(Re)defining their place at the table: Frank discussions by adults with disabilities on contemporary self‐advocacy

(Re)defining their place at the table: Frank discussions by adults with disabilities on contemporary self‐advocacy

Adults with disabilities have long been at the forefront of disability advocacy in the United States. Grounded in the tenets of radical disability studies and principles of disability justice, this study explored the lived experiences of 12 adults with disabilities, including intellectual disability...

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Published in:Journal of applied research in intellectual disabilities Vol. 35; no. 3; pp. 777 - 788
Main Authors: Miller, Amanda L., Frye, David, Green, Thelma, Mitchell, Cheri, Garcia, George, Huereña, Juliana, Moore, Teresa, Turnage, Vicki
Format: Journal Article
Language:English
Published: Oxford, UK Blackwell Publishing Ltd 01-05-2022
Wiley
Wiley Subscription Services, Inc
Subjects:
activism
Adult
adulthood
Adults
Advocacy
Barriers
Child
Developmental Disabilities
Disabilities
Disability
Disabled Persons
Focus Groups
Humans
Intellectual disabilities
Intellectual Disability
People with disabilities
Research Personnel
Self Advocacy
Self awareness
United States
United States
developmental disabilities
adulthood
intellectual disability
self-advocacy
activism
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Summary:Adults with disabilities have long been at the forefront of disability advocacy in the United States. Grounded in the tenets of radical disability studies and principles of disability justice, this study explored the lived experiences of 12 adults with disabilities, including intellectual disability and developmental disabilities, with a particular focus on self‐advocacy. Two focus groups were primary data sources. Three participants and one university‐based researcher analyzed the data collaboratively. Iterative data collection and analysis yielded 8 primary codes and 22 subcodes. We discuss a subset of our findings, focusing on three major themes. The findings illuminated how adults with disabilities conceptualised self‐advocacy expansively, including self, other, and the collective. Participants also described problems they faced advocating. Finally, adults with disabilities shared solutions to inequities at individual, group, and societal levels. This project illustrates the importance of centering adults with disabilities in research and policy with implications for future thought.
Bibliography:ObjectType-Article-1
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ISSN:1360-2322
1468-3148
DOI:10.1111/jar.12981