Search Results - "Miller, Ilana M"

Outcomes of Counseling after Education about Carrier Results: A Randomized Controlled Trial by Lewis, Katie L., Umstead, Kendall L., Johnston, Jennifer J., Miller, Ilana M., Thompson, Lydia J., Fishler, Kristen P., Biesecker, Leslie G., Biesecker, Barbara B.

“…In-person education and counseling for all people receiving genetic results is the predominant model of disclosure but is challenged by the growing volume of…”
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The PrU: Development and validation of a measure to assess personal utility of genomic results by Turbitt, Erin, Kohler, Jennefer N., Angelo, Frank, Miller, Ilana M., Lewis, Katie L., Goddard, Katrina A.B., Wilfond, Benjamin S., Biesecker, Barbara B., Leo, Michael C.

“…People report experiencing value from learning genomic results even in the absence of clinically actionable information. Such personal utility has emerged as a…”
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Knowledge, motivations, expectations, and traits of an African, African-American, and Afro-Caribbean sequencing cohort and comparisons to the original ClinSeq® cohort by Lewis, Katie L., Heidlebaugh, Alexis R., Epps, Sandra, Han, Paul K. J., Fishler, Kristen P., Klein, William M. P., Miller, Ilana M., Ng, David, Hepler, Charlotte, Biesecker, Barbara B., Biesecker, Leslie G.

“…Purpose Racial minority populations are underrepresented in genomics research. This study enrolled African-descended individuals in a sequencing study and…”
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Health behaviors among unaffected participants following receipt of variants of uncertain significance in cardiomyopathy-associated genes by Miller, Ilana M., Lewis, Katie L., Lawal, Tokunbor A., Ng, David, Johnston, Jennifer J., Biesecker, Barbara B., Biesecker, Leslie G.

“…Purpose Studies on returning variants of uncertain significance (VUS) results have predominantly included patients with a personal or family history of cancer…”
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Managing the need to tell: Triggers and strategic disclosure of thalassemia major in Singapore by Kumar, Neha, Turbitt, Erin, Biesecker, Barbara B., Miller, Ilana M., Cham, Breana, Smith, Katherine C., Rimal, Rajiv N.

“…This study explored patients' experiences and perceptions of living with thalassemia (an inherited hematologic disorder), perceptions of social stigma, and…”
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Perceptions of uncertainties about carrier results identified by exome sequencing in a randomized controlled trial by Umstead, Kendall L, Han, Paul K J, Lewis, Katie L, Miller, Ilana M, Hepler, Charlotte L, Thompson, Lydia J, Wolfsberg, Tyra G, Nguyen, Anh-Dao, Fredriksen, Mark T, Gibney, Gretchen, Turbitt, Erin, Biesecker, Leslie G, Biesecker, Barbara B

“…Abstract How individuals perceive uncertainties in sequencing results may affect their clinical utility. The purpose of this study was to explore perceptions…”
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Health Behaviors Amongst Unaffected Participants Following Receipt of Variants of Uncertain Significance in Cardiomyopathy-Associated Genes by Miller, Ilana M., Lewis, Katie L., Lawal, Tokunbor A., Ng, David, Johnston, Jennifer J., Biesecker, Barbara B., Biesecker, Leslie G.

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