Search Results - "McDonald, Katherine E"

You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities by McDonald, Katherine E., Ph.D, Stack, Erin, M.S

“…Abstract Background Community-based participatory research (CBPR) seeks to improve the responsiveness of science to community priorities and foster positive…”
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Disability, Ethics, and Health Care in the COVID-19 Pandemic by Sabatello, Maya, Burke, Teresa Blankmeyer, McDonald, Katherine E, Appelbaum, Paul S

“…This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited…”
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People With Disabilities in COVID-19: Fixing Our Priorities by Sabatello, Maya, Landes, Scott D., McDonald, Katherine E.

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Invisible: People with Disability and (In)equity in Precision Medicine Research by Sabatello, Maya, McDonald, Katherine E.

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Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities by Raymaker, Dora M, McDonald, Katherine E, Ashkenazy, Elesia, Gerrity, Martha, Baggs, Amelia M, Kripke, Clarissa, Hourston, Sarah, Nicolaidis, Christina

“…Our objective was to use a community-based participatory research approach to identify and compare barriers to healthcare experienced by autistic adults and…”
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COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State by Landes, Scott D., Turk, Margaret A., Formica, Margaret K., McDonald, Katherine E., Stevens, J. Dalton

“…People with intellectual and developmental disabilities (IDD) may be at higher risk of severe outcomes from COVID-19. To describe COVID-19 outcomes among…”
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“Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum by Nicolaidis, Christina, Raymaker, Dora M, Ashkenazy, Elesia, McDonald, Katherine E, Dern, Sebastian, Baggs, Amelia EV, Kapp, Steven K, Weiner, Michael, Boisclair, W Cody

“…Our objective was to obtain an in-depth understanding of autistic adults’ experiences with healthcare and their recommendations for improving care. Our…”
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“That Felt Like Real Engagement”: Fostering and Maintaining Inclusive Research Collaborations With Individuals With Intellectual Disability by Schwartz, Ariel E., Kramer, Jessica M., Cohn, Ellen S., McDonald, Katherine E.

“…People with intellectual disability (ID) are increasingly involved in stakeholder-engaged research, such as “inclusive research” (IR). To understand the…”
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Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement by McDonald, Katherine E., Gibbons, Colleen, Conroy, Nicole, Olick, Robert S.

“…Background Adults with intellectual disability experience disparities in social determinants of health and health outcomes. While new knowledge can advance…”
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Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research by MCDONALD, Katherine E, RAYMAKER, Dora M

“…Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a…”
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A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research by McDonald, Katherine E, Schwartz, Ariel E, Feldman, Micah Fialka, Nelis, Tia, Raymaker, Dora M

“…Provoked by decades of grassroots activism, anti-ableist work is underway to advance disability rights. Intellectual disability (ID) researchers can integrate…”
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Eligibility criteria in NIH-funded clinical trials: Can adults with intellectual disability get in? by McDonald, Katherine E., Schwartz, Ariel E., Sabatello, Maya

“…Although scientific breakthroughs can promote health equity, there is concern that adults with intellectual disability, a health disparities population, may be…”
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Racial-ethnic inequities in age at death among adults with/without intellectual and developmental disability in the United States by Landes, Scott D., Wilmoth, Janet M., McDonald, Katherine E., Smith, Alyssa N.

“…To identify potential differences in racial-ethnic inequities in mortality between adults with/without intellectual and developmental disability, we compared…”
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“[I] don’t wanna just be like a cog in the machine”: Narratives of autism and skilled employment by Raymaker, Dora M, Sharer, Mirah, Maslak, Joelle, Powers, Laurie E, McDonald, Katherine E, Kapp, Steven K, Moura, Ian, Wallington, Anna “Furra”, Nicolaidis, Christina

“…Autistic people experience disparities in employment which may be exacerbated for individuals in skilled employment. Little is known about the experiences of…”
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Disability rights and empowerment: Reflections on AJCP research and a call to action by Suarez‐Balcazar, Yolanda, Balcazar, Fabricio, Labbe, Delphine, McDonald, Katherine E., Keys, Christopher, Taylor‐Ritzler, Tina, Anderson, Sarah M., Agner, Joy

“…People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural…”
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Responsible inclusion: A systematic review of consent to social-behavioral research with adults with intellectual disability in the US by McDonald, Katherine E., Schwartz, Ariel E., Dinerstein, Robert, Olick, Robert, Sabatello, Maya

“…In recognition of their status as a health disparities population, there is growing emphasis on conducting research inclusive of adults with intellectual…”
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Evidence of continued reduction in the age‐at‐death disparity between adults with and without intellectual and/or developmental disabilities by Landes, Scott D., McDonald, Katherine E., Wilmoth, Janet M., Carter Grosso, Erika

“…Background This study examines recent trends in the age‐at‐death disparity between adults with and without intellectual and/or developmental disabilities in…”
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Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations by Nicolaidis, Christina, Raymaker, Dora M, McDonald, Katherine E, Lund, Emily M, Leotti, Sandra, Kapp, Steven K, Katz, Marsha, Beers, Leanne M, Kripke, Clarissa, Maslak, Joelle, Hunter, Morrigan, Zhen, Kelly Y

“…Despite growing appreciation of the need for research on autism in adulthood, few survey instruments have been validated for use with autistic adults. We…”
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Stakeholder‐driven approach to developing a peer‐mentoring intervention for young adults with intellectual/developmental disabilities and co‐occurring mental health conditions by Schwartz, Ariel E., Kramer, Jessica M., Rogers, E. Sally, McDonald, Katherine E., Cohn, Ellen S.

“…Background Young adults with intellectual/developmental disabilities and co‐occurring mental health conditions (IDD‐MH) experience significant mental health…”
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The State of the Science on Autism in Adulthood: Building an Evidence Base for Change by Kirby, Anne V, McDonald, Katherine E

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