Search Results - "Millenaar, Joany"
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The care needs and experiences with the use of services of people with young-onset dementia and their caregivers: a systematic review
Published in International journal of geriatric psychiatry (01-12-2016)“…Objective In this review, the care needs and experiences with the use of available services of individuals with young‐onset dementia (YOD) and their caregivers…”
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The Impact of Young Onset Dementia on Informal Caregivers Compared with Late Onset Dementia: Results from the NeedYD Study
Published in The American journal of geriatric psychiatry (01-06-2016)“…Objectives The impact of the dementia might be more severe for caregivers of people with young onset dementia (YOD) compared with those who care for someone…”
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Survival and life-expectancy in a young-onset dementia cohort with six years of follow-up: the NeedYD-study
Published in International psychogeriatrics (01-12-2019)“…The aim of this study was to investigate survival time and life-expectancy in people with young-onset dementia (YOD) and to examine the relationship with age,…”
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Tailoring and evaluating the web-based ‘Partner in Balance’ intervention for family caregivers of persons with young-onset dementia
Published in Internet interventions : the application of information technology in mental and behavioural health (01-09-2021)“…Young-onset dementia (YOD) poses specific challenges for caregivers involved. However, most available support does not address their specific needs…”
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Exploring perspectives of young onset dementia caregivers with high versus low unmet needs
Published in International journal of geriatric psychiatry (01-02-2018)“…Background This study is part of the Research to Assess Policies and Strategies for Dementia in the Young project. Information about specific needs in young…”
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The experiences and needs of children living with a parent with young onset dementia: results from the NeedYD study
Published in International psychogeriatrics (01-12-2014)“…Children of patients with young onset dementia (YOD) who are confronted with a parent who has a progressive disease, often assist in caregiving tasks, which…”
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Psychotropic drug use in community-dwelling people with young-onset dementia: two-year course and determinants
Published in Aging & mental health (2021)“…The aim of this study was to describe the course of psychotropic drug use in people with young-onset dementia and to explore possible associations with age,…”
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Availability of information on young onset dementia for patients and carers in six European countries
Published in Patient education and counseling (01-01-2018)“…•Young onset dementia (YOD) often presents differently from dementia in old age.•Families living with YOD face particular challenges and need specific…”
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Determinants of quality of life in young onset dementia - results from a European multicenter assessment
Published in Aging & mental health (02-01-2017)“…Background: Promoting adaptation, improving well-being and maintaining an optimal quality of life (QOL) is an important aspect in dementia care. The purpose of…”
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RHAPSODY - Internet-based support for caregivers of people with young onset dementia: program design and methods of a pilot study
Published in International psychogeriatrics (01-12-2016)“…Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to…”
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