Search Results - "Modi, Avani C"
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Determination of the minimal clinically important difference scores for the Cystic Fibrosis Questionnaire-Revised respiratory symptom scale in two populations of patients with cystic fibrosis and chronic Pseudomonas aeruginosa airway infection
Published in Chest (01-06-2009)“…The Cystic Fibrosis Questionnaire-Revised (CFQ-R) is a validated patient-reported outcome (PRO) containing both generic scales and scales specific to cystic…”
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Integrated psychological care services within seizure settings: Key components and implementation factors among example services in four ILAE regions: A report by the ILAE Psychiatry Commission
Published in Epilepsia (Copenhagen) (01-07-2023)“…Mental health comorbidities are prevalent and problematic in patients with seizures but often suboptimally managed. To address common gaps in care, the…”
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Health-Related Quality of Life Across Pediatric Chronic Conditions
Published in The Journal of pediatrics (01-04-2010)“…Objective To compare health-related quality of life (HRQOL) across 8 pediatric chronic conditions, including 5 understudied populations, and examine…”
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Managing depression and anxiety in people with epilepsy: A survey of epilepsy health professionals by the ILAE Psychology Task Force
Published in Epilepsia open (01-03-2021)“…Summary Objectives The Psychology Task Force of the Medical Therapies Commission of the International League Against Epilepsy (ILAE) has been charged with…”
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Severe Obesity and Comorbid Condition Impact on the Weight-Related Quality of Life of the Adolescent Patient
Published in The Journal of pediatrics (01-03-2015)“…Objectives To assess links between comorbid health status, severe excess weight, and weight-related quality of life (WRQOL) in adolescents with severe obesity…”
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Factors associated with quality of life for cystic fibrosis family caregivers
Published in Discover Mental Health (16-10-2023)“…Cystic Fibrosis (CF) is a genetic and chronic disease affecting 32,100 people in the United States as of 2021, with a life expectancy of 56 years for people…”
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Electronic Measurement of Medication Adherence in Pediatric Chronic Illness: A Review of Measures
Published in The Journal of pediatrics (01-10-2011)Get full text
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Controlled Study of Critical Parent and Family Factors in the Obesigenic Environment
Published in Obesity (Silver Spring, Md.) (01-01-2007)“…OBJECTIVE: Critical gaps remain in our understanding of the obesigenic family environment. This study examines parent and family characteristics among obese…”
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Feasibility of a musculoskeletal ultrasound intervention to improve adherence in juvenile idiopathic arthritis: a proof-of concept trial
Published in Pediatric rheumatology online journal (22-11-2018)“…Non-adherence is a prevalent and modifiable issue in juvenile idiopathic arthritis (JIA) that currently lacks provider-based intervention. Education…”
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White Coat Adherence over the First Year of Therapy in Pediatric Epilepsy
Published in The Journal of pediatrics (01-10-2012)“…Objective To examine white coat adherence over time in children with epilepsy. Study design This was a longitudinal prospective study to examine medication…”
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Editorial: Stepping in and Stepping up: The Next 5 Years for the Journal of Pediatric Psychology
Published in Journal of pediatric psychology (12-01-2023)Get full text
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The Barriers Assessment Tool—A Patient-Centered Measure of Adherence Barriers in Pediatric Kidney Transplantation
Published in Children (Basel) (23-08-2023)“…Objective: Assessing barriers to adherence provides helpful information to clinicians. The objective of this study was to describe the clinical utility of the…”
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Augmenting family based treatment with emotion coaching for adolescents with anorexia nervosa and atypical anorexia nervosa: Trial design and methodological report
Published in Contemporary clinical trials communications (01-06-2023)“…This article characterizes the design, recruitment, methodology, participant characteristics, and preliminary feasibility and acceptability of the Families…”
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Editorial: Increasing Transparency, Accountability, and Usability in the Journal of Pediatric Psychology
Published in Journal of pediatric psychology (21-02-2023)Get full text
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Feasibility and acceptability of an innovative adherence intervention for young adults with childhood-onset systemic Lupus Erythematosus
Published in Pediatric rheumatology online journal (26-04-2020)“…In Childhood-Onset Systemic Lupus Erythematosus (cSLE), poor medication adherence rates are very high. Interventions targeting this problem in cSLE are limited…”
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Lessons learned from a randomized trial of airway secretion clearance techniques in cystic fibrosis
Published in Pediatric pulmonology (01-03-2010)“…Rationale Airway secretion clearance therapies are a cornerstone of cystic fibrosis care, however longitudinal comparative studies are rare. Our objectives…”
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Patterns of Nonadherence to Antiepileptic Drug Therapy in Children With Newly Diagnosed Epilepsy
Published in JAMA : the journal of the American Medical Association (27-04-2011)“…CONTEXT Because of epilepsy's common occurrence, the narrow therapeutic and safety margins of antiepileptic medications, and the recognized complications of…”
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Keeping people with epilepsy safe during the COVID-19 pandemic
Published in Neurology (09-06-2020)“…OBJECTIVESTo provide information on the effect of the coronavirus disease of 2019 (COVID-19) pandemic on people with epilepsy and provide consensus…”
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Predictors and outcomes of adolescent bariatric support group attendance
Published in Surgery for obesity and related diseases (01-09-2013)“…Abstract Background Attending support groups connects adults undergoing bariatric surgery to peers and may improve weight loss efficacy. Predictors and…”
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Psychological treatments for adults and children with epilepsy: Evidence‐based recommendations by the International League Against Epilepsy Psychology Task Force
Published in Epilepsia (Copenhagen) (01-07-2018)“…Summary Given the significant impact that psychosocial factors and epilepsy treatments can have on the health‐related quality of life (HRQOL) of individuals…”
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