Search Results - "Moor, Catharina C."
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Patient-centered care in pulmonary fibrosis: access, anticipate, and act
Published in Respiratory research (01-11-2024)“…Abstract Comprehensive care integrates individual patient needs and is highly valued for patients with pulmonary fibrosis (PF). The importance of a…”
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A review of the challenges, learnings and future directions of home handheld spirometry in interstitial lung disease
Published in Respiratory research (11-11-2022)“…Abstract Background Patients with interstitial lung disease (ILD) require regular physician visits and referral to specialist ILD clinics. Difficulties or…”
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3
Educational aspects of rare and orphan lung diseases
Published in Respiratory research (24-03-2021)“…People with rare lung diseases often suffer the burden of delayed diagnosis, limited treatment options, and difficulties in finding expert physicians. One of…”
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Differentiating interstitial lung diseases from other respiratory diseases using electronic nose technology
Published in Respiratory research (06-11-2023)“…Abstract Introduction Interstitial lung disease (ILD) may be difficult to distinguish from other respiratory diseases due to overlapping clinical presentation…”
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Safety and tolerability of pirfenidone in asbestosis: a prospective multicenter study
Published in Respiratory research (28-05-2022)“…Pirfenidone slows down disease progression in idiopathic pulmonary fibrosis (IPF). Recent studies suggest a treatment effect in progressive pulmonary fibrosis…”
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Patient reported side-effects of prednisone and methotrexate in a real-world sarcoidosis population
Published in Chronic respiratory disease (2021)“…Currently prednisone is the first-line pharmacological treatment option for pulmonary sarcoidosis. Methotrexate is used as second-line therapy and seems to…”
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Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring: I-FILE
Published in BMC pulmonary medicine (02-02-2023)“…Pulmonary fibrosis (PF) is caused by a heterogeneous group of diseases, with a high inter-individual variability in disease trajectory. Identifying disease…”
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Desquamative interstitial pneumonia: a systematic review of its features and outcomes
Published in European respiratory review (30-06-2020)“…Desquamative Interstitial Pneumonia (DIP) is a rare form of idiopathic interstitial pneumonia (IIP). Data on clinical features, aetiology, prognosis and effect…”
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Design of a randomized controlled trial to evaluate effectiveness of methotrexate versus prednisone as first-line treatment for pulmonary sarcoidosis: the PREDMETH study
Published in BMC pulmonary medicine (19-10-2020)“…Abstract Background Treatment of pulmonary sarcoidosis is recommended in case of significant symptoms, impaired or deteriorating lung function. Evidence-based…”
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Worldwide experiences and opinions of healthcare providers on eHealth for patients with interstitial lung diseases in the COVID-19 era
Published in ERJ open research (01-07-2021)“…Interstitial lung diseases (ILD) comprise a group of pulmonary diseases characterised by diffuse parenchymal abnormalities, which can lead to irreversible…”
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Integrating Patient Perspectives into Personalized Medicine in Idiopathic Pulmonary Fibrosis
Published in Frontiers in medicine (20-12-2017)“…Idiopathic pulmonary fibrosis (IPF) is a progressive and ultimately fatal disease which has a major impact on patients' quality of life (QOL). Except for lung…”
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Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey
Published in ERJ open research (01-10-2019)“…Pulmonary fibrosis (PF) and its most common form, idiopathic pulmonary fibrosis (IPF), are chronic, progressive diseases resulting in increasing loss of lung…”
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ERS International Congress 2022: highlights from the Interstitial Lung Diseases Assembly
Published in ERJ open research (01-03-2023)“…This article contains a selection of scientific highlights in the field of interstitial lung diseases (ILDs) presented at the hybrid European Respiratory…”
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14
Home monitoring for cystic fibrosis: The future is now
Published in Journal of cystic fibrosis (01-01-2022)Get full text
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Management of Acute Exacerbation of Idiopathic Pulmonary Fibrosis in Specialised and Non-specialised ILD Centres Around the World
Published in Frontiers in medicine (27-09-2021)“…Background: Acute exacerbation of idiopathic pulmonary fibrosis (AE-IPF) is a severe complication associated with a high mortality. However, evidence and…”
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ERS International Congress 2021: highlights from the Interstitial Lung Diseases Assembly
Published in ERJ open research (01-04-2022)“…This article provides an overview of scientific highlights in the field of interstitial lung disease (ILD), presented at the virtual European Respiratory…”
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Managing Fatigue in Patients With Interstitial Lung Disease
Published in Chest (01-11-2020)“…Fatigue is one of the most burdensome symptoms in interstitial lung disease (ILD) and can have a major impact on quality of life, social interactions, and work…”
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Highlights of the ERS Lung Science Conference and Sleep and Breathing Conference 2021 and the new ECMC members
Published in Breathe (Lausanne, Switzerland) (01-09-2021)“…https://bit.ly/2RSDP40…”
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Sexual Dysfunction in Patients With Sarcoidosis
Published in Chest (10-08-2024)Get full text
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Home Monitoring in Patients with Idiopathic Pulmonary Fibrosis: A Randomized Controlled Trial
Published in American journal of respiratory and critical care medicine (01-08-2020)“…Idiopathic pulmonary fibrosis (IPF) is a deadly disease with increasingly impaired health-related quality of life (HRQOL). EHealth technologies facilitate…”
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