Search Results - "Morgan, Esi M"
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Systemic Juvenile Idiopathic Arthritis–Associated Lung Disease: Characterization and Risk Factors
Published in Arthritis & rheumatology (Hoboken, N.J.) (01-11-2019)“…Objective Systemic juvenile idiopathic arthritis (JIA) is associated with a recently recognized, albeit poorly defined and characterized, lung disease (LD)…”
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Multicenter inception cohort of enthesitis-related arthritis: variation in disease characteristics and treatment approaches
Published in Arthritis research & therapy (02-05-2017)“…Enthesitis-related arthritis (ERA) is a specific subtype of juvenile idiopathic arthritis (JIA) defined according to the International League of Associations…”
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A PROMIS Measure of Neuropathic Pain Quality
Published in Value in health (01-07-2016)“…Abstract Objectives Neuropathic pain (NP) is a consequence of many chronic conditions. This study aimed to develop an unidimensional NP scale with scores that…”
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Hospitalised infections and rituximab administration among children and adolescents with systemic lupus erythematosus from 2009 to 2021
Published in Lupus science & medicine (12-09-2024)“…BackgroundRituximab is associated with high infection rates, but studies of infections following rituximab in youth with childhood-onset SLE (cSLE) are…”
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Digital health technology to support patient-centered shared decision making at point of care for juvenile idiopathic arthritis
Published in Frontiers in pediatrics (25-10-2024)“…Despite availability of multiple FDA approved therapies, many children with juvenile idiopathic arthritis (JIA) suffer pain and disability due to uncontrolled…”
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Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry
Published in Frontiers in pediatrics (24-07-2024)“…Ensuring high-quality race and ethnicity data within the electronic health record (EHR) and across linked systems, such as patient registries, is necessary to…”
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Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network
Published in Frontiers in pediatrics (04-03-2021)“…Healthcare providers were rapidly forced to modify the way they practiced medicine during the coronavirus disease 2019 (COVID-19) pandemic. Many providers…”
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Using a collaborative learning health system approach to improve disease activity outcomes in children with juvenile idiopathic arthritis in the Pediatric Rheumatology Care and Outcomes Improvement Network
Published in Frontiers in pediatrics (02-08-2024)“…The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) is a North American learning health network focused on improving outcomes of…”
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Timing matters: real-world effectiveness of early combination of biologic and conventional synthetic disease-modifying antirheumatic drugs for treating newly diagnosed polyarticular course juvenile idiopathic arthritis
Published in Rheumatic & musculoskeletal diseases open (01-01-2020)“…ObjectivesTo compare real-world effectiveness of two adaptive treatment strategies of disease-modifying antirheumatic drugs (DMARDs) in treating children with…”
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Treating juvenile idiopathic arthritis to target: recommendations of an international task force
Published in Annals of the rheumatic diseases (01-06-2018)“…Recent therapeutic advances in juvenile idiopathic arthritis (JIA) have made remission an achievable goal for most patients. Reaching this target leads to…”
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Hospitalization and Mortality Due to Infection Among Children and Adolescents With Systemic Lupus Erythematosus in the United States
Published in Journal of rheumatology (01-09-2024)“…We aimed to determine the frequency and types of infections in hospitalized children with childhood-onset systemic lupus erythematosus (cSLE), and to identify…”
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Measures of Health Status and Quality of Life in Juvenile Idiopathic Arthritis
Published in Arthritis care & research (2010) (01-10-2020)Get full text
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Factors for Consideration by Pediatric Rheumatologists When Scoring the Physician Global Assessment of Disease Activity in Juvenile Idiopathic Arthritis: First Step Toward an Internal Consensus
Published in Arthritis care & research (2010) (30-10-2024)“…The physician global assessment of disease activity (PhGA) is a tool used nearly ubiquitously by pediatric rheumatologists for the assessment of patient…”
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Establishing clinical meaning and defining important differences for Patient-Reported Outcomes Measurement Information System (PROMIS®) measures in juvenile idiopathic arthritis using standard setting with patients, parents, and providers
Published in Quality of life research (01-03-2017)“…Background Patient-Reported Outcomes Measurement Information System (PROMIS) measures are used increasingly in clinical care. However, for juvenile idiopathic…”
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Development and evaluation of the patient-reported outcomes measurement information system (PROMIS) pediatric pain quality item bank and short form
Published in Pain (Amsterdam) (01-03-2023)“…Pain is a common problem among children, particularly those with pediatric chronic diseases. Multifaceted assessment of pain can improve communication about…”
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Development and validation of the self-reported PROMIS pediatric pain behavior item bank and short form scale
Published in Pain (Amsterdam) (01-07-2017)“…Pain behaviors are important indicators of functioning in chronic pain; however, no self-reported pain behavior instrument has been developed for pediatric…”
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Rheumatology Informatics System for Effectiveness: A National Informatics‐Enabled Registry for Quality Improvement
Published in Arthritis care & research (2010) (01-12-2016)“…Objective The Rheumatology Informatics System for Effectiveness (RISE) is a national electronic health record (EHR)–enabled registry. RISE passively collects…”
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Quality of Care in Childhood-onset Systemic Lupus Erythematosus: Report of an Intervention to Improve Cardiovascular and Bone Health Screening
Published in Journal of rheumatology (01-10-2020)“…Initial benchmarking of childhood-onset systemic lupus erythematosus (cSLE) quality indicators revealed suboptimal performance across multiple centers. Our aim…”
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Improving care delivery and outcomes in pediatric rheumatic diseases
Published in Current opinion in rheumatology (01-03-2016)“…PURPOSE OF REVIEWThis article highlights efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic…”
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The Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans: Toward Comparative Effectiveness in the Pediatric Rheumatic Diseases
Published in Arthritis & rheumatology (Hoboken, N.J.) (01-05-2018)“…The pediatric rheumatic diseases are a heterogeneous group of rare diseases, posing a number of challenges for the use of traditional clinical and…”
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