Search Results - "Meaney, F.J."

P.7.7 Health care services received by patients with Duchenne/Becker muscular dystrophy (DBMD): Data from the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) by Pandya, S, Campbell, K, Andrews, J, Meaney, F.J, Cunniff, C, Romitti, P

“…Anecdotal reports from families and care providers suggest a wide variation in services received by patients with DBMD. To document the type of health care…”
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P1.53 Rehabilitation therapy services received by patients with Duchenne/Becker muscular dystrophy (DBMD): Data from the muscular dystrophy surveillance, tracking and research network (MDSTARNet) by Pandya, S, Campbell, K, Andrews, J, Meaney, F.J, Cunniff, C, Druschel, C, Miller, L, Romitti, P

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P1.54 Rehabilitation equipment use reported by families of patients with Duchenne/Becker muscular dystrophy (DBMD): Data from the muscular dystrophy surveillance, tracking and research network (MDSTARNet) by Pandya, S, Campbell, K, Andrews, J, Meaney, F.J, Cunniff, C, Druschel, C, Miller, L, Romitti, P

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Standards for selected anthropometric measurements in Prader-Willi Syndrome by Butler, M.G. (Vanderbilt University School of Medicine, Nashville, TN), Meaney, F.J

“…We report standards (95th, 50th, and 5th centiles) in Prader-Willi syndrome for weight, height, sitting height, head circumference, head length, head breadth,…”
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Guidelines for the retention, storage, and use of residual dried blood spot samples after newborn screening analysis: Statement of the council of regional networks for genetic services by Therrell, B.L., Hannon, W.H., Pass, K.A., Lorey, F., Brokopp, C., Eckman, J., Glass, M., Heidenreich, R., Kinney, S., Kling, G., Landenburger, G., Meaney, F.J., McCabe, E.R.B., Panny, S., Schwartz, M., Shapira, E.

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Computerized tracking for newborn screening and follow-up: a review by Meaney, F.J.

“…The world-wide use of computers for newborn screening and testing is reviewed, and the lack of follow-up in a large number of programs is discussed with…”
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Assessing genetic risks — implications for health and social policy: response from the Newborn Screening Committee of the Council of Regional Networks for Genetic Services by Meaney, F.J., Kinney, S., Kling, S., Landenburger, G., Panny, S., Schwartz, M., Heidenreich, R., Therrell, B.L., Brokopp, C., Eckman, J., Glass, M., Hannon, W.H., Lorey, F., Pass, K.A., Shapira, E.

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