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Clinical Validity of the PROMIS Pediatric Sleep Measures across Populations of Children with Chronic Illnesses and Neurodevelopment Disorders
Published in Journal of pediatric psychology (01-04-2020)“…Abstract Objective To examine the clinical validity of the Patient Reported Outcome Measurement Information System (PROMIS) Pediatric Sleep Disturbance (SD)…”
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The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics
Published in Patient experience journal (29-04-2015)“…Involving Family Advisory Councils in decisions that impact pediatric healthcare demonstrates hospitals’ commitment to child- and family-centered care. Yet,…”
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Development and validation of the PROMIS Pediatric Sleep Disturbance and Sleep-Related Impairment item banks
Published in Sleep (New York, N.Y.) (01-06-2018)“…To develop and evaluate the measurement properties of child-report and parent-proxy versions of the Patient-Reported Outcomes Measurement Information System…”
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Symptoms and Impacts Reported By Patients with Acute Myeloid Leukemia (AML) in Remission Post-Stem Cell Transplant
Published in Blood (23-11-2021)“…Background Little is known about the burden of symptoms and impacts on quality of life in patients with AML in the posttransplant period. As treatment options…”
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The experience of patients with acute myeloid leukemia in remission post-transplant
Published in Leukemia & lymphoma (07-06-2023)“…The symptoms of acute myeloid leukemia (AML) and its treatment can negatively impact patient functioning and quality of life. Through concept elicitation…”
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Qualitative Development and Content Validation of the PROMIS Pediatric Sleep Health Items
Published in Behavioral sleep medicine (03-09-2019)“…Objective: To develop the Patient Reported Outcome Measurement Information System (PROMIS) Pediatric Sleep Health item pool and evaluate its content validity…”
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Development and Validation of the Pediatric Sleep Practices Questionnaire: A Self-Report Measure for Youth Ages 8-17 Years
Published in Behavioral sleep medicine (2021)“…Objective: To develop and evaluate the validity of a self-report measure of sleep practices for youth 8-17 years. Methods: Following recommended guidelines for…”
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Development of a Pediatric Screening Tool for Diabetic Peripheral Neuropathy
Published in Journal of pediatric nursing (01-05-2016)Get full text
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