Search Results - "Moor, Catharina C."

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    Patient-centered care in pulmonary fibrosis: access, anticipate, and act by Hofman, Delian E, Magrì, Tonia, Moor, Catharina C, Richeldi, Luca, Wijsenbeek, Marlies S, Waseda, Yuko

    Published in Respiratory research (01-11-2024)
    “…Abstract Comprehensive care integrates individual patient needs and is highly valued for patients with pulmonary fibrosis (PF). The importance of a…”
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    A review of the challenges, learnings and future directions of home handheld spirometry in interstitial lung disease by Maher, Toby M, Schiffman, Courtney, Kreuter, Michael, Moor, Catharina C, Nathan, Steven D, Axmann, Judit, Belloni, Paula, Bengus, Monica, Gilberg, Frank, Kirchgaessler, Klaus-Uwe, Wijsenbeek, Marlies S

    Published in Respiratory research (11-11-2022)
    “…Abstract Background Patients with interstitial lung disease (ILD) require regular physician visits and referral to specialist ILD clinics. Difficulties or…”
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    Educational aspects of rare and orphan lung diseases by Alfaro, Tiago M, Wijsenbeek, Marlies S, Powell, Pippa, Stolz, Daiana, Hurst, John R, Kreuter, Michael, Moor, Catharina C

    Published in Respiratory research (24-03-2021)
    “…People with rare lung diseases often suffer the burden of delayed diagnosis, limited treatment options, and difficulties in finding expert physicians. One of…”
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    Differentiating interstitial lung diseases from other respiratory diseases using electronic nose technology by van der Sar, Iris G, Wijsenbeek, Marlies S, Braunstahl, Gert-Jan, Loekabino, Jason O, Dingemans, Anne-Marie C, In 't Veen, Johannes C. C. M, Moor, Catharina C

    Published in Respiratory research (06-11-2023)
    “…Abstract Introduction Interstitial lung disease (ILD) may be difficult to distinguish from other respiratory diseases due to overlapping clinical presentation…”
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    Safety and tolerability of pirfenidone in asbestosis: a prospective multicenter study by Miedema, Jelle R, Moor, Catharina C, Veltkamp, Marcel, Baart, Sara, Lie, Natascha S L, Grutters, Jan C, Wijsenbeek, Marlies S, Mostard, Rémy L M

    Published in Respiratory research (28-05-2022)
    “…Pirfenidone slows down disease progression in idiopathic pulmonary fibrosis (IPF). Recent studies suggest a treatment effect in progressive pulmonary fibrosis…”
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    Patient reported side-effects of prednisone and methotrexate in a real-world sarcoidosis population by Kahlmann, Vivienne, Moor, Catharina C, Veltkamp, Marcel, Wijsenbeek, Marlies S

    Published in Chronic respiratory disease (2021)
    “…Currently prednisone is the first-line pharmacological treatment option for pulmonary sarcoidosis. Methotrexate is used as second-line therapy and seems to…”
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    Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring: I-FILE by Nakshbandi, Gizal, Moor, Catharina C, Antoniou, Katerina, Cottin, Vincent, Hoffmann-Vold, Anna-Maria, Koemans, Edwin A, Kreuter, Michael, Molyneaux, Philip L, Wuyts, Wim A, Wijsenbeek, Marlies S

    Published in BMC pulmonary medicine (02-02-2023)
    “…Pulmonary fibrosis (PF) is caused by a heterogeneous group of diseases, with a high inter-individual variability in disease trajectory. Identifying disease…”
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    Desquamative interstitial pneumonia: a systematic review of its features and outcomes by Hellemons, Merel E, Moor, Catharina C, von der Thüsen, Jan, Rossius, Mariska, Odink, Arlette, Thorgersen, Laila Haugen, Verschakelen, Johny, Wuyts, Wim, Wijsenbeek, Marlies S, Bendstrup, Elisabeth

    Published in European respiratory review (30-06-2020)
    “…Desquamative Interstitial Pneumonia (DIP) is a rare form of idiopathic interstitial pneumonia (IIP). Data on clinical features, aetiology, prognosis and effect…”
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    Worldwide experiences and opinions of healthcare providers on eHealth for patients with interstitial lung diseases in the COVID-19 era by Nakshbandi, Gizal, Moor, Catharina C., Johannson, Kerri A., Maher, Toby M., Kreuter, Michael, Wijsenbeek, Marlies S.

    Published in ERJ open research (01-07-2021)
    “…Interstitial lung diseases (ILD) comprise a group of pulmonary diseases characterised by diffuse parenchymal abnormalities, which can lead to irreversible…”
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    Integrating Patient Perspectives into Personalized Medicine in Idiopathic Pulmonary Fibrosis by Moor, Catharina C, Heukels, Peter, Kool, Mirjam, Wijsenbeek, Marlies S

    Published in Frontiers in medicine (20-12-2017)
    “…Idiopathic pulmonary fibrosis (IPF) is a progressive and ultimately fatal disease which has a major impact on patients' quality of life (QOL). Except for lung…”
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    Managing Fatigue in Patients With Interstitial Lung Disease by Kahlmann, Vivienne, Moor, Catharina C., Wijsenbeek, Marlies S.

    Published in Chest (01-11-2020)
    “…Fatigue is one of the most burdensome symptoms in interstitial lung disease (ILD) and can have a major impact on quality of life, social interactions, and work…”
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    Home Monitoring in Patients with Idiopathic Pulmonary Fibrosis: A Randomized Controlled Trial by Moor, Catharina C, Mostard, Rémy L M, Grutters, Jan C, Bresser, Paul, Aerts, Joachim G J V, Chavannes, Niels H, Wijsenbeek, Marlies S

    “…Idiopathic pulmonary fibrosis (IPF) is a deadly disease with increasingly impaired health-related quality of life (HRQOL). EHealth technologies facilitate…”
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