Search Results - "Mehlis, Katja"
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Physicians' attitudes towards secondary use of clinical data for biomedical research purposes in Germany. Results of a quantitative survey
Published in PloS one (13-02-2024)“…For biomedical data-driven research purposes, secondary use of clinical data carries great but largely untapped potential. Physicians' attitudes and their…”
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Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer
Published in Journal of medical Internet research (25-08-2022)“…Background Secondary use of clinical data for biomedical research purposes holds great potential for various types of noninterventional, data-driven studies…”
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The patient-level effect of the cost of Cancer care - financial burden in German Cancer patients
Published in BMC cancer (05-06-2020)“…Financial toxicity of cancer has so far been discussed primarily in the US health care system and is associated with higher morbidity and mortality. In…”
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Commentary 1: (Self-)reflexivity and External Monitoring
Published in Journal of empirical research on human research ethics (01-12-2019)Get full text
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The COVID-19 Pandemic and Cancer Patients in Germany: Impact on Treatment, Follow-Up Care and Psychological Burden
Published in Frontiers in public health (09-02-2022)“…In response to the ongoing coronavirus disease 2019 (COVID-19) pandemic, governments imposed various measures to decrease the rate of disease spread, and…”
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Late decisions about treatment limitation in patients with cancer: empirical analysis of end-of-life practices in a haematology and oncology unit at a German university hospital
Published in ESMO open (27-10-2020)“…BackgroundDecisions to limit treatment (DLTs) are important to protect patients from overtreatment but constitute one of the most ethically challenging…”
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Secondary Use of Clinical Data in Data-Gathering, Non-Interventional Research or Learning Activities: Definition, Types, and a Framework for Risk Assessment
Published in Journal of medical Internet research (08-06-2021)“…Background The secondary use of clinical data in data-gathering, non-interventional research or learning activities (SeConts) has great potential for…”
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High prevalence of moral distress reported by oncologists and oncology nurses in end‐of‐life decision making
Published in Psycho-oncology (Chichester, England) (01-12-2018)“…Objective Decisions to limit life‐prolonging treatment (DLT) are often accompanied by psychological and ethical difficulties. The aim of the study is to…”
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Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems
Published in Cancers (07-10-2021)“…Financial toxicity is a side effect of cancer that results from the perceived financial distress an individual may experience in the course of the disease. The…”
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Financial toxicity in patients with colorectal cancer and neuroendocrine tumors
Published in Journal of clinical oncology (20-05-2018)“…Abstract only…”
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Room for improvement regarding patient involvement in decisions to limit treatment: Results from the EPAL-study (Ethics Policy for Advanced Care Planning and Limiting Treatment)
Published in Journal of clinical oncology (20-05-2016)“…Abstract only…”
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Development and Evaluation of an Ethical Guideline for Decisions to Limit Life-Prolonging Treatment in Advanced Cancer: Protocol for a Monocentric Mixed-Method Interventional Study
Published in JMIR research protocols (15-06-2018)“…Many patients with advanced cancer receive chemotherapy close to death and are referred too late to palliative or hospice care, and therefore die under therapy…”
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Individual financial burden following a cancer diagnosis from the perspective of social services in Germany
Published in Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen (01-05-2021)“…In addition to physical, psychological and social effects, economic effects and the associated financial burden of a cancer diagnosis may also gain in…”
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Trust and responsibility in molecular tumour boards
Published in Bioethics (01-09-2018)“…Molecular tumour boards (MTBs) offer recommendations for potentially effective, but potentially burdensome, molecularly targeted treatments to a patient's…”
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Krebs und die finanziellen Auswirkungen für Betroffene: Konzeptualisierung und erste Ergebnisse einer Validierungsstudie
Published in Forum (Heidelberg) (01-04-2024)“…Zusammenfassung Eine Krebserkrankung kann vielschichtige finanzielle Folgen für Betroffene haben. In einer Validierungsstudie zur Erfassung von finanziellen…”
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The Role of Physicians in Rationing Cancer Care. Attitudes of German Oncologists
Published in Oncology research and treatment (01-01-2017)“…Against the background of limited resources, the rise in the cost of therapy as well as in the number of cancer patients fuels the discussion about the…”
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Frequency and Timing of Decisions to Limit Intensive Medical Care and Tumor-Specific Therapy in University Hematology and Oncology
Published in Deutsche medizinische Wochenschrift (1946) (01-09-2017)“…Decisions to limit treatment (DLT) are important in order to prevent overtreatment at the end of life. However, they are not always discussed with the patient…”
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Finanzielle Auswirkung von Krebserkrankungen und sozialethische Implikationen
Published in Der Onkologe (01-05-2020)“…Zusammenfassung Hintergrund Während über patientenseitige finanzielle Auswirkungen einer Krebserkrankung bislang v. a. für das US-amerikanische…”
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Individuelle finanzielle Belastungen infolge einer Krebserkrankung aus der Perspektive von Sozialdiensten in Deutschland
Published in Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen (01-05-2021)“…Neben physischen, psychischen und sozialen Auswirkungen können bei längeren Krankheitsverläufen auch finanzielle Auswirkungen und damit einhergehende…”
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Haben Patientinnen die moralische Pflicht, ihre klinischen Daten für Forschung bereitzustellen? Eine kritische Prüfung möglicher Gründe
Published in Ethik in der Medizin (2022)“…Zusammenfassung Die Sekundärnutzung klinischer Daten für Forschungs- und Lernaktivitäten hat das Potenzial, medizinisches Wissen und klinische Versorgung…”
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